Search results for: Jason Sicklick

14 07, 2020

RARE Partnership in Advocacy, Funding, and Research for Gastrointestinal Stromal Tumor

By |2021-01-13T11:53:21-05:00July 14th, 2020|Advocacy, News, Research, SDH-Deficient GIST|

Partnerships and collaborations are critical to the progress of research in rare diseases. GIST specialist & Pediatric & SDH-Deficient GIST Consortium member, Dr. Jason Sicklick, and LRG member, Debra Melikian, are working together find a cure for succinate dehydrogenase-deficient gastrointestinal stromal tumors (SDH-deficient GIST), a hereditary rare cancer syndrome which claimed the lives of Debra’s husband and her son Merak.

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4 02, 2020

Patient Advocate’s Story Unfolds in RARE Revolution Magazine

By |2020-02-04T08:53:11-05:00February 4th, 2020|Advocacy, News, SDH-Deficient GIST|

Deb Melikian, patient advocate, and Dr. Jason Sicklick, GIST expert & researcher, share the story of their unique partnership which began at an LRG GIST Day of Learning in the rare partners issue of RARE Revolution Magazine.

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16 09, 2019

LRG Webcast Series: Updates on the Temozolomide Trial

By |2020-07-09T17:44:13-04:00September 16th, 2019|Clinical Trials, SDH-Deficient GIST, Webcast|

Dr. Jason Sicklick of Moores Cancer Center at the University of California San Diego talks about the Phase II study of Temozolomide (TMZ) in advanced SDH-mutant/deficient GIST, a new study available to patients with SDH-deficient GIST.

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30 08, 2019

New Horizons – Pediatric & SDH-Deficient GIST Consortium Update: A Review with Experts & Advocates

By |2019-08-30T10:37:28-04:00August 30th, 2019|Events, Global, Video|

A Pediatric & SDH-Deficient GIST Consortium Update: A Review with Experts & Advocates presented by Jayne Bressington, Becky Owens, and Dr. Jason Sicklick at New Horizons 2019 in Wayne, NJ.

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9 01, 2023

LRG Medical Advisory Board Issues Statement on the Value of Telemedicine

By |2023-01-09T07:35:05-05:00January 9th, 2023|Advocacy, News, Patient Support|

The LRG Medical Advisory Board issued a statement in response to a NEJM article on telemedicine with the hope that other organizations & physicians will follow suit, advocating for treatment ease & equity.

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21 12, 2022

GDOL GIST Days of Learning: Opportunities to Grow

By |2022-12-30T11:39:26-05:00December 21st, 2022|GDOL, News, Newsletter|

Our most recent GIST Days of Learning (GDOLs) were in-person again! Deputy Director, Laura Occhiuzzi and Senior Director of Outreach & Engagement Diana Nieves traveled to San Diego and Miami to meet with GIST experts and members of our community.

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The Life Raft Group
155 US Highway 46, Suite 202
Wayne, NJ 07470 USA

Phone 973-837-9092
Contact us by email

The Life Raft Group is a 501 (c)(3) non-profit organization (tax id: 82-0547746) providing support through information, education, and innovative research to patients with a rare cancer called GIST (Gastrointestinal Stromal Tumor). View our 990 Form here

The information provided on the LRG site is designed to support, not to replace, the relationship that exists between a patient/site visitor and his/her physician. Read our Privacy Policy

 

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The LRG website is dedicated in perpetuity to the memory of Mary S. Golnik.

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