BEGIN:VCALENDAR VERSION:2.0 PRODID:-//The Life Raft Group - ECPv6.17.3//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-ORIGINAL-URL:https://liferaftgroup.org X-WR-CALDESC:Events for The Life Raft Group REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:America/New_York BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20210314T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20211107T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20220313T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20221106T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20230312T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20231105T060000 END:STANDARD END:VTIMEZONE BEGIN:VEVENT DTSTART;TZID=America/New_York:20220201T180000 DTEND;TZID=America/New_York:20220201T193000 DTSTAMP:20220323T125554Z CREATED:20210118T181321Z LAST-MODIFIED:20220323T125554Z UID:10000108-1643738400-1643743800@liferaftgroup.org SUMMARY:Virtual GISTer Support Group DESCRIPTION:The group will meet via Zoom on the first Tuesday of each month from 6:00 PM – 7:30 PM EST (NYC Time). \nThe group open to those who have not been able to participate in the past\, for one reason or another. We will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to be to participate. \nContact Diana Nieves to join: dnieves@liferaftgroup.org URL:https://liferaftgroup.org/event/virtual-gister-support-group-4/2022-02-01/ LOCATION:NJ CATEGORIES:Events ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-SUPPORT-2021.png ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20220202T130000 DTEND;TZID=America/New_York:20220202T140000 DTSTAMP:20230525T182345Z CREATED:20211230T190819Z LAST-MODIFIED:20230525T182345Z UID:10000191-1643806800-1643810400@liferaftgroup.org SUMMARY:Virtual Caregiver Support Group DESCRIPTION: A Bi-Weekly Virtual Support Group for GIST Caregivers\nHeld on the first & third Wednesdays of the month\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. LRG has a twice monthly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform to gather as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \n\nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\n\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey. URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-2022-1/2022-02-02/ LOCATION:NJ CATEGORIES:Events ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/Caregiver-Support-Group.jpg ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20220205T120000 DTEND;TZID=America/New_York:20220205T120000 DTSTAMP:20220120T154349Z CREATED:20220119T195805Z LAST-MODIFIED:20220120T154349Z UID:10000202-1644062400-1644062400@liferaftgroup.org SUMMARY:Let's Get to the GIST of It Series: Qinlock DESCRIPTION:The Life Raft Group is excited to share our second segment of “Let’s Get the GIST of It”. \nIn this information session\, we will be discussing Qinlock (ripretinib). During this recurring online event\, patients and caregivers can participate and share their overall experiences (good or bad) with this treatment. The goal of this initiative is to discuss key topics that will provide patients and caregivers with insight about Qinlock (ripretinib). \nWe will discuss topics like side effects\, dosages\, and support. You will also have the opportunity to interact and connect with patients/caregivers like you\, that are taking the same drug or experiencing the same side effects. \nThis information session is open to anyone who has taken\, is taking\, or will be taking Qinlock/ripretinib. We also welcome patients and caregivers who just want more information regarding this drug. Big or small\, all input is important and we would love for you to be part of this program. \nIf you or a loved one is looking to learn more about Qinlock (ripretinib)\, please register for this event using the  button below \nDate: Feb. 5th\nTime: 12pm ET \nIf you have any questions\, please contact dmontoya@liferaftgroup.org \nREGISTER URL:https://liferaftgroup.org/event/lets-get-to-the-gist-of-it-series-qinlock/ LOCATION:NJ CATEGORIES:Education,Events ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2022/01/qinlock-webinar.png ORGANIZER;CN="Denisse Montoya":MAILTO:dmontoya@liferafdtgroup.org END:VEVENT END:VCALENDAR