Search results for: Virtual Tumor Board

13 12, 2022

It’s Time to Tell The Stories: Our Good News – Research

By |2022-12-13T11:30:37-05:00December 13th, 2022|Fundraising, News, Patient Support, Research|

Our Good News Holiday Campaign is the culmination of our year of "Time to Tell the Stories 2022." In this series, we celebrate the connections, the celebrations, the events and milestones that we’ve been privileged to be a part of this year. Research is this week's focus.

9 12, 2022

It’s Time to Tell The Stories: Our Good News – Donate Today

By |2022-12-09T16:54:25-05:00December 9th, 2022|Fundraising, News, Patient Support|

Our Good News Holiday Campaign is the culmination of our year of "Time to Tell the Stories 2022." Your donations help us create events to educate and empower our LRG community. Exec Director Sara Rothschild shares her appeal.

31 03, 2022

LRG Executive Director Retires, New Executive Director Appointed

By |2022-03-31T08:56:18-04:00March 31st, 2022|News|

Executive Director & Founder Norman J. Scherzer announced his retirement today after 20+ years of leading the Life Raft Group; former VP of Program Services Sara Rothschild has been appointed to Executive Director position supported by Deputy Executive Director Laura Occhiuzzi, and our experienced LRG staff.

29 06, 2021

Rare Diagnosis Fosters a Passion for Biomarker Testing & Self-Advocacy

By |2021-06-29T11:57:41-04:00June 29th, 2021|Member Stories, News, Newsletter|

GISTer Bill Borwegan shares his inspiring GIST journey illustrating the importance of biomarker/ mutational testing and self-advocacy as a rare disease patient.

5 05, 2021

Annual Report 2020

By |2021-05-10T19:47:15-04:00May 5th, 2021|Annual Report, News|

Our theme for 2020 was Hope. 2020 presented a challenge to us all, but most especially to our patients and caregivers who are seeking to survive this rare cancer. In 2020, The Life Raft Group needed to provide a lifeline to our community, and to offer them hope in the form of increased support as we navigate the challenges of living in a COVID-19 world. #GISTHope

29 04, 2021

NIH Pediatric & Wildtype GIST Clinic 2021 Applications Are Open!

By |2021-04-23T10:48:08-04:00April 29th, 2021|News, Pediatric GIST, SDH-Deficient GIST|

The LRG will be collaborating with the NIH again in 2021 to hold the Virtual GIST Tumor Board in place of the NIH's Pediatric & Wildtype GIST Clinic normally held in the DC area. Applications to have cases reviewed are now open.

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