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      • KIT/PDGFRa Mutant GIST
      • SDH-Deficient GIST
      • Familial GIST
      • eGISTs
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  • Donate
  • International
    • International Resources
    • International GIST Specialists List
    • International Patient Organizations
    • International Liaisons
    • International Partnerships and Collaborations
    • International News
  • What is GIST?
    • Patient Resource Toolkit
    • Understanding GIST
    • Types of GIST
      • KIT/PDGFRa Mutant GIST
      • SDH-Deficient GIST
      • Familial GIST
      • eGISTs
    • GIST Diagnosis
    • Risk of Recurrence
    • Mutations & Mutational Testing
    • Treatments for GIST
    • Resistant GIST
    • Managing GIST
    • GIST Education
  • About LRG
    • Mission & Vision
    • Our Team
    • Our Board of Directors
    • Medical Advisory Board
    • The LRG Story
    • Our Members
    • In Memoriam
    • Events
    • Volunteer
    • LRG Store
    • Photo Galleries
    • Newsletter Archive
  • Get Support
    • Patient Resource Toolkit
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    • GIST Specialists List US
    • Join Our Community
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    • GIST Mentor Program
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LRG Videos

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LRG VideosEgny Mendoza2025-01-16T13:36:31-05:00
Al Berg of the AARP NJ Speakers Bureau presented “Making Cents of Caregiving” on August 12, at 12PM ET. In this informative and educational session, he introduced essential information caregivers need to more easily manage the financial complexities of caregiving. Over the course of the presentation, he showed how to incorporate financial tips and resources into your caregiving. 

AARP Resources:
https://www.aarp.org/caregiving/  
https://www.aarp.org/caregiving/prepare-to-care-planning-guide/
https://www.aarp.org/caregiving/financial-legal/?intcmp=AE-CAR-SUBNAV-LEG 
https://www.aarp.org/content/dam/aarp/secure/caregiving/financial-workbooks/aarp-caregiving-financial-workbook-fillable.pdf
https://learn.aarp.org/

Learn more about GIST: https://liferaftgroup.org/powered/
Join The Life Raft Group: https://liferaftgroup.org/life-raft-group-membership-application-form/
DONATE: https://bit.ly/DonateLRG2025
Making Cents of Caregiving
YouTube Video VVUyZ1JFN3Qta1prZ0gwMlRhaWJlN2xRLkxOM1RFWjh4cG4w
El Día del Aprendizaje sobre los Tumores del Estroma Gastrointestinal (GIST) fue un espacio diseñado para pacientes y cuidadores, donde se compartió información clave sobre este cáncer poco común, se ofreció apoyo y se brindaron herramientas para afrontar el camino con GIST.

Más información sobre GIST: https://liferaftgroup.org/powered/
Únete a Life Raft Group: https://liferaftgroup.org/life-raft-group-membership-application-form/
DONA: https://bit.ly/DonateLRG2025
Día del aprendizaje sobre GIST en español
YouTube Video VVUyZ1JFN3Qta1prZ0gwMlRhaWJlN2xRLm5aemRhemo1OTdZ
GIST Ride Highlights Reel
YouTube Video VVUyZ1JFN3Qta1prZ0gwMlRhaWJlN2xRLnZyYkZfSUhYM2Nv
The Life Raft Group hosted a special virtual event in honor of GIST Awareness Day, which is observed each year on July 13th. Patients, caregivers, and experts came together to raise awareness about GIST and advocate for progress toward a cure. During this event, GIST specialists Dr. Sicklick (UCSD), Dr. Blakely, and Dr. John Glod (NIH) engaged in an informal conversation, answering questions submitted by patients and caregivers.

Learn more about GIST: https://liferaftgroup.org/powered/
Join The Life Raft Group: https://liferaftgroup.org/life-raft-group-membership-application-form/
DONATE: https://bit.ly/DonateLRG2025
GIST Awareness Day Fireside Chat
YouTube Video VVUyZ1JFN3Qta1prZ0gwMlRhaWJlN2xRLnVOZlExTVkybmJB
Jennifer Noonan of Accessia Health covered key updates including the Medicare Prescription Payment Plan (M3P), cost-sharing “smoothing,” and how charitable financial assistance programs can support individuals navigating high out-of-pocket costs. Learn what these changes mean for patients and caregivers — and how to prepare for what’s ahead. 

Learn more about GIST: https://liferaftgroup.org/powered/
Join The Life Raft Group: https://liferaftgroup.org/life-raft-group-membership-application-form/
DONATE: https://bit.ly/DonateLRG2025
Navigating Financial Support & Medicare Changes
YouTube Video VVUyZ1JFN3Qta1prZ0gwMlRhaWJlN2xRLkZyTmttLUdXM1lF
Dr. Herbert Loong summarized abstracts and presentations that were presented during this conference that are relevant to the GIST patient community. 

Learn more about GIST: https://liferaftgroup.org/powered/
Join the Life Raft Group: https://liferaftgroup.org/life-raft-group-membership-application-form/
DONATE: https://bit.ly/DonateLRG2025
Updates from ASCO 2025 Annual Meeting
YouTube Video VVUyZ1JFN3Qta1prZ0gwMlRhaWJlN2xRLnVvWlVMVDhZbFBV
Certified Wellness Coach & Patient Advocate Carolina Williams shared holistic ways to support healing through mindfulness and vibrational living. During this virtual session, Carolina guided participants in practices such as meditation, breathwork, and energy-awareness techniques to help manage emotional and energetic challenges. Attendees also learned how vibrational frequencies can influence well-being and how to create a supportive environment that fosters inner peace, emotional balance, and resilience for both patients and caregivers.

Learn more about GIST: https://liferaftgroup.org/powered/
Join the Life Raft Group: https://liferaftgroup.org/life-raft-group-membership-application-form/
DONATE: https://bit.ly/DonateLRG2025
Holistic Approaches to Healing in Harmony
YouTube Video VVUyZ1JFN3Qta1prZ0gwMlRhaWJlN2xRLmtMT1Q3cHotWm40
La Sra. Tigre-Nerimora compartió estrategias para vivir plenamente con un enfoque holístico y personalizado, centrado en el bienestar integral. Además, abordó aspectos clave como el manejo de síntomas físicos, el bienestar emocional y el cuidado espiritual.

Más información sobre GIST: https://liferaftgroup.org/powered/
Únete a Life Raft Group: https://liferaftgroup.org/life-raft-group-membership-application-form/
DONA: https://bit.ly/DonateLRG2025
Los Beneficios de los Cuidados Paliativos
YouTube Video VVUyZ1JFN3Qta1prZ0gwMlRhaWJlN2xRLkwwOGViQjN4TENj
Dr. Grant Smith shared ways to live your best life using a holistic, person-centered approach. During this workshop, Dr. Smith talked about physical symptoms as well as emotional and spiritual well-being. Attendees also learned about the medical specialty called palliative care, and how it could provide an extra level of support and improve quality of life.

Learn more about GIST: https://liferaftgroup.org/powered/
Join the Life Raft Group: https://liferaftgroup.org/life-raft-group-membership-application-form/
DONATE: https://bit.ly/DonateLRG2025
The Benefits of Palliative Care
YouTube Video VVUyZ1JFN3Qta1prZ0gwMlRhaWJlN2xRLlFHUUswa21Mb1pN
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Wayne, NJ 07470 USA

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The Life Raft Group is a 501 (c)(3) non-profit organization (tax id: 82-0547746) providing support through information, education, and innovative research to patients with a rare cancer called GIST (Gastrointestinal Stromal Tumor). View our 990 Form here

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International Patients

GIST knows no boundaries. The Life Raft Group focuses on several key pillars. One of those pillars is “to increase access to effective treatments worldwide.” We aid patients from the United Kingdom to India and Kenya, helping wherever GIST patients are in need. Our patient registry staff interacts with global patients daily. The LRG Patient Registry has members from 63 countries, with country liaisons from 61 countries. We present at international symposiums on GIST, support global advocacy issues, and work to establish alliances and collaborations. We want to ensure that GIST patients across the world have access to the best possible treatment.
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The LRG website is dedicated in perpetuity to the memory of Mary S. Golnik.

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