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X-WR-CALDESC:Events for The Life Raft Group
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DTSTART;TZID=America/New_York:20210428T130000
DTEND;TZID=America/New_York:20210428T130000
DTSTAMP:20260403T173810
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SUMMARY:Virtual Caregiver Support Group
DESCRIPTION:Weekly Support Group for GIST Caregivers.\nHeld every Wednesday at 1pm ET beginning January 20\, 2021\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. Every Wednesday at 1pm ET the LRG has a weekly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform\, to come together every week as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver \nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-3/2021-04-28/
CATEGORIES:Events,Support Group
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ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
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DTSTART;TZID=America/New_York:20210429T120000
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UID:10000137-1619697600-1619701200@liferaftgroup.org
SUMMARY:Genetics of GIST
DESCRIPTION:Risks\, Management\, and What to Know for You and Your Family\nIn this webinar\, we will review what is known about the hereditary causes behind GISTs\, current genetic testing options and results\, how this information affects screening and management\, and implications for one’s family. \n\nREGISTER\n \nPresenters:\nLindsay Kipnis received her MS in Genetic Counseling from Brandeis University in 2013. After graduating she worked in oncology at Women & Infants Hospital in Rhode Island. She joined the Center for Cancer Genetics and Prevention at DFCI in 2014. Lindsay is focused on ensuring that all ovarian cancer patients receive the genetic counseling and testing that is recommended. She also sees a variety of adult patients with personal and family histories of cancer. \n\n \nBecca Vanderwall is a licensed and certified genetic counselor currently practicing at Dana-Farber Cancer Institute in the pediatric cancer genetics risk program. She previously worked in neurometabolics and mitochondrial disease at Boston Children’s Hospital. She earned her MS in Genetic Counseling and MPH in Public Health Genetics from the University of Pittsburgh in 2016. Her special interests include public health research and policy\, health disparities and equity\, hereditary brain tumor risk\, and family dynamics and communication.
URL:https://liferaftgroup.org/event/genetics-of-gist/
CATEGORIES:Events
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
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