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DTSTART;TZID=America/New_York:20190909T120000
DTEND;TZID=America/New_York:20190909T130000
DTSTAMP:20260504T233020
CREATED:20190816T164240Z
LAST-MODIFIED:20190911T172010Z
UID:10000040-1568030400-1568034000@liferaftgroup.org
SUMMARY:LRG Webcast Series: Medicare 101
DESCRIPTION:Medicare 101: An Overview of the A\, B\, C\, and Ds of Medicare\n\nThe A B C’s of Medicare: Everything you need to know\nWhat is Medicare\, am I eligible and how do I enroll?\nWhat does Medicare cover?\nHow much does it cost?\nWhich path should I choose – Medigap Supplement Insurance or Medicare Advantage Plan?\nHow about Prescription Drug coverage?\nFinancial Assistance Programs to help with Medicare costs\n\nRECAP HERE\n\nThere will be a 15 minute Q & A at the end of the presentation. \nAbout the Presenter:\nKathy Sarmiento has been working for the Alliance for Aging for fifteen years.  The Alliance for Aging is the non-profit Area Agency on Aging for Miami-Dade and Monroe Counties in Florida. In her role as the SHINE Liaison\, Kathy manages the all aspects of the free SHINE Medicare counseling program. Kathy also manages the Benefits Enrollment Center at the Alliance for Aging. The Benefits Enrollment Center is a grant from the National Council on Aging to provide five core benefits to financially needy Medicare beneficiaries. Those five core benefits are Medicaid\, food assistance\, assistance paying for Medicare\, Prescription Drug assistance and assistance paying the light bill. \n\n\nTechnical Tips to Join Meeting:\n\nThis is a web-only meeting\, accessed only by your internet connection. Participants are encouraged to use the web link automatically provided after registration and to use computer speakers (and/or headsets if available) to hear the audio portion of the meeting. Please log in at least ten minutes prior to the start of the webinar.\nPlease ensure you have an updated version of Adobe Flash Player (Google Chrome has Flash built-in).\nIf you are using a mobile device or tablet\, in order to view and hear the conference\, download the ReadyTalk App from your App store.\n\n\nDisclaimer:\nWe cannot provide individual medical advice during this webcast. Information provided in this webcast is not intended as a substitute for your physician’s guidance and care.
URL:https://liferaftgroup.org/event/lrg-webcast-series-medicare-101/
CATEGORIES:Webcast
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2019/08/sarmiento-medicare-webcast.jpg
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190808T140000
DTEND;TZID=America/New_York:20190808T150000
DTSTAMP:20260504T233020
CREATED:20190711T153122Z
LAST-MODIFIED:20190814T174529Z
UID:10000035-1565272800-1565276400@liferaftgroup.org
SUMMARY:LRG Webcast Series: When to Consider Surgery
DESCRIPTION:This webcast will address the issues surrounding the decision to have an operation. Most GIST patients will see a surgeon at some point during their treatment. The decision to consider surgical options depends on a number of factors such as tumor location\, tumor size\, tumor number\, response to drug therapy\, and risk of recurrence. \nDr. Jason Sicklick from Moores Cancer Center at the University of California San Diego will discuss situations when surgical management may be appropriate for managing localized\, regionally advanced and metastatic GIST. \n\nListen To The Webcast\n\nThere will be a 15 minute Q & A at the end of the presentation.\n \nAbout the Presenter:\nJason K. Sicklick\, MD\, FACS\, is an Associate Professor of Surgery\, Division of Surgical Oncology; and Co-Director\, Biorepository and Tissue Technology Shared Resource\, Moores Cancer Center at the University of California\, San Diego\, UC San Diego Health Sciences. \n  \n  \n  \n\nTechnical Tips to Join Meeting:\n\nThis is a web-only meeting\, accessed only by your internet connection. Participants are encouraged to use the web link automatically provided after registration and to use computer speakers (and/or headsets if available) to hear the audio portion of the meeting. Please log in at least ten minutes prior to the start of the webinar.\nPlease ensure you have an updated version of Adobe Flash Player (Google Chrome has Flash built-in).\nIf you are using a mobile device or tablet\, in order to view and hear the conference\, download the ReadyTalk App from your App store.\n\n\nDisclaimer:\nWe cannot provide individual medical advice during this webcast. Information provided in this webcast is not intended as a substitute for your physician’s guidance and care.
URL:https://liferaftgroup.org/event/lrg-webcast-series-when-to-consider-surgery/
CATEGORIES:Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2019/07/sicklick-surgery-webcast.jpg
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190618T120000
DTEND;TZID=America/New_York:20190618T130000
DTSTAMP:20260504T233020
CREATED:20190605T174046Z
LAST-MODIFIED:20190814T174912Z
UID:10000028-1560859200-1560862800@liferaftgroup.org
SUMMARY:Symptom and Side Effect Management
DESCRIPTION:Listen to the Webcast\n \nGIST and its treatment can cause a variety of symptoms. Adequate management of symptoms can improve a patient’s quality of life. Proper management can also allow the patient to remain on treatment without a decrease in dosage\, interruption of treatment\, or even the discontinuation of treatment. Staying on treatment as prescribed gives patients the best chance of a good outcome and in some cases has been shown to improve survival rates. \nIn this webcast\, Dr. Lori Williams\, Associate Professor in the Department of Symptom Research at MD Anderson Cancer Center\, will review common symptoms associated with GIST and some of its treatments. She will present methods patients can use to self-manage symptoms as well as how to discuss and when to report symptoms to health care providers. \nPete Knox\, LRG Senior Director of Research\, will also share an update on our interactive side effects management platform\, SideEQ. This platform is a great tool to allow patients to optimize their overall health by learning and sharing tips with others on how to manage side effects. To learn more\, visit MySideEQ.org \nThere will be a 15 minute Q & A at the end of the presentation. \nAbout the Presenters:\nDr. Lori Williams is an Associate Professor in the Department of Symptom Research at The University of Texas MD Anderson Cancer Center and an Advanced Oncology Certified Nurse. She has worked in oncology nursing for more than 35 years. She is a member of the executive board of the Patient Advocate and National Patient Advocate Foundations and a secretary-treasurer of the Board of the Oncology Nursing Certification Corporation. Her current work at MD Anderson involves the study of symptoms of cancer and cancer treatment. She is currently working with leadership at MD Anderson to institute routine clinical symptom monitoring for all patients. \nAs Senior Director of Research\, Pete Knox is a key member of the Real World Evidence Team\, utilizing his analytic skills to provide strategic oversight of the Life Raft Group’s research and data platforms. In this role\, he identifies and develops potential collaborations with institutions and organizations that utilize data to advance research\, with the goal of improving overall survival and quality of life for GIST patients. \n\nTechnical Tips to Join Meeting:\n\nThis is a web only meeting\, accessed only by your internet connection. Participants are encouraged to use the web link automatically provided after registration and to use computer speakers (and/or headsets if available) to hear the audio portion of the meeting. Please log in at least ten minutes prior to the start of the webinar.\nPlease ensure you have an updated version of Adobe Flash Player (Google Chrome has Flash built in).\nIf you are using a mobile device or tablet\, in order to view and hear the conference\, download the ReadyTalk App from your App store.\n\n\nDisclaimer:\nWe cannot provide individual medical advice during this webcast. Information provided in this webcast is not intended as a substitute for your physician’s guidance and care.
URL:https://liferaftgroup.org/event/symptom-and-side-effect-management/
CATEGORIES:Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2019/06/williams.jpg
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190508T130000
DTEND;TZID=America/New_York:20190508T130000
DTSTAMP:20260504T233020
CREATED:20190423T160916Z
LAST-MODIFIED:20190423T161403Z
UID:10000004-1557320400-1557320400@liferaftgroup.org
SUMMARY:Ask the Experts LIVE
DESCRIPTION:Want to know more about GIST?\nDo you have some burning questions to ask GIST experts?\n\nMembers of the LRG GIST Global Expert Surveillance Team\nwill be at the LRG offices on May 8th at 1:00 pm ET for an\nAsk the Experts LIVE event to be broadcast on YouTube Live.\n\n\n\n \nDr. Gary Schwartz\nColumbia University Irving Medical Center \n\nDr. Jason Sicklick\nMoores Cancer Center\, University of California\, San Diego\n\n\nDr. Jonathan Trent\nSylvester Comprehensive Cancer Center \n\nRegister\n\n\n\n\nWe welcome you to submit your questions ahead of time.\nQuestions can be emailed to Sara Rothschild at srothschild@liferaftgroup.org.\nViewers can also ask questions live during the event.\n\n\nDisclaimer:\nWe cannot provide individual medical advice during this live event. Information provided is not intended as a substitute for your physician’s guidance and care.
URL:https://liferaftgroup.org/event/ask-the-experts-live/
LOCATION:You Tube Live
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2019/04/ask-the-experts-live-eventpg.jpg
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190503T130000
DTEND;TZID=America/New_York:20190503T140000
DTSTAMP:20260504T233020
CREATED:20190418T143423Z
LAST-MODIFIED:20190507T155606Z
UID:10000019-1556888400-1556892000@liferaftgroup.org
SUMMARY:LRG Webcast: Genetic Testing and SDHx Mutations
DESCRIPTION:Genetic Testing and SDHx Mutations:\nWhat do they have to do with PGL/GIST/Pheos?\nLISTEN TO WEBCAST\n\nThis webcast will highlight how SDHx mutations impact risks for paraganglioma\, pheochromocytomas\, and GIST. We’ll discuss why genetic testing is helpful for any diagnosis of GIST\, paraganglioma or pheochromocytoma\, and what the SDHx genes have to do with tumor risk. We’ll discuss what types of tumors are associated with mutations in the SDHx genes\, and how different SDHx genes (SDHA\, SDHB\, SDHC\, SDHD\, SDHAF2) have different tumor and location risks. This webcast will highlight recommendations for screening and current research initiatives for SDHx and paragangliomas.\n\nAbout the Presenter:\nSamantha Greenberg is a board-certified genetic counselor who oversees the SDHx clinic and specializes in paraganglioma research at Huntsman Cancer Institute. She graduated with a Master’s Degree in Human Genetics and a Master’s of Public Health from the University of Michigan\, and a Bachelor’s Degree in neuroscience from the same university. Prior to her graduate training\, she taught 7th grade science in Tulsa\, Oklahoma\, through Teach for America. At Huntsman\, Samantha also continues public health genomics work with the Department of Health focused on rural clinician education and programming. She has worked to expand cancer genetics’ role in genitourinary cancers\, and oversees the VHL Clinical Care Center.\n\nTechnical Tips to Join Meeting:\n\nThis is a web only meeting\, accessed only by your internet connection. Participants are encouraged to use the web link automatically provided after registration and to use computer speakers (and/or headsets if available) to hear the audio portion of the meeting. Please log in at least ten minutes prior to the start of the webinar.\nPlease ensure you have an updated version of Adobe Flash Player (Google Chrome has Flash built in).\nIf you are using a mobile device or tablet\, in order to view and hear the conference\, download the ReadyTalk App from your App store.\n\nDisclaimer:\nWe cannot provide individual medical advice during this webcast. Information provided in this webcast is not intended as a substitute for your physician’s guidance and care.
URL:https://liferaftgroup.org/event/lrg-webcast-genetic-testing-and-sdhx-mutations/
CATEGORIES:Education,Events,Webcast
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2019/04/greenberg-event.jpg
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190313T120000
DTEND;TZID=America/New_York:20190313T130000
DTSTAMP:20260504T233020
CREATED:20190306T165005Z
LAST-MODIFIED:20190603T145758Z
UID:10000014-1552478400-1552482000@liferaftgroup.org
SUMMARY:LRG Webcast: The Biology of GIST
DESCRIPTION:What Every Patient Needs to Know\nWondering what in the world Gastrointestinal Stromal Tumor (GIST) is? \nJoin longtime friend of the Life Raft Group and LRG Science Team member\, Dr. David Josephy\, as he presents the basics of cell biology in cancer\, focusing on GIST. \nPresented in an easy-to-understand way\, Dr. Josephy unravels the mystery behind the differences between sarcomas and carcinomas; protein expression and the role of immunohistochemistry in diagnosis; the significance of mutations in the KIT and PDGFRA genes and the mechanism of action of tyrosine kinase inhibitor drugs. \nSound complicated? Dr. Josephy’s approachable style will decode the terminology and concepts for you\, whether you are newly diagnosed or are a long-term survivor. \nThere will be at 15 min Q&A at the end of his presentation. \n\nListen to the Webcast\n\nAbout the Presenter:\nDavid Josephy is a Professor of Molecular and Cellular Biology at the University of Guelph\, where he has taught for more than 35 years. He has been President of GIST Sarcoma Life Raft Group Canada (LRGC) since its inception in 2008. \nIn 2010\, David spent a sabbatical term working in the laboratory of Dr. Jonathan Fletcher\, a leading GIST researcher at Brigham and Women’s Hospital in Boston. \nDavid is a member of the Science Team of The Life Raft Group (USA) and collaborates with GIST patient support groups around the world. His research interests are in the field of Molecular Toxicology. He is particularly interested in the scientific basis for development of new small-molecule drugs for GIST. \n\n\nTechnical Tips to Join Meeting:\n\nThis is a web only meeting\, accessed only by your internet connection. Participants are encouraged to use the web link automatically provided after registration and to use computer speakers (and/or headsets if available) to hear the audio portion of the meeting. Please log in at least ten minutes prior to the start of the webinar.\nPlease ensure you have an updated version of Adobe Flash Player (Google Chrome has Flash built in).\nIf you are using a mobile device or tablet\, in order to view and hear the conference\, download the ReadyTalk App from your App store.\n\n\nDisclaimer:\nWe cannot provide individual medical advice during this webcast. Information provided in this webcast is not intended as a substitute for your physician’s guidance and care.
URL:https://liferaftgroup.org/event/lrg-webcast-the-biology-of-gist/
CATEGORIES:Education,Events,Webcast
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2018/08/feature-lrg-webcast-series-rev.jpg
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20180905T120000
DTEND;TZID=America/New_York:20180905T130000
DTSTAMP:20260504T233020
CREATED:20180827T180349Z
LAST-MODIFIED:20190319T185338Z
UID:10000007-1536148800-1536152400@liferaftgroup.org
SUMMARY:LRG Webcast: What is SDH...
DESCRIPTION:How Is It Related to Cancer\, and What Can Be Done About It?\nSDH is a protein that is based in the mitochondria. Its loss causes a major energy and metabolic crisis. Despite this\, some types of cells can ‘benefit’ from the loss of SDH and continue to grow uncontrollably and generate tumors. \nIdentifying metabolic enzymes as molecular drug targets that are uniquely essential for the survival of SDH-deficient cells is a key first step in the development of new therapies for SDH-deficient tumors. Some of these druggable enzymatic targets are being actively pursued. \nDr. Eyal Gottlieb will break down the biology of cells and discuss metabolism and growth during cancer formation. \nThis webcast is geared for patients and families with SDH-deficient GIST and other tumors. \nThere will be at 15 min Q&A at the end of his presentation. \nView the Webcast\n  \nTo submit questions that could potentially be addressed during the webcast\, please submit to Sara Rothschild at srothschild@liferaftgroup.org by September 1. \nFor some background on cancer metabolism\, review this document. \nPresenter\n\n\n\nDr. Eyal Gottlieb\nLaura and Isaac Perlmutter Chair of Cancer Research\, Faculty of Medicine\nTechnion – Israel Institute of Technology\nHaifa\, Israel \n\n\n\nTechnical Tips to Join Meeting:\n\nThis is a web only meeting\, accessed only by your internet connection. Participants are encouraged to use the web link automatically provided after registration and to use computer speakers (and/or headsets if available) to hear the audio portion of the meeting. Please log in at least ten minutes prior to the start of the webinar.\nPlease ensure you have an updated version of Adobe Flash Player (Google Chrome has Flash built in).\nIf you are using a mobile device or tablet\, in order to view and hear the conference\, download the ReadyTalk App from your App store.
URL:https://liferaftgroup.org/event/webcast-what-is-sdh/
CATEGORIES:Events,Webcast
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2018/08/feature-lrg-webcast-series-rev.jpg
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
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