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SUMMARY:ctDNA and the INSIGHT Study
DESCRIPTION:REGISTERThe Life Raft Group is partnering with Deciphera Pharmaceuticals and Dr. Jonathan Trent of the Sylvester Comprehensive Cancer Center to present “ctDNA and the INSIGHT Study” on November 10th at 2PM ET. During this virtual presentation\, Dr. Trent will explain how ctDNA works as a non-invasive method to monitor mutations and disease progression\, and how it may help personalize treatment strategies for GIST patients. \nDenisse Evans\, Sr. Director of Data Management & Research for the LRG\, will present the results and analysis of the LRG’s recent patient survey: Understanding Mutational and ctDNA Testing for patients in the U.S. She will highlight how patients currently access and understand testing\, key barriers to uptake\, and what these findings reveal about the real-world experiences of the GIST community. Denisse will also discuss how these insights can help shape future education\, advocacy\, and research efforts to ensure patients have the tools they need to make informed decisions about their care. \nA question-and-answer session will follow the presentation. \nThese webinars are for informational purposes only and should not replace professional medical advice. Always consult your healthcare provider before making any treatment or lifestyle changes. If you have questions or comments\, please reach out to rpauley@liferaftgroup.org. \nAbout Our Presenters\n \nDr. Jonathan Trent\nSylvester Comprehensive Cancer Center \nJonathan Trent\, M.D.\, Ph.D. is a board‑certified oncologist\, professor of medicine\, and Associate Director for Clinical Research at the Sylvester Comprehensive Cancer Center\, University of Miami Health System. He serves as the Director of the Bone and Soft-Tissue Sarcoma Group and leads the Sarcoma Medical Oncology program\, with a focus on gastrointestinal stromal tumor (GIST)\, chondrosarcoma\, synovial sarcoma\, and other rare sarcomas. \nDenisse Evans\, MS\nSenior Director\, Data Mgmt. & Research \nMs. Evans has a wealth of experience in clinical evaluation projects including development of protocols\, case report forms\, informed consent\, surveys\, tissue repositories\, and study initiation She is proficient in data management\, preparing research for publication\, drug development\, clinical trial protocols\, onco-pathological/genetical dissemination\, and formulating research premises. As the Senior Director of Data Management & Research\, Denisse is the principal investigator for study protocol design and strategy of Patient Reported Outcomes (PRO). She has expertise in the analysis\, reporting\, and dissemination of PRO data and present scientific work. \nShe leads a dedicated staff in both patient support and in the identification of data trends that may lead to actionable information that will help patients coping with Gastrointestinal Stromal Tumor. In addition\, she takes the lead in collaborative research initiatives\, including maintaining relationships with potential partners\, contributing ongoing data\, and supporting hypothesis generation with the goal of increasing patient survival and advancing GIST research. \nDenisse holds a Bachelor of Science degree in Biology from Rowan University\, and a Master of Science Degree in Biomedical Science from Fairleigh Dickinson University. \nThank You to Our Sponsor!
URL:https://liferaftgroup.org/event/ctdna-and-the-insight-study/
CATEGORIES:Education,Webcast
ORGANIZER;CN="Rebecca Pauley":MAILTO:rpauley@liferaftgroup.org
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DTSTART;VALUE=DATE:20241030
DTEND;VALUE=DATE:20241031
DTSTAMP:20260502T023550
CREATED:20240917T172132Z
LAST-MODIFIED:20241028T131216Z
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SUMMARY:GDOL Miami Virtual
DESCRIPTION:GDOL Miami is being held virtually with the GIST experts at Sylvester Comprehensive Cancer Center. \nREGISTERWhat is a GDOL? \nA GDOL is a GIST Day of Learning. This is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST)\, and other rare diseases\, through patient-powered research\, education and empowerment\, and global advocacy efforts. Our vision is to empower a future fueled by data\, guiding our journey toward cures for rare diseases. \nIf you have any questions\, please contact Brian Morello at bmorello@liferaftgroup.org \nClick Image for a PDF of the Agenda\n \nThank you to our Sponsors!
URL:https://liferaftgroup.org/event/gdol-miami-2/
CATEGORIES:Education,Events
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
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DTSTART;TZID=America/New_York:20231012T110000
DTEND;TZID=America/New_York:20231012T110000
DTSTAMP:20260502T023550
CREATED:20230804T192657Z
LAST-MODIFIED:20230804T192657Z
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SUMMARY:Understanding GIST & Desmoid Tumors
DESCRIPTION:The Life Raft Group is partnering with Dr. Jonathan Trent and Dr. Steven Bialick of Sylvester Comprehensive Cancer Center to present “Understanding GIST and Desmoids” for the GIST/Desmoid community on October 12th\, 2023 at 11AM ET. During this virtual presentation\, Dr. Trent and Dr. Bialick will discuss GIST and desmoid tumors to keep pace with the ever-growing body of knowledge about these disease groups\, and the development of new tools and strategies to support this patient and caregiver community. A Q&A session will follow the presentations. \nREGISTERAbout Our Presenters\nDr. Jonathan Trent\nSylvester Comprehensive Cancer Center \nJonathan C. Trent\, MD\, PhD is currently the Associate Director for Clinical Research\, the Director of the Bone and Soft-tissue Sarcoma Group at the Sylvester Comprehensive Cancer Center. Dr. Trent’s interests are in the clinical and translational research of sarcomas\, direct care of sarcoma patients\, and education about sarcoma. \n\nDr. Steven Bialick\nSylvester Comprehensive Cancer Center \nSteven Bialick\, DO\, MS is a recent graduate of the hematology/oncology fellowship program at the University of Miami/Jackson Memorial Hospital. He is a medical oncologist specializing in the care of patients with sarcoma and gastrointestinal malignancies at the Sylvester Comprehensive Cancer Center in South Florida. Dr. Bialick has a particular clinical research interest in connective tissue cancers and the role of circulating tumor DNA in solid tumor oncology. \n\nThank you to the sponsor of this webinar:
URL:https://liferaftgroup.org/event/understanding-gist-desmoid-tumors/
CATEGORIES:Events,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
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