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X-WR-CALDESC:Events for The Life Raft Group
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DTSTART;TZID=America/New_York:20210331T130000
DTEND;TZID=America/New_York:20210331T130000
DTSTAMP:20260406T162116
CREATED:20210119T153745Z
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UID:10000121-1617195600-1617195600@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION:Weekly Support Group for GIST Caregivers.\nHeld every Wednesday at 1pm ET beginning January 20\, 2021\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. Every Wednesday at 1pm ET the LRG has a weekly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform\, to come together every week as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver \nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-3/2021-03-31/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/Caregiver-Support-Group.png
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
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DTSTART;TZID=America/New_York:20210331T180000
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CREATED:20210303T125152Z
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UID:10000133-1617213600-1617213600@liferaftgroup.org
SUMMARY:'Let's Get the GIST of It' Series
DESCRIPTION:The Life Raft Group is excited to share our new initiative called“Let’s Get the GIST of It”. During this recurring online event\, patients and caregivers can participate and share their overall experiences (good or bad) of their current treatment.\n\nThe goal of this initiative is to discuss key topics that will provide patients and caregivers with insight about their current treatment.We will discuss topics like side effects\, dosages\, scans\, and support.You will also have the opportunity to interact and connect with patients like you that are taking the same drug or experiencing the same side effects.Big or small\, all input is important and we would love for you to be part of this initiative.\n\n\nIf you or a loved one is currently taking Ayvakit or is looking to learn more about it\, please register for this event.\n\n\nThe 3/31/21 meeting meeting topic will be AYVAKIT (avapritinib).\n\nDate: 03/31/2021\nTime: 6:00pm ET\n\nREGISTER
URL:https://liferaftgroup.org/event/lets-get-the-gist-of-it-series/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/03/lets-get-to-the-gist-of-it-v2.jpg
ORGANIZER;CN="Denisse Montoya":MAILTO:dmontoya@liferafdtgroup.org
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