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DTSTART;TZID=America/New_York:20260519T150000
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UID:10000840-1779202800-1779202800@liferaftgroup.org
SUMMARY:SDH Support Group
DESCRIPTION:We are excited to announce the launch of a dedicated Support Group for SDH-GIST patients\, created to offer a welcoming space for connection\, understanding\, and shared experience. Whether you’re newly diagnosed or have been managing SDH for years\, this group is here to support you. Together\, we will share our stories and knowledge\, discuss challenges\, celebrate progress\, and offer encouragement to one another in a safe\, respectful environment. \nWhat to Expect: \n\nRegular virtual meetings\nPeer support and open discussion\nGuest speakers and educational sessions\nOpportunities to ask questions and share your story\n\nThis group will meet the 3rd Tuesdays of the month. Space is limited as we aim to keep the support groups small to allow for sharing & discussion.  If interested in the group\, please contact Becky Owens at bowens@liferaftgroup.org. A registration link will be sent to those who express interest. You are not alone\, and we hope this group becomes a meaningful part of your life.
URL:https://liferaftgroup.org/event/sdh-support-group/2026-05-19/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2025/07/SDH-Support-Group-Event-Banner.png
ORGANIZER;CN="Becky Owens":MAILTO:bowens@liferaftgroup.org
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DTSTART;TZID=America/New_York:20260519T180000
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UID:10000734-1779213600-1779219000@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-third/2026-05-19/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
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DTSTART;TZID=America/New_York:20260521T120000
DTEND;TZID=America/New_York:20260521T120000
DTSTAMP:20260430T231652
CREATED:20260428T124406Z
LAST-MODIFIED:20260429T124352Z
UID:10001650-1779364800-1779364800@liferaftgroup.org
SUMMARY:What It Means to Join a Clinical Trial
DESCRIPTION:REGISTERHosted by The Life Raft Group\, join us on May 21 at 12 PM ET for a candid\, informative conversation about stepping into a clinical trial. Rashmi Chugh\, MD of University of Michigan Rogel Comprehensive Cancer Center will present how clinical trials work\, who they’re for\, and what you can really expect and Dirk Niggemeyer\, GIST patient\, will share his personal journey navigating two clinical trials. \nWhether you’re newly diagnosed\, exploring new treatment options\, or simply want to better understand clinical trials\, this session will help you make more informed decisions with confidence. \nThese webinars are for informational purposes only and should not replace professional medical advice. Always consult your healthcare provider before making any treatment or lifestyle changes. \nAbout Our Presenters:\n \nDr. Rashmi Chugh\nUniversity of Michigan Rogel Comprehensive Cancer Center\n \nDr. Rashmi Chugh is a Professor of Internal Medicine in the Division of Hematology/Oncology at the University of Michigan Rogel Comprehensive Cancer Center\, Associate Division Chief of Clinical Services of Hematology/Oncology\, and Sarcoma Clinical Research Team Co-Leader. Her clinical practice is focused on the care of patients with bone and soft tissue sarcoma including gastrointestinal stromal tumors.  Dr. Chugh’s research involves conducting early and late phase clinical trials of novel therapies alone or in combination with a goal to advance the care of sarcoma patients. She also is Medical Co-Director of the Michigan Adolescent and Young Adult (AYA) Oncology Program and has a particular interest in the care and research surrounding the unique challenges this population faces. \n \nDirk Niggemeyer\nPatient Advocate\n \nDirk Niggemeyer was diagnosed with GIST (KIT Exon 11) in July 2018 when he went from Engineering Manager and youth soccer coach to palliative care patient overnight. He continued working until late 2021. Dirk has participated in two medical studies: For 15 months\, he was in the control group in the Phase 3 Sutent vs Qinlock study\, and he has been participating in the IDRX-42 Phase 1b study for the last 22 months. \nThank You to Our Sponsors:
URL:https://liferaftgroup.org/event/what-it-means-to-join-a-clinical-trial/
CATEGORIES:Education,Events,Webcast
ORGANIZER;CN="Rebecca Pauley":MAILTO:rpauley@liferaftgroup.org
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