Virtual Life Fest 2020
2020 Brought a Global Health Crisis That Has Challenged GIST Patients We had planned this year to be in New Orleans to share valuable information about GIST Research, to enjoy fellowship with [...]
18
09, 2018
13
12, 2022
It’s Time to Tell The Stories: Our Good News – Research
Our Good News Holiday Campaign is the culmination of our year of "Time to Tell the Stories 2022." In this series, we celebrate the connections, the celebrations, the events and milestones that we’ve been privileged to be a part of this year. Research is this week's focus.
9
12, 2022
It’s Time to Tell The Stories: Our Good News – Donate Today
Our Good News Holiday Campaign is the culmination of our year of "Time to Tell the Stories 2022." Your donations help us create events to educate and empower our LRG community. Exec Director Sara Rothschild shares her appeal.
27
05, 2022
Join The Life Raft Group 20/20 Challenge!
As part of our 2022 “It’s Time to Tell the Stories” theme and as the LRG celebrates 20 years as a non-profit, we are committed to raising $20,000 by Life Fest New Orleans (July 29-31st) with this 20-20 Challenge.
31
03, 2022
LRG Executive Director Retires, New Executive Director Appointed
Executive Director & Founder Norman J. Scherzer announced his retirement today after 20+ years of leading the Life Raft Group; former VP of Program Services Sara Rothschild has been appointed to Executive Director position supported by Deputy Executive Director Laura Occhiuzzi, and our experienced LRG staff.
26
08, 2021
New Studies Published on SDH Models and GIST Research
Two new studies were published in July and August 2021 focusing on SDH-deficient tumor models and how location can affect GIST tumor profiles and drug sensitivity.
29
06, 2021
Rare Diagnosis Fosters a Passion for Biomarker Testing & Self-Advocacy
GISTer Bill Borwegan shares his inspiring GIST journey illustrating the importance of biomarker/ mutational testing and self-advocacy as a rare disease patient.
5
05, 2021
Annual Report 2020
Our theme for 2020 was Hope. 2020 presented a challenge to us all, but most especially to our patients and caregivers who are seeking to survive this rare cancer. In 2020, The Life Raft Group needed to provide a lifeline to our community, and to offer them hope in the form of increased support as we navigate the challenges of living in a COVID-19 world. #GISTHope
29
04, 2021
NIH Pediatric & Wildtype GIST Clinic 2021 Applications Are Open!
The LRG will be collaborating with the NIH again in 2021 to hold the Virtual GIST Tumor Board in place of the NIH's Pediatric & Wildtype GIST Clinic normally held in the DC area. Applications to have cases reviewed are now open.
16
12, 2020
Points of Light for 2020
Despite the challenges of Covid, the LRG has quickly developed new ways of working together virtually. We have kept afloat and served our community well during this dark year. These points of light show just how far we've come this year.
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