From Patient Registry to a International Scientific Conference
Our study on NF1-associated gastrointestinal stromal tumors was accepted for presentation at ASCO this year - this milestones highlights the power of patient registries.
Long-Term GIST Survivors Share Advice
Long-term GIST survivors shared insights on expert care, self-advocacy, and the power of community while living with GIST.
SPAGN Conference 2026
The SPAGN Conference 2026 emphasized the power of patient involvement, collaboration, and whole-person care in improving sarcoma treatment and support.
LRG Athletes for GIST Hit Milestones!
LRG Athletes Toni Pauwels and Edoardo Leone reached inspiring race milestones while using their journeys to support and raise awareness for the GIST community.
Adventure in Nashville – See the Sights & Sounds
Find adventure in Nashville! Explore the sights and sounds of Music City while you're at Life Fest 2026.
Life Fest Nashville is Calling You!
Every two years Life Fest brings patients, caregivers, and experts together for a powerful weekend of connection, education, and support. 2026 takes us to Nashville!
What 19 Years With GIST Has Taught Me
Ed shares his 19-year survivor journey of resilience, multiple surgeries, evolving treatments with the support of family, expert doctors, and advocacy resources that helped him continue moving forward with hope.
Miami Precision Biannual Conference
A meaningful reflection on connection, self-advocacy, and the power of community at the Miami Precision Biannual Conference.
Open Positions at The Life Raft Group
Join a mission-driven team working to improve survival and quality of life for people living with GIST and other rare cancers. At the LRG, every role contributes to research, education, advocacy, and patient support that helps ensure no one faces rare disease alone.
Caregiver of the Month – April 2026: Gentry Trice
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Gentry Trice shares her story.