The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
Thriving Together Holiday Campaign Update – Personal Fundraisers
This fall two GIST advocates answered the call to fundraise and rallied their 'crews' - designing and hosting incredibly successful fundraisers.
Annual Report 2022
In 2022, our theme, “It’s Time to Tell the Stories,” marked a significant milestone as we celebrated 20 years of non-profit service. See our 2022 Annual Report.
GIST Updates from CTOS
During this virtual presentation, Dr. Loong discussed scientific updates relevant to GIST patients that were exhibited at the Connective Tissue Oncology Society (CTOS) conference. A Q&A segment followed Dr. Loong’s presentation.
Night to Fight Cancer 2023 Photo Gallery
Our 20th Annual Night to Fight Cancer (NTFC) fundraiser was held at Midtown Loft & Terrace in NYC on October 19, 2023. View the photo gallery here.
Cooking to Fight Cancer 2023 Photo Gallery
The Cooking to Fight Cancer fundraiser, created by Board Member and GIST Mentor John Abrams was held at Uncorked Kitchen in Aurora, Colorado on Saturday, October 28th.
Know the GIST – Join the Battle with this Birthday Fundraiser!
GIST Mentor David Wolfe is celebrating his birthday this year by holding a fundraiser. Join the battle to know the GIST and raise funds towards GIST research.
What’s Cooking at the “Cooking to Fight Cancer” FUNdraiser
John Abrams' Cooking to Fight Cancer Culinary FUNdraising event is only one month away! Read about the host restaurant, scan the menu, and register to join John today.
Summary of Phase 3 INTRIGUE Trial Published
This summary article helps explain the results of Deciphera's Phase 3 INTRIGUE trial as published in Future Medicine, authored by Marina Symcox & Robin L Jones.