Newsletter

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Global Representative Spotlight – Florence Thwagi, Kenya

My Journey with GIST My name is Florence Thwagi, and I am 53-years-old. I am an Executive Board Member of Henzo Kenya, an advocacy group that creates awareness and support GIST patients in Kenya. [...]

By |2019-02-21T09:29:11-04:00February 21st, 2019|Advocacy, Member Stories, Newsletter, Patient Support|

Pediatric & SDH-Deficient GIST Consortium Update

Setting the Pace for the Future In July of 2018 at Life Fest, The Life Raft Group brought together a team of pediatric & SDH-deficient GIST experts for a symposium focused on this rare [...]

By |2019-02-21T16:00:26-04:00February 21st, 2019|News, Newsletter, Pediatric GIST, SDH-Deficient GIST|

The Life Raft Group Research Model – LRG Science

PDF is available of LRG Science to print here. Real World Evidence in Action Although targeted medicine has brought about immense progress in cancer treatment, there are still enormous challenges [...]

By |2019-05-05T14:20:27-04:00February 21st, 2019|LRG Science, News, Newsletter, Research|

Chile Cancer March Brings Change – Advocacy in Action!

Patients and Caregivers March! On December 4, 2018, President Sebastián Piñera, of Chile, signed the National Cancer Plan 2018 – 2028 and the National Cancer Law. LRG Global Consultant and Executive Director of Fundación [...]

By |2018-12-17T14:35:47-04:00December 17th, 2018|Advocacy, Global, News, Newsletter|

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Upcoming Events

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  2. GDOL Portland 2019

    GDOL Portland 2019

    June 22 @ 8:30 AM - 6:00 PM
  3. Life Fest 2020 New Orleans

    Life Fest New Orleans

    July 10, 2020 - July 12, 2020