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DTSTART;TZID=America/New_York:20200710T140000
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DTSTAMP:20260527T084100
CREATED:20200612T135558Z
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UID:10000071-1594389600-1594389600@liferaftgroup.org
SUMMARY:Virtual Life Fest 2020
DESCRIPTION:Virtual Life Fest 2020 – July 10th – July 13th\n2020 brought a global health crisis that has challenged GIST patients. We had planned this year to be in New Orleans to share valuable information about GIST Research\, to enjoy fellowship with each other\, and yes\, to enjoy the wonderful food and music. \nEven though we can’t be together physically for our biennial Life Fest celebration and we won’t be together for GIST Awareness Day\, we can unite and spread a message of hope and positive messages while raising GIST awareness across the globe. Thanks to the generosity of our sponsors\, we still have a wonderful virtual weekend planned\, with some of the same elements Life Fest always provides. \nWith the latest information being shared in both our traditional GIST 101 presentation with Dr. David Josephy\, and through several panels featuring top GIST specialists and researchers\, a program targeted to the SDH community as well as fun events including a cooking demonstration\, Virtual Life Fest will prove that even with the restrictions on gathering\, you cannot keep the GIST community from sharing their strength\, hope and experiences. \nRegisterOur theme for Virtual Life Fest\, and for GIST Awareness Day this year is #GISTHope.\nThere are many ways for you to share this hopeful message: \n\nParticipate in our Virtual Life Fest Events.\nJoin us in our Virtual Walk. Start a fundraising page to invite family and friends to sponsor you in your efforts to raise funds for GIST Research.\nVisit our LRG store to purchase items such as our #GISTHope Masks to wear on your walk.\nMake a donation.\nGo to our GIST Awareness Day (GAD) page to see how to raise awareness\, including our creative #GISTHope rock painting project\nSend your stories\, photos and messages of hope to Mary Garland\, Director of Communications: mgarland@liferaftgroup.org\n\nAll times are Eastern Daylight Time \n\n\n\n\n	Friday\, July 10th\n\n\n	2:00pm GIST 101 Presented by David Josephy (pre-recorded video)\n\n\n	4pmGIST ART Launch\n\n\n	Saturday\, July 11th\n\n\n	12:00pm GIST Research Panel:  Join GIST experts as they provide updates and answer questions on GIST research and new GIST therapies.\n\nPresenters: Roman Groisberg\, MD\, Rutgers Cancer Institute of New Jersey; Michael Heinrich\, MD\, OHSU Knight Cancer Institute; Jason Sicklick\, MD\, Moores Cancer Center\, UC of San Diego\n\n\n	2:00pm GIST Oncologist Panel: Our oncology and surgical GIST experts will share the latest trends\, insights and surgical options\, and answer questions. \n\nPresenters: Gina D’Amato\, MD\, Sylvester Comprehensive Cancer Center\, U of M; Arun Singh\, MD\, Ronald Reagan UCLA Medical Center; Jonathan Trent\, MD\, PhD\, Sylvester Comprehensive Cancer Center\, U of M; Breelyn Wilky\, MD\, UCHealth Cancer Center\, Anschutz Medical Campus\n\n\n	4:00pm Cooking Demonstration (pre-recorded video) and GIST Cookbook Launch\n\n\n	Sunday\, July 12th\n\n\n	12:00pm Virtual Walk Launch (pre-recorded videos)\n\n\n	Monday\, July 13th\n\n\n	9:00am - 5:00pmGAD and #GISTHope Messages\n\n\n	12:00pm EDTQ&A with SDH Panel of Experts\nChristopher B. Weldon\, MD\, PhD\nBoston Children’s Hospital\n  Christopher Weldon\, MD\, PhD is Assistant in Surgery\, Department of Surgery; Director\, Pediatric Surgery Critical Care Fellowship and Assistant Professor of Surgery\, Boston Children’s Hospital\, Harvard Medical School. He is Board Certified in Critical Care\, General Surgery\, and Pediatric Surgery.\n\nLee Helman\, MD\nChildren’s Hospital Los Angeles\n  Dr. Helman is a Professor of Pediatrics and Medicine\, Keck School of Medicine\, USC\, Head\, Basic and Translational Research\, Children’s Center for Cancer and Blood Diseases. His laboratory work focuses on the biology and treatment of rhabdomyosarcoma\, Ewing’s sarcoma\, osteosarcoma\, and pediatric GIST tumors. Major areas of research include the pathophysiologic consequences of IGF signaling\, identification of the molecular/biochemical determinants of the biology of sarcomas\, and the application of functional genomics to identify new treatment targets.\n\nJonathan Trent\, MD\nSylvester Comprehensive Cancer Center\n Dr. Trent’s interests are in the clinical and translational research of sarcomas\, direct care of sarcoma patients\, and education about sarcoma. The major efforts of Dr. Trent’s research focus on understanding the mechanisms of action and resistance of imatinib in GIST and other sarcomas while striving toward improved therapeutic options.\n\nAndrew Rosenberg\, MD\nSylvester Comprehensive Cancer Center\n Andrew Eric Rosenberg\, MD is the Vice Chair\, Director of Bone and Soft Tissue Pathology at the Sylvester Comprehensive Cancer Center in the University of Miami.\n\nJason Sicklick\, MD\nMoores Cancer Center\n Dr. Jason Sicklick is an NIH-funded investigator and Associate Professor of Surgery at the University of California San Diego Moores Cancer Center. He is a board-certified general surgeon and surgical oncologist specializing in the treatment of hepatobiliary diseases and sarcomas\, including gastrointestinal stromal tumors (GIST). \n\nRuth Casey\, PhD\nCambridge University Hospitals\, UK\n Dr Dr Casey has a specialist clinical interest in hereditary endocrine neoplasia and endocrine cancer. Her research has focused mainly on the role of succinate dehydrogenase gene mutations in tumorigenesis and has a strong translational focus. Her interest in succinate dehydrogenase deficient tumours has led to her collaboration with PAWS GIST.  \n\nEyal Gottlieb\, MSc\,PhD\nTechnicon – Israel Institute of Technology\nDr. Gottlieb is a Professor and Director of the Cancer Metabolomics Lab at the Technion-Israel Institute of Technology. He is an internationally renowned expert in the field of metabolomics – measuring components of metabolism in cells under different conditions.\n\n\nThere will also be other special guest speakers.\n\n\n\n\nDownload SDH Panel Experts Flyer \n \nSponsors
URL:https://liferaftgroup.org/event/virtual-life-fest/
CATEGORIES:Education,Events,Fundraising
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
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