New Horizons 2019 Meeting Gathers Advocates in NJ Not many of our readers know that The Life Raft Group has been involved with a global network of advocates since its inception. Every year country [...]
An Amazing Day in Verona Park! Participants in the GIST DO IT Walk NJ 2019 On May 4, 2019, The Life Raft Group held its first GIST DO IT Walk in New [...]
International collaborations accelerate patient advocacy and affect policy changes and treatment protocols On May 7th, representatives from Colombia, Chile, Mexico, and The Life Raft Group assembled for the annual Salud con Datos [...]
Dr. Matthew Lurin’s Fifth Annual Water of Life Whisky fundraiser was held on May 16th at the Manhattan Center Ballroom in New York City. There were over 150 people in attendance which [...]
Deciphera Pharmaceuticals is testing an investigational drug called ripretinib (DCC-2618) as a potential new treatment option for patients living with GIST. About Ripretinib Ripretinib is an oral investigational drug designed to treat GISTs that [...]
Norman Scherzer was invited to speak at three prestigious events this spring; participating in a roundtable discussion, presenting a cancer survival plan, and speaking to a patient advocacy group. As a direct [...]
The Life Raft Group held a GIST Day of Learning (GDOL) in Tampa, at Moffitt Cancer Center, on May 16th, 2019. This was the first GDOL presented in Tampa. GDOLs are free, one-day programs [...]
OVAC is a coalition of over 50 nonprofit cancer organizations that advocate on behalf of cancer patients to deliver a unified message to Congress and to the White House on the need for increased [...]
Sharing Your Experience by Being There for Other GIST Patients and Caregivers Last month, we posted information on our new program to support our members. The GIST Peer Program is an additional support system [...]
The Future of RWE & Improving the Quality of Patient Survival Two members of The LRG staff recently attended the annual ISPOR meeting in New Orleans. ISPOR (International Society for Pharmaceutical Economics and Outcomes [...]
