Caregiver of the Month – April 2026: Gentry Trice
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Gentry Trice shares her story.
GIST Summit / GIST Day of Learning 2026
The GIST Summit 2026, held on March 21, at MD Anderson Cancer Center in Houston was a highly successful collaborative event that brought together approximately 125 patients, caregivers, medical professionals, and subject matter experts from across the country.
Histotripsy: What Patients Need to Know
Let's talk about histotripsy and sarcoma - what is the potential of this new procedure?
LRG on the Road: Representing the GIST Patient Voice in Texas
Simran Singh, Data Mgmt. & Research Manager, traveled to Texas to give a presentation on the LRG and the patient journey to trial investigators at GSK.
Patient of the Month – March 2026: Barney Mulvihill
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Barney Mulvihill shares his story.
What does an Expanded Access Program mean for GIST patients?
Pharmaceutical companies may create an Expanded Access Program (sometimes called compassionate use) when a clinical trial is no longer enrolling but the medicine still shows promise.
Life Raft Research Award Recipients 2025
Our Summer Splash Match raised $60K which was awarded to three GIST researchers - Dr. Inga-Marie Schaefer, Dr. Matthew Hemming, and Dr. Jason Sicklick.
Patient Perspective on Testing – Survey Highlights
Survey highlights show that most GIST patients receive mutational testing, but awareness of ctDNA testing remains low despite strong interest.
Health Equity Council: Continuing the Legacy of a Beloved Member
The Life Raft Group’s Health Equity Council honors Martina’s legacy while working to close care gaps and expand patient access to resources.
Remembering Martina Will
Martina Will, a loving mother and dedicated advocate, battled GIST with strength and grace, leaving behind a lasting legacy of resilience, and devotion.