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DTSTART;TZID=America/New_York:20221019T130000
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SUMMARY:Virtual Caregiver Support Group
DESCRIPTION: A Bi-Weekly Virtual Support Group for GIST Caregivers\nHeld on the first & third Wednesdays of the month\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. LRG has a twice monthly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform to gather as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \n\nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\n\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-2022-2/2022-10-19/
CATEGORIES:Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/Caregiver-Support-Group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
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DTSTART;TZID=America/Los_Angeles:20221022T100000
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DTSTAMP:20260405T130234
CREATED:20220930T174409Z
LAST-MODIFIED:20221003T194939Z
UID:10000246-1666432800-1666432800@liferaftgroup.org
SUMMARY:So. Cal GISTer Virtual Support Group
DESCRIPTION:This Support Group will be held at 10am Pacific Time/1pm Eastern. \nJoin us on Saturday\, October 22\, at 10:00 am PST. Make yourself comfortable at your computer\, laptop\, tablet\, etc. and participate in what will be a very helpful and informative meeting. \nThe Life Raft Group is offering a virtual California Support Group with Southern California Leader Dina Wiley\, PhD. The group will meet to talk to each other\, discuss individual GIST issues\, and get answers to questions. This will enable you to not only get some relief from the worry of GIST\, but to also help others\, as well. We are\, after all\, in the same life raft\, and we are each needed to pull together. When we do\, wonderful things happen! \nAnd here’s the best part — we will have a very special guest – Dr. Adam Burgoyne\, Moores Cancer Center\, UCSD Health. He is currently involved with Temozolomide (TMZ) In Advanced Succinate Dehydrogenase (SDH)-Mutant/Deficient Gastrointestinal Stromal Tumor (GIST) clinical trial. Dr. Burgoyne will be available to answer any questions you may have\, and explain some of the mysteries of GIST.  \nREGISTERAbout the Group Leader:\nDina Wiley – Dina is a long-time Southern California LRG Support Group Leader. Read about Dina’s GIST journey here \nAbout Our Special Guest:\nAdam Burgoyne\, MD\, PhD\nMoores Cancer Center\, UCSD Health\nDr. Burgoyne\, is a board-certified medical oncologist who specializes in diagnosing and treating primary liver cancers such as hepatocellular carcinoma (HCC). He also treats cancers of the esophagus\, gallbladder\, pancreas\, stomach\, small intestine\, colon and appendix\, as well as gastrointestinal stromal tumors (GIST). \nDr. Burgoyne uses many forms of therapy\, including traditional chemotherapy\, immunotherapy and targeted therapy\, with an emphasis on personalized medicine\, to offer the best possible patient outcomes. Dr. Burgoyne is the medical oncologist for UC San Diego Health’s multidisciplinary liver cancer clinic. The clinic offers patients highly specialized and coordinated care at one convenient location\, ensuring easy and timely access to the best cancer doctors and the most innovative treatment approaches. \nAs a physician-scientist\, Dr. Burgoyne also leads original research to improve survival rates among people with primary liver cancer and other cancers affecting the digestive system. In particular\, he is working on developing novel drugs that inhibit multiple targets within the cancer cell with a single agent. He also studies tumor genetics and the biology of gastrointestinal stromal tumors (GIST) to facilitate personalize cancer care. His work has appeared in Journal of Translational Medicine\, Molecular Cancer Therapeutics\, and Cancer\, among others. \nDr. Burgoyne completed a fellowship in hematology and oncology at UC San Diego School of Medicine\, where he was chief fellow. He also completed a residency in internal medicine at UC San Diego School of Medicine. Dr. Burgoyne earned his medical degree and doctorate from Case Western Reserve University School of Medicine in Cleveland\, Ohio. He is board-certified in internal medicine and medical oncology. \nDr. Burgoyne is a member of the American Association for Cancer Research\, the American Association for the Study of Liver Diseases\, the American Society of Hematology\, and the American Society of Clinical Oncology. He is a member of the Alpha Omega Alpha Honor Medical Society.
URL:https://liferaftgroup.org/event/so-cal-gister-virtual-support-group/
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2022/09/CA-Support-Group-10-22-22.png
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
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