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X-WR-CALDESC:Events for The Life Raft Group
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DTSTART;TZID=America/New_York:20220907T130000
DTEND;TZID=America/New_York:20220907T140000
DTSTAMP:20230525T182345Z
CREATED:20211230T190819Z
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UID:10000198-1662555600-1662559200@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION: A Bi-Weekly Virtual Support Group for GIST Caregivers\nHeld on the first & third Wednesdays of the month\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. LRG has a twice monthly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform to gather as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \n\nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\n\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-2022-1/2022-09-07/
LOCATION:NJ
CATEGORIES:Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/Caregiver-Support-Group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
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DTSTART;TZID=America/New_York:20220907T180000
DTEND;TZID=America/New_York:20220907T180000
DTSTAMP:20220818T132904Z
CREATED:20220818T132904Z
LAST-MODIFIED:20220818T132904Z
UID:10000238-1662573600-1662573600@liferaftgroup.org
SUMMARY:Let's Get to the GIST of It!
DESCRIPTION:The Life Raft Group is excited host another “Let’s Get the GIST of It” session. During this recurring online event\, patients and caregivers participate and share  overall experiences (good or bad) of their current treatment. The topic of this installment is “The new and upcoming treatments in GIST.” We will be discussing  two new clinical trials –  Cogent (CGT9486) and Theseus (THE-630)\, as well as recently approved drugs like AYVAKIT (avapritinib) and QINLOCK (ripretinib). \nThe goal of this initiative is to discuss key topics that will provide patients and caregivers with insight about their current treatment\, learn more information about new clinical trials or learn more about a new drug by listening to other people’s experiences. During this event\, we will discuss topics like side effects\, dosages\, scans\, and support. You will also have the opportunity to interact and connect with patients like you who are taking the same drug or experiencing the same side effects. Big or small\, all input is important and we are excited for you to be part of this initiative. \nIf you or a loved one is currently enrolled in a Cogent (CGT9486) and Theseus (THE-630) trial or currently taking ripretinib or avapritinib and would like to learn more about these drugs or share your experiences with other GISTers\, please join this event. For more information or questions\, please contact Sahibjeet Kaur at skaur@liferaftgroup.org \nREGISTER
URL:https://liferaftgroup.org/event/lets-get-to-the-gist-of-it/
LOCATION:NJ
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/08/lets-get-the-gist-of-it.jpg
ORGANIZER;CN="Sahibjeet Kaur":MAILTO:skaur@liferaftgroup.org
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