The Life Raft Group Data Management & Research and Communications Team attended remotely to gain knowledge of current research in GIST and to track breaking news and social media networking. In this post, we present commentary on several presentations and posters.
Join the LRG team, renowned GIST experts, and fellow GISTers & family at Life Fest, July 29th-31st, in New Orleans, LA, and learn more about GIST in either of these two sessions: General or SDH.
Two new studies were published in July and August 2021 focusing on SDH-deficient tumor models and how location can affect GIST tumor profiles and drug sensitivity.
The Life Raft Group celebrated GIST Awareness Day 2021 by holding an virtual, interactive Q&A session for SDH-deficient GIST patients with leading experts in the field.
GISTer Bill Borwegan shares his inspiring GIST journey illustrating the importance of biomarker/ mutational testing and self-advocacy as a rare disease patient.
It's Time! Biomarker testing leads to an accurate diagnosis, avoiding the expense of unnecessary, expensive treatments. Biomarker testing leads to an accurate diagnosis, avoiding the expense of unnecessary, expensive treatments.
It's #TimeToGetTested. Understanding the role of mutations and biomarker testing is one of most important things patients must learn. It's time to bring together our physician community to raise their voices! In this post, we present out Biomarker Declaration for GIST pertaining to testing.
Our theme for 2020 was Hope. 2020 presented a challenge to us all, but most especially to our patients and caregivers who are seeking to survive this rare cancer. In 2020, The Life Raft Group needed to provide a lifeline to our community, and to offer them hope in the form of increased support as we navigate the challenges of living in a COVID-19 world. #GISTHope
The LRG will be collaborating with the NIH again in 2021 to hold the Virtual GIST Tumor Board in place of the NIH's Pediatric & Wildtype GIST Clinic normally held in the DC area. Applications to have cases reviewed are now open.
June 28th Awards Ceremony registration: https://livingrare.org/rare-impact-awards/ Dr. Jason Sicklick, Blueprint Medicines Among Honorees Released 2/23/21 by NORD The National Organization for Rare Disorders (NORD®) announced this year’s Rare Impact Award honorees. These outstanding [...]
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