Our members embody the meaning of courage, which according to the Merriam Webster dictionary is “The mental or moral strength to venture, persevere and withstand danger, fear or difficulty.”
Each member story is unique, but all reflect the intrinsic courage of those who face the challenges of cancer head on, with dignity, strength and passion for life.
Take a moment to listen to their voices.
Be amazed by what real courage looks like.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Marc Wasserman
Diagnosed in 2006 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-Deficient) GIST.
Member Stories are below.
If you would like to contribute your story, or, that of a loved one, please email us today. Feel free to include any images you would like us to use!
Also visit our In Memoriam section and our In Memoriam website to light a candle for love ones that have passed.
Member Stories
Patient of the Month for September: Martha ‘Marty’ Hunt
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Martha Hunt shares her story.
Patient of the Month for July: Robert Cabion
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Robert Cabion shares his story.
Spotlight on LRG Global Representatives – Nandini Dabbir, India
The newest GISTer to join the ranks of LRG Global Representatives is Nandini Dabbir of Hyderabad, India. She is a the Friends of Max City Chapter Leader & GIST Advocate working with the LRG to support GIST patients on their journey.
Rare Diagnosis Fosters a Passion for Biomarker Testing & Self-Advocacy
GISTer Bill Borwegan shares his inspiring GIST journey illustrating the importance of biomarker/ mutational testing and self-advocacy as a rare disease patient.
Caregiver of the Month for June: Sherry Codner
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Sherry Codner shares her story.
Patient of the Month for May: Pamela Trovato Nau
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Pamela Trovato Nau shares her story.