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The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.

Real World Evidence In Action

Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.

RECENT LRG DATA

0
Patients in LRG Registry
0%
of Patient Registry members know their mutation
0
Total # of Tissue
0%
of LRG members know their Risk of Recurrence

Update your GIST Patient Registry Information.

Join The Life Raft Group.

Available GIST clinical trials.

Search our database of GIST Specialists.

Dr. Monica Anderson

Dr. Monica Anderson

Diagnosed in 2012 with Adult GIST.

Marc Wasserman

Marc Wasserman

Diagnosed in 2006 with Adult GIST.

Bella Rocco

Bella Rocco

Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.

HELP US SAVE LIVES

The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.

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Fueling GIST Research – Our Community in Action!

By |May 16th, 2023|

Accelerating GIST research is an important part of what we do at the LRG and we're asking you to join us this spring to raise funds towards GIST research. Read the ways you can be a part of Fueling GIST Research!

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Fueling GIST Research – Our Community in Action!

By |May 16th, 2023|

Diana Nieves chatted with a group of fundraisers from our community - Jason DeLorenzo, Chelsea Madia and Dave Perry - who have combined GIST advocacy with a personal passion in their lives to raise funds for #GISTresearch.

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NCCN GIST Guidelines 2023 – What You Need to Know as a GIST Patient

By |April 19th, 2023|

NCCN recently updated the clinical practice guidelines in oncology for medical professionals for several types of cancer including GIST. These guidelines are a set of evidence-based recommendations for the diagnosis, treatment, and management of various types of cancer and define the recommendations for management, care, and treatment of all cancers in the US. What do you need to know?

Keep up with the latest news, events, and opportunities to help.

To contact The Life Raft Group, please call 973-837-9092

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