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25 02, 2021

Heroes of Rare Disease: The 2021 Rare Impact Awards

By |2021-02-25T14:45:18-05:00February 25th, 2021|News, Research|

Dr. Jason Sicklick, Blueprint Medicines Among Honorees Released 2/23/21 by NORD The National Organization for Rare Disorders (NORD®) announced this year’s Rare Impact Award honorees. These outstanding individuals, organizations and industry innovators will be [...]

10 12, 2020

CTOS 2020 Virtual Session – Key Highlights

By |2020-12-10T21:48:53-05:00December 10th, 2020|Conferences, News|

CTOS 2020 was conducted virtually from November 18th through the 21st, given the nature of our current environment, much of the content of the conference centered on COVID-19 and its impact on cancer patients, but there were a number of sessions and presentations and posters devoted to GIST as well.

31 08, 2020

Virtual Life Fest 2020: SDH Panel Summary

By |2020-09-09T14:20:33-04:00August 31st, 2020|Events, News, SDH-Deficient GIST|

Over fifty participants attended a virtual meeting of SDH Experts in honor of GIST Awareness Day, July 13th, during Virtual Life Fest 2020. Questions were presented to the panel which included One of the first questions asked was “what specifically are your most challenging research hurdles and how can we, as patients and patient advocates from around the world help move research forward?”

28 02, 2020

Passion Translates to Advocacy Across the Globe

By |2020-03-09T11:56:59-04:00February 28th, 2020|Advocacy, News, Newsletter|

When facing a diagnosis of cancer, self-advocacy becomes an important survival skill for patients and caregivers. These stories illustrate what an ordinary person can accomplish due to extraordinary circumstances and how they affected change for so many people with GIST.

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