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1 04, 2022

LRG Staffer Presents at the 99th Virtual Patient Support Group

By |2022-04-01T14:19:59-04:00April 1st, 2022|Advocacy, Global, News, Patient Support, Research|

In March, Director of Data Mgmt and Research, Sahibjeet Kaur joined the GIST experts of AIIMS for the 99th Virtual Patient Support Group addressing patients from India.

8 09, 2021

Australian GIST Advocates Overcome Payer Obstacles Concerning Qinlock

By |2021-09-08T15:27:33-04:00September 8th, 2021|Advocacy, Global, News, Qinlock|

Australian GIST Advocates Overcome Payer Obstacles Concerning Qinlock. 4th line drug approval was approved! GISTer Sarah McGoram shares the news.

30 07, 2021

Actualización realizada por dos prestigiosos especialistas internacionales en GIST

By |2021-07-30T11:03:57-04:00July 30th, 2021|Global, News, Research|

Publicado por Colectivo GIST España - Concluimos el mes dedicado a la concienciación del sarcoma & GIST publicando una actualización del tratamiento para los tumores GIST avanzados.

30 06, 2021

Spotlight on LRG Global Representatives – Nandini Dabbir, India

By |2021-06-30T10:50:44-04:00June 30th, 2021|Global, News, Newsletter|

The newest GISTer to join the ranks of LRG Global Representatives is Nandini Dabbir of Hyderabad, India. She is a the Friends of Max City Chapter Leader & GIST Advocate working with the LRG to support GIST patients on their journey.

3 05, 2021

It’s Time: The Life Raft Group Biomarker Testing Campaign – Effective Treatment Access

By |2021-09-27T14:56:28-04:00May 3rd, 2021|Mutational Testing, News|

It's time to shorten the time to effective treatment access. Fundación GIST Chile shares their story.

24 02, 2021

April Stephens, Long-Term Survivor

By |2021-02-24T08:34:24-05:00February 24th, 2021|Member Stories, News, Newsletter|

The average GIST patient is in their 50s or older when diagnosed with GIST. The rare exception is usually a pediatric SDH- deficient GIST, but April’s case is a case of ‘the rarest of the rare’ in that she was only 20 years old when she first encountered GIST and was not SDH-deficient.

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