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X-WR-CALDESC:Events for The Life Raft Group
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260421T150000
DTEND;TZID=America/New_York:20260421T150000
DTSTAMP:20260504T124536
CREATED:20250710T225236Z
LAST-MODIFIED:20260226T154752Z
UID:10000839-1776783600-1776783600@liferaftgroup.org
SUMMARY:SDH Support Group
DESCRIPTION:We are excited to announce the launch of a dedicated Support Group for SDH-GIST patients\, created to offer a welcoming space for connection\, understanding\, and shared experience. Whether you’re newly diagnosed or have been managing SDH for years\, this group is here to support you. Together\, we will share our stories and knowledge\, discuss challenges\, celebrate progress\, and offer encouragement to one another in a safe\, respectful environment. \nWhat to Expect: \n\nRegular virtual meetings\nPeer support and open discussion\nGuest speakers and educational sessions\nOpportunities to ask questions and share your story\n\nThis group will meet the 3rd Tuesdays of the month. Space is limited as we aim to keep the support groups small to allow for sharing & discussion.  If interested in the group\, please contact Becky Owens at bowens@liferaftgroup.org. A registration link will be sent to those who express interest. You are not alone\, and we hope this group becomes a meaningful part of your life.
URL:https://liferaftgroup.org/event/sdh-support-group/2026-04-21/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2025/07/SDH-Support-Group-Event-Banner.png
ORGANIZER;CN="Becky Owens":MAILTO:bowens@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260317T150000
DTEND;TZID=America/New_York:20260317T150000
DTSTAMP:20260504T124536
CREATED:20250710T225236Z
LAST-MODIFIED:20260226T154752Z
UID:10000838-1773759600-1773759600@liferaftgroup.org
SUMMARY:SDH Support Group
DESCRIPTION:We are excited to announce the launch of a dedicated Support Group for SDH-GIST patients\, created to offer a welcoming space for connection\, understanding\, and shared experience. Whether you’re newly diagnosed or have been managing SDH for years\, this group is here to support you. Together\, we will share our stories and knowledge\, discuss challenges\, celebrate progress\, and offer encouragement to one another in a safe\, respectful environment. \nWhat to Expect: \n\nRegular virtual meetings\nPeer support and open discussion\nGuest speakers and educational sessions\nOpportunities to ask questions and share your story\n\nThis group will meet the 3rd Tuesdays of the month. Space is limited as we aim to keep the support groups small to allow for sharing & discussion.  If interested in the group\, please contact Becky Owens at bowens@liferaftgroup.org. A registration link will be sent to those who express interest. You are not alone\, and we hope this group becomes a meaningful part of your life.
URL:https://liferaftgroup.org/event/sdh-support-group/2026-03-17/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2025/07/SDH-Support-Group-Event-Banner.png
ORGANIZER;CN="Becky Owens":MAILTO:bowens@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260217T150000
DTEND;TZID=America/New_York:20260217T150000
DTSTAMP:20260504T124536
CREATED:20250710T225236Z
LAST-MODIFIED:20260226T154752Z
UID:10000837-1771340400-1771340400@liferaftgroup.org
SUMMARY:SDH Support Group
DESCRIPTION:We are excited to announce the launch of a dedicated Support Group for SDH-GIST patients\, created to offer a welcoming space for connection\, understanding\, and shared experience. Whether you’re newly diagnosed or have been managing SDH for years\, this group is here to support you. Together\, we will share our stories and knowledge\, discuss challenges\, celebrate progress\, and offer encouragement to one another in a safe\, respectful environment. \nWhat to Expect: \n\nRegular virtual meetings\nPeer support and open discussion\nGuest speakers and educational sessions\nOpportunities to ask questions and share your story\n\nThis group will meet the 3rd Tuesdays of the month. Space is limited as we aim to keep the support groups small to allow for sharing & discussion.  If interested in the group\, please contact Becky Owens at bowens@liferaftgroup.org. A registration link will be sent to those who express interest. You are not alone\, and we hope this group becomes a meaningful part of your life.
URL:https://liferaftgroup.org/event/sdh-support-group/2026-02-17/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2025/07/SDH-Support-Group-Event-Banner.png
ORGANIZER;CN="Becky Owens":MAILTO:bowens@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260120T150000
DTEND;TZID=America/New_York:20260120T150000
DTSTAMP:20260504T124536
CREATED:20250710T225236Z
LAST-MODIFIED:20260226T154752Z
UID:10000836-1768921200-1768921200@liferaftgroup.org
SUMMARY:SDH Support Group
DESCRIPTION:We are excited to announce the launch of a dedicated Support Group for SDH-GIST patients\, created to offer a welcoming space for connection\, understanding\, and shared experience. Whether you’re newly diagnosed or have been managing SDH for years\, this group is here to support you. Together\, we will share our stories and knowledge\, discuss challenges\, celebrate progress\, and offer encouragement to one another in a safe\, respectful environment. \nWhat to Expect: \n\nRegular virtual meetings\nPeer support and open discussion\nGuest speakers and educational sessions\nOpportunities to ask questions and share your story\n\nThis group will meet the 3rd Tuesdays of the month. Space is limited as we aim to keep the support groups small to allow for sharing & discussion.  If interested in the group\, please contact Becky Owens at bowens@liferaftgroup.org. A registration link will be sent to those who express interest. You are not alone\, and we hope this group becomes a meaningful part of your life.
URL:https://liferaftgroup.org/event/sdh-support-group/2026-01-20/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2025/07/SDH-Support-Group-Event-Banner.png
ORGANIZER;CN="Becky Owens":MAILTO:bowens@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251216T150000
DTEND;TZID=America/New_York:20251216T150000
DTSTAMP:20260504T124536
CREATED:20250710T225236Z
LAST-MODIFIED:20260226T154752Z
UID:10000835-1765897200-1765897200@liferaftgroup.org
SUMMARY:SDH Support Group
DESCRIPTION:We are excited to announce the launch of a dedicated Support Group for SDH-GIST patients\, created to offer a welcoming space for connection\, understanding\, and shared experience. Whether you’re newly diagnosed or have been managing SDH for years\, this group is here to support you. Together\, we will share our stories and knowledge\, discuss challenges\, celebrate progress\, and offer encouragement to one another in a safe\, respectful environment. \nWhat to Expect: \n\nRegular virtual meetings\nPeer support and open discussion\nGuest speakers and educational sessions\nOpportunities to ask questions and share your story\n\nThis group will meet the 3rd Tuesdays of the month. Space is limited as we aim to keep the support groups small to allow for sharing & discussion.  If interested in the group\, please contact Becky Owens at bowens@liferaftgroup.org. A registration link will be sent to those who express interest. You are not alone\, and we hope this group becomes a meaningful part of your life.
URL:https://liferaftgroup.org/event/sdh-support-group/2025-12-16/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2025/07/SDH-Support-Group-Event-Banner.png
ORGANIZER;CN="Becky Owens":MAILTO:bowens@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251118T150000
DTEND;TZID=America/New_York:20251118T150000
DTSTAMP:20260504T124536
CREATED:20250710T225236Z
LAST-MODIFIED:20260226T154752Z
UID:10000834-1763478000-1763478000@liferaftgroup.org
SUMMARY:SDH Support Group
DESCRIPTION:We are excited to announce the launch of a dedicated Support Group for SDH-GIST patients\, created to offer a welcoming space for connection\, understanding\, and shared experience. Whether you’re newly diagnosed or have been managing SDH for years\, this group is here to support you. Together\, we will share our stories and knowledge\, discuss challenges\, celebrate progress\, and offer encouragement to one another in a safe\, respectful environment. \nWhat to Expect: \n\nRegular virtual meetings\nPeer support and open discussion\nGuest speakers and educational sessions\nOpportunities to ask questions and share your story\n\nThis group will meet the 3rd Tuesdays of the month. Space is limited as we aim to keep the support groups small to allow for sharing & discussion.  If interested in the group\, please contact Becky Owens at bowens@liferaftgroup.org. A registration link will be sent to those who express interest. You are not alone\, and we hope this group becomes a meaningful part of your life.
URL:https://liferaftgroup.org/event/sdh-support-group/2025-11-18/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2025/07/SDH-Support-Group-Event-Banner.png
ORGANIZER;CN="Becky Owens":MAILTO:bowens@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251021T150000
DTEND;TZID=America/New_York:20251021T150000
DTSTAMP:20260504T124536
CREATED:20250710T225236Z
LAST-MODIFIED:20260226T154752Z
UID:10000833-1761058800-1761058800@liferaftgroup.org
SUMMARY:SDH Support Group
DESCRIPTION:We are excited to announce the launch of a dedicated Support Group for SDH-GIST patients\, created to offer a welcoming space for connection\, understanding\, and shared experience. Whether you’re newly diagnosed or have been managing SDH for years\, this group is here to support you. Together\, we will share our stories and knowledge\, discuss challenges\, celebrate progress\, and offer encouragement to one another in a safe\, respectful environment. \nWhat to Expect: \n\nRegular virtual meetings\nPeer support and open discussion\nGuest speakers and educational sessions\nOpportunities to ask questions and share your story\n\nThis group will meet the 3rd Tuesdays of the month. Space is limited as we aim to keep the support groups small to allow for sharing & discussion.  If interested in the group\, please contact Becky Owens at bowens@liferaftgroup.org. A registration link will be sent to those who express interest. You are not alone\, and we hope this group becomes a meaningful part of your life.
URL:https://liferaftgroup.org/event/sdh-support-group/2025-10-21/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2025/07/SDH-Support-Group-Event-Banner.png
ORGANIZER;CN="Becky Owens":MAILTO:bowens@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250916T150000
DTEND;TZID=America/New_York:20250916T150000
DTSTAMP:20260504T124536
CREATED:20250710T225236Z
LAST-MODIFIED:20260226T154752Z
UID:10000832-1758034800-1758034800@liferaftgroup.org
SUMMARY:SDH Support Group
DESCRIPTION:We are excited to announce the launch of a dedicated Support Group for SDH-GIST patients\, created to offer a welcoming space for connection\, understanding\, and shared experience. Whether you’re newly diagnosed or have been managing SDH for years\, this group is here to support you. Together\, we will share our stories and knowledge\, discuss challenges\, celebrate progress\, and offer encouragement to one another in a safe\, respectful environment. \nWhat to Expect: \n\nRegular virtual meetings\nPeer support and open discussion\nGuest speakers and educational sessions\nOpportunities to ask questions and share your story\n\nThis group will meet the 3rd Tuesdays of the month. Space is limited as we aim to keep the support groups small to allow for sharing & discussion.  If interested in the group\, please contact Becky Owens at bowens@liferaftgroup.org. A registration link will be sent to those who express interest. You are not alone\, and we hope this group becomes a meaningful part of your life.
URL:https://liferaftgroup.org/event/sdh-support-group/2025-09-16/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2025/07/SDH-Support-Group-Event-Banner.png
ORGANIZER;CN="Becky Owens":MAILTO:bowens@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250819T150000
DTEND;TZID=America/New_York:20250819T150000
DTSTAMP:20260504T124536
CREATED:20250710T225236Z
LAST-MODIFIED:20260226T154752Z
UID:10000831-1755615600-1755615600@liferaftgroup.org
SUMMARY:SDH Support Group
DESCRIPTION:We are excited to announce the launch of a dedicated Support Group for SDH-GIST patients\, created to offer a welcoming space for connection\, understanding\, and shared experience. Whether you’re newly diagnosed or have been managing SDH for years\, this group is here to support you. Together\, we will share our stories and knowledge\, discuss challenges\, celebrate progress\, and offer encouragement to one another in a safe\, respectful environment. \nWhat to Expect: \n\nRegular virtual meetings\nPeer support and open discussion\nGuest speakers and educational sessions\nOpportunities to ask questions and share your story\n\nThis group will meet the 3rd Tuesdays of the month. Space is limited as we aim to keep the support groups small to allow for sharing & discussion.  If interested in the group\, please contact Becky Owens at bowens@liferaftgroup.org. A registration link will be sent to those who express interest. You are not alone\, and we hope this group becomes a meaningful part of your life.
URL:https://liferaftgroup.org/event/sdh-support-group/2025-08-19/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2025/07/SDH-Support-Group-Event-Banner.png
ORGANIZER;CN="Becky Owens":MAILTO:bowens@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250715T150000
DTEND;TZID=America/New_York:20250715T150000
DTSTAMP:20260504T124536
CREATED:20250710T225236Z
LAST-MODIFIED:20260226T154752Z
UID:10000830-1752591600-1752591600@liferaftgroup.org
SUMMARY:SDH Support Group
DESCRIPTION:We are excited to announce the launch of a dedicated Support Group for SDH-GIST patients\, created to offer a welcoming space for connection\, understanding\, and shared experience. Whether you’re newly diagnosed or have been managing SDH for years\, this group is here to support you. Together\, we will share our stories and knowledge\, discuss challenges\, celebrate progress\, and offer encouragement to one another in a safe\, respectful environment. \nWhat to Expect: \n\nRegular virtual meetings\nPeer support and open discussion\nGuest speakers and educational sessions\nOpportunities to ask questions and share your story\n\nThis group will meet the 3rd Tuesdays of the month. Space is limited as we aim to keep the support groups small to allow for sharing & discussion.  If interested in the group\, please contact Becky Owens at bowens@liferaftgroup.org. A registration link will be sent to those who express interest. You are not alone\, and we hope this group becomes a meaningful part of your life.
URL:https://liferaftgroup.org/event/sdh-support-group/2025-07-15/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2025/07/SDH-Support-Group-Event-Banner.png
ORGANIZER;CN="Becky Owens":MAILTO:bowens@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190503T130000
DTEND;TZID=America/New_York:20190503T140000
DTSTAMP:20260504T124536
CREATED:20190418T143423Z
LAST-MODIFIED:20190507T155606Z
UID:10000019-1556888400-1556892000@liferaftgroup.org
SUMMARY:LRG Webcast: Genetic Testing and SDHx Mutations
DESCRIPTION:Genetic Testing and SDHx Mutations:\nWhat do they have to do with PGL/GIST/Pheos?\nLISTEN TO WEBCAST\n\nThis webcast will highlight how SDHx mutations impact risks for paraganglioma\, pheochromocytomas\, and GIST. We’ll discuss why genetic testing is helpful for any diagnosis of GIST\, paraganglioma or pheochromocytoma\, and what the SDHx genes have to do with tumor risk. We’ll discuss what types of tumors are associated with mutations in the SDHx genes\, and how different SDHx genes (SDHA\, SDHB\, SDHC\, SDHD\, SDHAF2) have different tumor and location risks. This webcast will highlight recommendations for screening and current research initiatives for SDHx and paragangliomas.\n\nAbout the Presenter:\nSamantha Greenberg is a board-certified genetic counselor who oversees the SDHx clinic and specializes in paraganglioma research at Huntsman Cancer Institute. She graduated with a Master’s Degree in Human Genetics and a Master’s of Public Health from the University of Michigan\, and a Bachelor’s Degree in neuroscience from the same university. Prior to her graduate training\, she taught 7th grade science in Tulsa\, Oklahoma\, through Teach for America. At Huntsman\, Samantha also continues public health genomics work with the Department of Health focused on rural clinician education and programming. She has worked to expand cancer genetics’ role in genitourinary cancers\, and oversees the VHL Clinical Care Center.\n\nTechnical Tips to Join Meeting:\n\nThis is a web only meeting\, accessed only by your internet connection. Participants are encouraged to use the web link automatically provided after registration and to use computer speakers (and/or headsets if available) to hear the audio portion of the meeting. Please log in at least ten minutes prior to the start of the webinar.\nPlease ensure you have an updated version of Adobe Flash Player (Google Chrome has Flash built in).\nIf you are using a mobile device or tablet\, in order to view and hear the conference\, download the ReadyTalk App from your App store.\n\nDisclaimer:\nWe cannot provide individual medical advice during this webcast. Information provided in this webcast is not intended as a substitute for your physician’s guidance and care.
URL:https://liferaftgroup.org/event/lrg-webcast-genetic-testing-and-sdhx-mutations/
CATEGORIES:Education,Events,Webcast
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2019/04/greenberg-event.jpg
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20180905T120000
DTEND;TZID=America/New_York:20180905T130000
DTSTAMP:20260504T124536
CREATED:20180827T180349Z
LAST-MODIFIED:20190319T185338Z
UID:10000007-1536148800-1536152400@liferaftgroup.org
SUMMARY:LRG Webcast: What is SDH...
DESCRIPTION:How Is It Related to Cancer\, and What Can Be Done About It?\nSDH is a protein that is based in the mitochondria. Its loss causes a major energy and metabolic crisis. Despite this\, some types of cells can ‘benefit’ from the loss of SDH and continue to grow uncontrollably and generate tumors. \nIdentifying metabolic enzymes as molecular drug targets that are uniquely essential for the survival of SDH-deficient cells is a key first step in the development of new therapies for SDH-deficient tumors. Some of these druggable enzymatic targets are being actively pursued. \nDr. Eyal Gottlieb will break down the biology of cells and discuss metabolism and growth during cancer formation. \nThis webcast is geared for patients and families with SDH-deficient GIST and other tumors. \nThere will be at 15 min Q&A at the end of his presentation. \nView the Webcast\n  \nTo submit questions that could potentially be addressed during the webcast\, please submit to Sara Rothschild at srothschild@liferaftgroup.org by September 1. \nFor some background on cancer metabolism\, review this document. \nPresenter\n\n\n\nDr. Eyal Gottlieb\nLaura and Isaac Perlmutter Chair of Cancer Research\, Faculty of Medicine\nTechnion – Israel Institute of Technology\nHaifa\, Israel \n\n\n\nTechnical Tips to Join Meeting:\n\nThis is a web only meeting\, accessed only by your internet connection. Participants are encouraged to use the web link automatically provided after registration and to use computer speakers (and/or headsets if available) to hear the audio portion of the meeting. Please log in at least ten minutes prior to the start of the webinar.\nPlease ensure you have an updated version of Adobe Flash Player (Google Chrome has Flash built in).\nIf you are using a mobile device or tablet\, in order to view and hear the conference\, download the ReadyTalk App from your App store.
URL:https://liferaftgroup.org/event/webcast-what-is-sdh/
CATEGORIES:Events,Webcast
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2018/08/feature-lrg-webcast-series-rev.jpg
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
END:VCALENDAR