The Life Raft Group is excited to cast a new lifeline to increase the quality of life and survival rates of Pediatric and SDH-Deficient GIST patients worldwide through the establishment of a collaborative research [...]
Although breakthroughs in cancer treatment have contributed to longer survival rates, the reality is that sometimes treatments stop working, and a cure or remission is no longer possible. Referred to as advanced, terminal. or [...]
Patient-provided, patient-focused data from the Patient Registry has been a core component of the LRG’s research model. Out of the foundation of real world data, we conducted a Side Effects Survey in the early [...]
Special Edition Life Fest 2018 Bulletin This year’s Life Fest conference was held July 13th–15th at the Downtown Miami Hilton in Florida. As we look back on the event and GIST Awareness Day, [...]
Our first ever GIST DO IT Walk took place on the morning of July 15, 2018 at Margaret Pace Park in Miami, Florida. Patients, caregivers, doctors, friends, families, and virtual participants walked to raise [...]
The Life Raft Group was proud to celebrate the 9th anniversary of our biennial Life Fest conference. At this unique event, patients and caregivers have the opportunity to gather for a weekend of camaraderie [...]
Piga Fernández, Director of Fundación GIST Chile, Global Relations Consultant for the LRG On Saturday August 11, in Fundación GIST Chile we celebrated our Fourth Anniversary and the end of the GIST [...]
Dina Wiley, SoCal Group Leader On August 11, 2018, a group of GISTers in Southern California gathered informally to share knowledge, resources, and personal stories about their journeys with this rare disease. [...]
The LRG is collaborating with the Biden Cancer Initiative to promote the Biden Cancer Community Summit which will be held on September 21st, 2018, in Washington, D.C. Vice President Joe Biden and Dr. Jill [...]
So, I’ve been told that I have GIST! Life changes suddenly and profoundly when you receive a cancer diagnosis. It’s normal to experience a state of shock, but there is a practical need to [...]
