The LRG Science Bulletin
We will be sharing valuable real world data and real world evidence through our newest publication, the LRG Science Bulletin. LRG Science will include data from our Patient Registry, side effects management platform, SideEQ, our new initiative, Project Surveillance, and our collaborative efforts such as the Pediatric and SDH-Deficient GIST Consortium. It will also include content and commentary from GIST experts, case studies, editorials on vital issues and breaking news.
Moving Research Forward for GIST Patients
The Life Raft Group was built on a foundation of patient-powered science: real world data (RWD) and real world evidence (RWE) that enhances survival and quality of life for GIST and other cancer patients. As participants in the Biden Cancer Initiative, we believe strongly in the mission to find solutions that will double the rate of progress against cancer. We believe that the sharing of RWD and RWE is the linchpin of these solutions. The LRG Science Bulletin is based on this foundation.
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April 2020 – Commentary on “Survival in advanced GIST has improved over time and correlates with increased access to post-imatinib tyrosine kinase inhibitors: results from Life Raft Group Registry (online) (pdf)
August 2019 – Treatment Responses in SDH-deficient GIST (online) (pdf)
March 2019 – GIST Virtual Tumor Board (pdf)
February 2019 – The Life Raft Group Research Model (pdf)