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X-WR-CALDESC:Events for The Life Raft Group
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DTSTART:20210314T070000
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DTSTART;TZID=America/New_York:20220104T180000
DTEND;TZID=America/New_York:20220104T193000
DTSTAMP:20220323T125554Z
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UID:10000107-1641319200-1641324600@liferaftgroup.org
SUMMARY:Virtual GISTer Support Group
DESCRIPTION:The group will meet via Zoom on the first Tuesday of each month from 6:00 PM – 7:30 PM EST (NYC Time). \nThe group open to those who have not been able to participate in the past\, for one reason or another. We will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to be  to participate. \nContact Diana Nieves to join: dnieves@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gister-support-group-4/2022-01-04/
LOCATION:NJ
CATEGORIES:Events
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-SUPPORT-2021.png
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
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DTSTART;TZID=America/New_York:20220105T130000
DTEND;TZID=America/New_York:20220105T140000
DTSTAMP:20230525T182345Z
CREATED:20211230T190819Z
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UID:10000190-1641387600-1641391200@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION: A Bi-Weekly Virtual Support Group for GIST Caregivers\nHeld on the first & third Wednesdays of the month\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. LRG has a twice monthly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform to gather as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \n\nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\n\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-2022-1/2022-01-05/
LOCATION:NJ
CATEGORIES:Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/Caregiver-Support-Group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220106T120000
DTEND;TZID=America/New_York:20220106T130000
DTSTAMP:20220106T144522Z
CREATED:20211217T160325Z
LAST-MODIFIED:20220106T144522Z
UID:10000178-1641470400-1641474000@liferaftgroup.org
SUMMARY:The Value of Biomarker Testing: Case Studies
DESCRIPTION:Case Studies Across Multiple Institutions\nUnderstanding the role of mutations and biomarker testing in GIST is one of most important things that GIST patients need to learn. Knowing the driving force behind each individual’s tumors is not just important\, it is critical. In this webinar\, you will hear case study presentations from three top sarcoma institutions that demonstrate the value of biomarker testing. A Question & Answer session will follow the presentations. \nREGISTERPresenters:\nPrapassorn Thirasastr\, MD\, MSc\nPost doctorate Fellow\nSarcoma Medical Oncology Department\nThe University of Texas MD Anderson Cancer Center\, Texas \nDr. Thirasastr graduated from faculty of medicine\, Chulalongkorn University in Bangkok\, Thailand. She had trained at King Chulalongkorn Memorial Hospital\, Bangkok\, Thailand for 6 years and received board certification in both Internal Medicine and Medical Oncology. Also\, she had awarded a Higher Graduate Diploma of Clinical Sciences and Master of Sciences degree from Chulalongkorn University in 2016 and 2018\, respectively. Dr. Thirasastr had practiced as a medical oncologist in Thailand for 2 years before joining post-doctoral research program in MD Anderson Cancer Center under Dr. Neeta Somaiah\, an Associate Professor of Sarcoma Medical Oncology and Deputy Chair in Division of Cancer Medicine at University of Texas MD Anderson Cancer Center\, as her Mentor.Currently her researches focus on sarcoma\, especially liposarcoma\, and GISTs and she has engaged in both clinical and basic science research projects. \n\nSteven Bialick\, DO\nSylvester Comprehensive Cancer Center\, Miami \nSteve Bialick\, DO is a second-year hematology/oncology fellow at Jackson Memorial Hospital and the University of Miami/Sylvester Comprehensive Cancer Center in Miami\, FL.  He completed his internal medicine residency within the University of Pennsylvania Health System before working as a hematologic malignancy hospitalist at the Hospital of the University of Pennsylvania in Philadelphia\, PA.  He is now completing his oncology training with a focus on solid tumor malignancies\, specifically soft tissue and bone sarcomas.  His research interests include hereditary cancer predisposition syndromes\, circulating tumor DNA and its role in guiding targeted therapies\, and the role of DNA damage repair pathways in sarcomas. \n\nDr. Dixon Dorand\, MD\, PhD\nClinical Fellow\nVanderbilt University Medical Center \nDr. R. Dixon Dorand\, Jr.\, MD\, PhD completed his graduate studies at Case Western Reserve University in Cleveland\, OH. His research with Dr. Alex Huang\, MD\, PhD at Rainbow Babies and Children’s Hospital focused on understanding the mechanisms regulating immune therapy in adolescent and young adult cancers. Specifically\, he investigated the signaling pathways that alter gene expression involved in regulating responses to immune checkpoint therapy as well as the role of nanoparticles for drug delivery. After graduation\, he enrolled in the Physician Scientist Training Program at Vanderbilt University Medical Center where he completed his internal medicine residency training.   \nDr. Dorand is currently completing his medical oncology fellowship in the Molecular and Genetic Epidemiology of Cancer program at Vanderbilt Ingram Cancer Center (VICC). He works in the laboratory of Dr. Ben H. Park\, MD\, PhD where he uses a basic science approach to interrogate how mutations that regulate genetic machinery can be manipulated for therapeutic benefit. He also uses genetic profiling to determine which tumor mutations contribute to chemotherapy resistance in sarcomas. Clinically\, he collaborates with Dr. Elizabeth Davis\, MD & Dr. Vicki Keedy\, MD at VICC to characterize mutations in patient tumor samples in GIST and other sarcoma types that may provide new therapeutic targets. He hopes to pursue a career focused on GIST and other soft tissue & bone sarcomas once he completes his formal training. 
URL:https://liferaftgroup.org/event/biomarker-testing-case-studies/
LOCATION:NJ
CATEGORIES:Events
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
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