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X-WR-CALNAME:The Life Raft Group
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X-WR-CALDESC:Events for The Life Raft Group
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DTSTART;TZID=America/New_York:20261117T180000
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UID:10000740-1794938400-1794943800@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nIf you wish to attend\, please email supportgroups@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-third/2026-11-17/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261118T120000
DTEND;TZID=America/New_York:20261118T120000
DTSTAMP:20261029T154349Z
CREATED:20260804T182302Z
LAST-MODIFIED:20261029T154349Z
UID:10001668-1795003200-1795003200@liferaftgroup.org
SUMMARY:Introducing the New LRG Patient Registry
DESCRIPTION:REGISTERJoin The Life Raft Group for “Introducing the New LRG Patient Registry” on November 18th at 12:00 PM. Denisse Evans\, Senior Director of Data Management & Research\, and Ian Hill\, Data & Registry Systems Analyst\, will walk through the Registry’s new features and share how these enhancements are designed to better serve both patients and researchers in the GIST community. \nAttendees will learn how the redesigned LRG Patient Registry strengthens data collection\, improves the patient experience\, and supports research efforts aimed at advancing understanding of disease progression\, treatment outcomes\, and long-term survivorship. Whether you’re a patient\, caregiver\, researcher\, or advocate\, this webinar will offer valuable insight into how the Registry is evolving to drive meaningful progress in GIST research and care. \nThese webinars are for informational purposes only and should not replace professional medical advice. Always consult your healthcare provider before making any treatment or lifestyle changes. \nAbout Our Presenters:\n \nDenisse Evans\nSenior Director of Data Management & Research \n \nAs Senior Director of Data Management & Research at the Life Raft Group (LRG)\, Denisse Evans brings a dynamic blend of scientific expertise\, strategic leadership\, and a passion for patient advocacy to the forefront of Gastrointestinal Stromal Tumor (GIST) research. Her career has been dedicated to leveraging data-driven insights to improve patient outcomes\, empower communities\, and drive innovation in rare cancer research. \nShe specializes in designing and implementing robust study protocols\, with a focus on Patient-Reported Outcomes (PRO) and biomedical data analysis. As Principal Investigator of the Natural History Study for the largest GIST cohort globally\, she leads groundbreaking research efforts to uncover insights into disease progression\, treatment outcomes\, and long-term survivorship. She spearheaded the development of the newly rebuilt LRG Patient Registry\, guiding its redesign to better serve both patient and scientific communities and strengthening its role as a foundational resource for GIST research. In addition to managing the Registry\, she heads the organization’s Tissue Bank\, a vital resource for advancing translational research. Her leadership extends to fostering collaborations with premier medical and academic institutions\, enabling multi-institutional studies that drive impactful discoveries in the field. \n \nIan Hill\nData and Registry Systems Analyst\n \nIan Hill\, Data and Registry Systems Analyst at The Life Raft Group\, brings a career path that reflects the blending of technical skill\, analytical thinking\, and a strong desire to make a difference in people’s lives. With a Bachelor of Science in Biology from Ramapo College of New Jersey and a Master of Data Science from the same institution he built a strong foundation in understanding complex systems that naturally evolved into his pursuit of data science. In his role\, he brings together his technical training\, scientific background\, and personal values to support registry development\, clean and analyze clinical datasets\, and design reports and dashboards that make data meaningful for researchers\, clinicians\, and patients alike. He played a major part in bringing the technical aspects of the newly rebuilt LRG Patient Registry to life\, helping translate its vision into a functioning system built to serve patients and researchers alike. His ability to translate raw information into actionable insights highlights both his technical expertise and his empathy for those who rely on the data to guide treatment and care. \nThank You to Our Sponsors:
URL:https://liferaftgroup.org/event/introducing-the-new-lrg-patient-registry/
CATEGORIES:Education,Events,Webcast
ORGANIZER;CN="Rebecca Pauley":MAILTO:rpauley@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261119T180000
DTEND;TZID=America/New_York:20261119T180000
DTSTAMP:20261008T172520Z
CREATED:20260922T182858Z
LAST-MODIFIED:20261008T172520Z
UID:10001672-1795111200-1795111200@liferaftgroup.org
SUMMARY:WOLF Water of Life Fall Event
DESCRIPTION:The Life Raft Group and Dr. Matthew Lurin are pleased to present the 9th annual event\, Water of Life Fall Event\, the WOLF. Ever since the first legendary “Once in a Lifetime” event began with pours of York House Blend in the basement of Macy’s Herald Square (which sold the bottle some 70 years prior) the WOLF has been the premier whisky event in New York City\, and synonymous with an amazing evening. This year we return to Keens Steakhouse where we will enjoy a delicious meal along with 16 outstanding pours. Soon after\, our evening moves to part two of the event\, where we will pair even more drams with our own special cigars\, where we will pair even more drams with our own special cigars. As always\, all proceeds go directly to The Life Raft Group to help them in the fight against GIST\, a rare gastrointestinal cancer. \nSo be a part of history and enjoy some unicorn pours\, some mutton\, and cigars as we all Drink Whisky to Fight Cancer! \nREGISTER
URL:https://liferaftgroup.org/event/wolf-water-of-life-fall-event/
LOCATION:Keens Steakhouse\, 72 West 36th St\, New York\, 10018\, United States
CATEGORIES:Events,Fundraising
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261119T200000
DTEND;TZID=America/New_York:20261119T200000
DTSTAMP:20261008T203650Z
CREATED:20261008T203046Z
LAST-MODIFIED:20261008T203650Z
UID:10001674-1795118400-1795118400@liferaftgroup.org
SUMMARY:Virtual GIST Caregiver Support Group
DESCRIPTION:Monthly Virtual Support Group for GIST Caregivers\nHeld on the third Thursday of the month @ 8PM ET \nLRG hosts a monthly virtual support group for the caregivers. We will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling during this journey as a caregiver. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms\, concerns\, successes and trials. All information shared will be kept confidential. \nIf you wish to attend\, please email supportgroups@liferaftgroup.org for the Zoom link for the meeting. \nAbout the Group Leader:\nDolly M\, GIST Caregiver\nAs an active member of The Life Raft Group\, Dolly advocates for the needs of the caregiver community. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-gist-caregiver-support-group/2026-11-19/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2026/10/Support-Group-Thursday.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20261119T220000
DTEND;TZID=America/Los_Angeles:20261119T220000
DTSTAMP:20261022T135203Z
CREATED:20261021T194355Z
LAST-MODIFIED:20261022T135203Z
UID:10001912-1795125600-1795125600@liferaftgroup.org
SUMMARY:Virtual California Support Group
DESCRIPTION:California Patient Support Group \nZoom\, Third Thursday of the Month – 6pm PT. \nIf you wish to attend\, please email supportgroups@liferaftgroup.org for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/virtual-california-support-group/2026-11-19/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2026/10/California-Support-Group-Thursday.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
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