BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//The Life Raft Group - ECPv6.15.20//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:The Life Raft Group
X-ORIGINAL-URL:https://liferaftgroup.org
X-WR-CALDESC:Events for The Life Raft Group
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20210314T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20211107T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20220313T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20221106T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20230312T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20231105T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220713T120000
DTEND;TZID=America/New_York:20220713T130000
DTSTAMP:20260505T150913
CREATED:20220629T193124Z
LAST-MODIFIED:20220629T233740Z
UID:10000236-1657713600-1657717200@liferaftgroup.org
SUMMARY:GIST Awareness Day Webinar: SDH Updates and Stories
DESCRIPTION:GIST Awareness Day (GAD)\, July 13th)\, is a time where GIST experts\, patients\, caregivers can come together to educate the public about this disease and advocate towards finding a cure. The Life Raft Group invites GIST patients and caregivers to celebrate GAD with us on July 13th at 12pm. During this virtual event\, Dr. John Glod\, Clinical Director of the Pediatric Oncology Branch in the Center for Cancer Research at National Cancer Institute\, will discuss updates from the NIH Pediatric & Wildtype GIST Clinic\, which is a part of My Pediatric and Adult Rare Tumor Network (MyPART). Immediately following Dr. Glod’s presentation\, pediatric GIST patient Lleyton Schelesky will share his GIST story. After the presentations\, there will be time for a Q&A. \nIf you have questions about SDH-deficient GIST and would like to submit them prior to the webinar\, please send them to Sara Rothschild at srothschild@liferaftgroup.org. \nREGISTERAbout the Presenters\nJohn Glod\, MD\, PhD\nAssociate Research Physician\, National Cancer Institute\, Pediatric Oncology Branch \nDr. Glod obtained his M.D. and Ph.D. from the University of Colorado in Denver and trained in pediatrics and pediatric oncology at Cincinnati Children’s Hospital\, Johns Hopkins Hospital\, and the Pediatric Oncology Branch of the NCI.  Following an fellowship in neuro-oncology at the NCI\, Dr. Glod served as faculty in the departments of pediatrics and pharmacology at Rutgers Cancer Institute of New Jersey. Dr. Glod joined the Pharmacology and Experimental Therapeutics Section in 2013.  His research interests focus on understanding the biology of rare pediatric solid tumors and exploring new therapies for patients with these diseases. \n\nLleyton Schelesky\nPatient Advocate \nLleyton was diagnosed with GIST at age 12. Now a young adult\, Lleyton will share his experience with SDH-deficient GIST.
URL:https://liferaftgroup.org/event/gist-awareness-day-2022/
CATEGORIES:Events
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
END:VCALENDAR