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The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.

Other Programs Supported by The Life Raft Group:

Real World Evidence In Action

Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.

RECENT LRG DATA

0
Patients in LRG Registry
0%
of Patient Registry members know their mutation
0
Total # of Tissue
0%
of LRG members know their Risk of Recurrence

Update your Patient Registry Info.

Join The Life Raft Group.

Current GIST Clinical Trials.

Search the GIST Specialist Database.

Dr. Monica Anderson

Dr. Monica Anderson

Diagnosed in 2012 with Adult GIST.

Bella Rocco

Bella Rocco

Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.

HELP US SAVE LIVES

The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.

Upcoming Events

ctDNA and the INSIGHT Study

ctDNA and the INSIGHT Study

November 10 @ 2:00 PM

The WOLF 2025

The WOLF 2025

November 13 @ 6:00 PM

Texas Hold’Em Poker Event

Texas Hold’Em Poker Event

November 20 @ 6:00 PM

News

  • Health Equity Council Update post image

Health Equity Council Update 10-3-25

By |October 7th, 2025|

The Life Raft Group Health Equity Council meets biweekly to discuss strategies for ensuring that all patients have equitable access to healthcare and resources. This is an update from the past two meetings.

  • LRG News Icon

Medicare Changes in 2025

By |July 7th, 2025|

A look at 2025 Medicare updates and how Accessia Health can help with costs, coverage guidance, and support services.

Keep up with the latest news, events, and opportunities to help.

To contact The Life Raft Group, please call 973-837-9092

GLOBAL PARTNERS & AFFILIATIONS