What We Do

/What We Do
What We Do 2015-09-23T12:14:17+00:00

The mission of the Life Raft Group is to ensure the survival of GIST patients through a comprehensive approach connecting individual patients’ needs, the worldwide community of GIST advocates and the global health and research environment.

To do this, we focus on three key areas: researchpatient support & education, and advocacy.

Research

We fund and manage uniquely coordinated research initiatives that always keep the needs of the GIST patient foremost. The Life Raft Group is the only GIST advocacy organization with a dedicated research initiative led by a team of world renowned scientists and clinicians in GIST. Our collaborative initiatives are constantly analyzed to ensure their focus remains on finding a cure for GIST.

Patient Support and Education

We provide support & education to patients & caregivers living with GIST on an individual basis by providing one-on-one counseling sessions, local in-person meetings, and a biennial meeting that gathers the patient, pharmaceutical & medical professional communities together in a supportive and educational setting. We also offer education to the GIST community at large through our videos & webinars, websites, worldwide GIST specialist database, a one-of-a-kind GIST-specific clinical trials databasenewsletters & other materials.

Advocacy

The LRG is a very active presence in effecting change in the GIST community. Our advocacy role ranges from helping patients with treatment access issues on a one-on-one basis, creating regional groups in underserved areas in order to better inform & empower patients, championing patients’ needs before government & policy makers to reporting on trends in dosage and survival to the world.

To read about our budget and operating philosophy, please click here.

To view our current and previous annual reports, please click here.

Recent Posts

Upcoming Events

  1. Sarcoma & GIST: Education Symposium

    September 29 @ 9:00 AM - 2:45 PM
  2. Michigan GDOL 2018

    Michigan GDOL 2018

    October 27 @ 8:00 AM - 3:00 PM
  3. NTFC

    Night to Fight Cancer

    November 7 @ 6:00 PM - 11:00 PM