lfwebOur biennial Life Fest convention was held November 7th – 9th at the Teaneck Marriott at Glenpointe in New Jersey. It was a spectacular event filled with stories, laughter and tears shared by GISTERs, caregivers, medical professionals, pharmaceutical representatives, staff, board members, and many friends. There were over 190 people who participated throughout the weekend.

Throughout the weekend participants had an opportunity to be photographed next to an amazing display of over 130,000 origami boats that were made by the GIST community and their supporters from around the world based on a global effort to come together for a common goal and raise awareness about this disease.

Posts

  • Vicky Ossio Life Fest

Life Fest: Vicky Ossio’s Story

April 26th, 2016|Comments Off on Life Fest: Vicky Ossio’s Story

Dear friends, I would like to share a short story: My daughter Carolina was diagnosed with GIST back in January 2006, in Dallas, Texas.. She was 27 years old then. We were lucky enough [...]

  • Life Fest 2014 LRG Members in front on origami display

Life Fest 2014: A Celebration of the LRG Community

December 8th, 2014|Comments Off on Life Fest 2014: A Celebration of the LRG Community

Our biennial Life Fest convention was held November 7th – 9th at the Teaneck Marriott at Glenpointe in New Jersey. It was a spectacular event filled with stories, laughter and tears shared by GISTERs, caregivers, [...]

  • Drs. Anette Duensing and Brian Rubin

Life Fest 2014: What’s New in the Science of GIST?

December 8th, 2014|Comments Off on Life Fest 2014: What’s New in the Science of GIST?

In addition to spending time catching up with fellow patients and caregivers and attending the myriad of useful workshops featured at Life Fest 2014, participants were treated to an update of what is new in [...]

  • Life Fest 2014 Display - Raft Closeup

Wayne Patch Article Features Life Fest 2014

November 21st, 2014|Comments Off on Wayne Patch Article Features Life Fest 2014

An article in Wayne Patch, a community-specific news, information and engagement network, features Life Fest 2014, The Life Raft Group’s biennial convention which was held on November 7-9 in Teaneck, New Jersey. In the article, [...]

  • Origami Boats from Life Fest 2014

The Bergen Record Features Message of Hope from Life Fest 2014

November 21st, 2014|Comments Off on The Bergen Record Features Message of Hope from Life Fest 2014

The Bergen Record recently featured photographs of the LRG’s Life Fest Convention. Over 100,000 origami boats were made from around the globe to bring awareness to a rare form of intestinal cancer called gastrointestinal [...]

  • life fest

Life Fest 2014: An LRG Tradition

October 24th, 2014|Comments Off on Life Fest 2014: An LRG Tradition

Norman Scherzer - LRG Executive Director The Life Raft Group is proud to celebrate the 7th anniversary of our biennial Life Fest convention. At this unique event, hundreds of patients and caregivers have the [...]

Videos

  • Life Fest 2014 Side Effects Management

Life Fest 2014 Side Effects Management

January 12th, 2016|Comments Off on Life Fest 2014 Side Effects Management

Side Effects Management presented by Dr. Breelyn Wilky, Sylvester Comprehensive Cancer Center. View all of Life Fest 2014 Videos

  • Life Fest 2014

Life Fest 2014 Research Update Pt1

January 12th, 2016|Comments Off on Life Fest 2014 Research Update Pt1

LRG Research Update presented by Dr. Anette Duensing, Dr. Jonathan Fletcher and Dr. Brian Rubin. Some statements in this video refer specifically to studies being discussed. View all of the Life Fest [...]

  • Life Fest 2014

Life Fest 2014 Research Update Pt2

January 12th, 2016|Comments Off on Life Fest 2014 Research Update Pt2

LRG Research Update presented by Dr. Anette Duensing, Dr. Jonathan Fletcher and Dr. Brian Rubin. Some statements in this video refer specifically to studies being discussed. View all of the Life Fest [...]

  • Life Fest 2014 Insurance and Finance

Life Fest 2014 Insurance and Finance

January 12th, 2016|Comments Off on Life Fest 2014 Insurance and Finance

Insurance and Finance, presented by James Romano,  PSI. View all of the Life Fest 2014 videos

  • Drug Development Panel Life Fest 2014

Life Fest 2014 Drug Development Panel

August 24th, 2015|Comments Off on Life Fest 2014 Drug Development Panel

Drug Development Panel with Stephen Miller of Blueprint Medicines, Tanya Momtahen of Sanofi and Dr. Sibyl Anderson of Bayer. View all of the Life Fest 2014 videos

  • Life Fest 2014 Video - 10 Steps to Surviving GIST

Personal GIST Survival Plan: 10 Steps to Surviving GIST

July 21st, 2015|Comments Off on Personal GIST Survival Plan: 10 Steps to Surviving GIST

Norman Scherzer’s Personal GIST survival plan. Norman puts his years of experience with GIST and his pro-active advocacy attitude into a personal survival plan. View all of the Life Fest 2014 videos [...]

  • GIST Awareness Day Virtual Quilt Video

Life Fest 2014 GIST Awareness Day Virtual Quilt Video

May 22nd, 2015|Comments Off on Life Fest 2014 GIST Awareness Day Virtual Quilt Video

LRG Communications Director Erin Kristoff and LRG member Bella Rocco unveil the GIST Awareness Day Virtual Quilt Video to Life Fest attendees. The Virtual Quilt is a testament to the GIST community who [...]

  • Clinician of the Year Award to Dr. Robert Maki

Life Fest 2014 Clinician of the Year Award

May 20th, 2015|Comments Off on Life Fest 2014 Clinician of the Year Award

LRG Board Member Gary Glasser presents the Clinician of the Year Award to Dr. Robert Maki of Mt. Sinai Hospital, in recognition of his ability to straddle the research and clinical worlds [...]

  • Life Fest 2014 LRG Employee of the Year Award

Life Fest 2014 LRG Employee of the Year Award

May 19th, 2015|Comments Off on Life Fest 2014 LRG Employee of the Year Award

LRG Executive Director Norman Scherzer and Board President Jerry Cudzil present a surprise award, Life Raft Group Employee of the Year Award , to two very surprised LRG employees: LRG Director of Operations, [...]

  • Life Fest 2014 Patient Outreach Award presented to Bayer Pharmaceuticals

Life Fest 2014 Patient Outreach Award

May 19th, 2015|Comments Off on Life Fest 2014 Patient Outreach Award

LRG Board Member John Poss presents Bayer Pharmaceuticals, represented by Laura Reilly, with the Patient Outreach Award for their continued dedication to the research and development of new treatments for GIST. View [...]

  • Dr. Anette Duensing with the Jeroen Pit Science Award

Life Fest 2014 Jeroen Pit Science Award

May 19th, 2015|Comments Off on Life Fest 2014 Jeroen Pit Science Award

LRG Research Team member Dr. Brian Rubin presents fellow team member Dr. Anette Duensing with the Jeroen Pit Science Award for her dedication to finding a cure for GIST through her outside-the-box tireless [...]

Life Fest 2014 Arnie Kwart Philanthropist of the Year Award

May 19th, 2015|Comments Off on Life Fest 2014 Arnie Kwart Philanthropist of the Year Award

LRG Board President, Jerry Cudzil presents the Arnie Kwart Philanthropist of the Year Award to Brian Behrens for his incredible generosity and philanthropic efforts. View all of the Life Fest 2014 [...]

  • LRG Alan Tobes Volunteer of the Year Award presented to Dina Wiley

Life Fest 2014 Alan Tobes Volunteer of the Year Award

May 19th, 2015|Comments Off on Life Fest 2014 Alan Tobes Volunteer of the Year Award

LRG Board Member and volunteer Clinical Trials Coordinator Jim Hughes presents the Alan Tobes Volunteer of the Year Award to Dina Wiley for her tireless efforts in helping newly diagnosed GISTers obtain the [...]

  • LRG Global Award of Excellence presented to Jayne Bressington of PAWS-GIST UK

Life Fest 2014 Global Award of Excellence

May 19th, 2015|Comments Off on Life Fest 2014 Global Award of Excellence

LRG Board Member presents the Global Award of Excellence to Jayne Bressington of PAWS-GIST UK for her role in bringing about a model of support for young patients with GIST in the UK. [...]

  • LRG Humanitarian of the Year Award to Dr. Steven Nimer

Life Fest 2014 Humanitarian of the Year Award

May 19th, 2015|Comments Off on Life Fest 2014 Humanitarian of the Year Award

Breelyn Wilke presents the Life Raft Group Humanitarian of the Year Award to Dr. Steven Nimer, Director of Sylvester Comprehensive Cancer Center, University of Miami for his devotion and compassion for patients which [...]

  • Master of Ceremonies and LRG Board Member Ray Montague

Life Fest 2014 Master of Ceremonies

May 19th, 2015|Comments Off on Life Fest 2014 Master of Ceremonies

Life Fest Master of Ceremonies and LRG Board Member Ray Montague shares his story before kicking off the evening’s award ceremony. View all the Life Fest 2014 videos [...]

  • Life Fest 2014 Welcome

Life Fest 2014 Welcome

May 19th, 2015|Comments Off on Life Fest 2014 Welcome

LRG Board President Jerry Cudzil welcomes everyone to Life Fest 2014 View all the Life Fest 2014 videos

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