The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
The Impact of Clinical Trials on Treatment Options
Every Wednesday in 2024 will be dedicated to learning about the clinical trial process and to highlighting the groundbreaking clinical trials [...]
Patient of the Month – February 2024: Helbert Salas
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Simon Yeung shares his story. #thrivingtogether
What are Clinical Trials & How Do You Find Them?
Every Wednesday in 2024 will be dedicated to learning about the clinical trial process and to highlighting the groundbreaking clinical trials [...]
Patient of the Month – January 2024: Beatrice Bradford
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Simon Yeung shares his story. #thrivingtogether
New Clinical Trials Focus for the LRG in 2024
We are thrilled to announce a new initiative aimed at bringing you the latest and most relevant information about ongoing clinical [...]
Lessons in Thriving with GIST
Australian liaison Donncha Lynch didn’t know much about GIST or The Life Raft Group yet, but he was determined to learn all he could about GIST.
The LRG Impacts GIST Research
Thriving Together also means impacting GIST research for our patient community. The LRG contributes and collaborates in the research arena in many ways.
Thriving Together Holiday Campaign Update – Personal Fundraisers
This fall two GIST advocates answered the call to fundraise and rallied their 'crews' - designing and hosting incredibly successful fundraisers.