The Healing Power of Adventure
How First Descents Helps Young Adults Impacted by Cancer By Liz Skree, LRG Contributor and GIST Survivor Photo credit First Descents A cancer diagnosis at any age is life-changing, daunting, and difficult. [...]
The Magic of Clinical Trial Math
How to Make 2/3 = 1 (100%) In a recent discussion about the frequency of mutations in GIST, we noted that the most common mutation is KIT exon 11, which makes up about 2/3 [...]
The Pediatric & SDH-Deficient GIST Consortium
Our Commitment to the Biden Cancer Initiative We are excited to launch an innovative initiative to strengthen and advance research for effective treatments of a rare subset of Gastrointestinal Stromal Tumor (GIST) patients, who [...]
Biden Cancer Summit Highlights
On September 21st, 2018, Vice President Joe Biden and Dr. Jill Biden convened a national Biden Cancer Summit, with the anchor event in Washington D.C., and more than 450 Community Summits held where people [...]
Elsie María Hernández Saborío – In Memoriam
A tribute by Michael Josephy, LRG Contributor My dear wife, Elsie María Hernández Saborío, passed away August 7th after a long battle with GIST. I miss her greatly. Elsie was born and raised in [...]
The Life Raft Group – Part of the Conversation at CTTI
The Clinical Trials Transformation Initiative (CTTI) Steering Committee gathered in Washington, D.C. on September 25th to discuss how clinical trials fit within scientific strategies to address public health priorities, review the portfolio of initiatives, [...]
The LRG Welcomes New Board Member
Ron & Kim Agypt The Life Raft Group welcomed Ron Agypt to the Board this month. Ron is a retired insurance executive, father of three, and grandfather of five. Ron and his [...]
Check Out Our New Look!
If you haven't visited our website lately, it's likely you haven't seen some of our new features. We'll be featuring a unique feature in each newsletter. This issue the spotlight is on the Patient [...]
New Horizons Convenes in Vienna
On September 6th, Executive Director, Norman Scherzer and I attended the New Horizons GIST meeting in Vienna, Austria. Forty-three delegates, including GIST experts, advocacy groups, and patients/caregivers from 18 countries, gathered to share valuable [...]
Our Special Life Fest 2018 Bulletin Is Available!
Special Edition Life Fest 2018 Bulletin This year’s Life Fest conference was held July 13th–15th at the Downtown Miami Hilton in Florida. As we look back on the event and GIST Awareness Day, [...]
