Our Special Life Fest 2018 Bulletin Is Available!
Special Edition Life Fest 2018 Bulletin This year’s Life Fest conference was held July 13th–15th at the Downtown Miami Hilton in Florida. As we look back on the event and GIST Awareness Day, [...]
The Werners – Finding the New Normal Living with Wildtype GIST
Left to right: Arianna, Tiffany, Cameron, Bryce and Chris Werner Bryce Werner was a regular middle-schooler living an average 12-year-old life in Pennsylvania when suddenly everything was thrown wildly left of normal [...]
New Technology Developed Which Can Predict GIST Patient’s Response to Drugs with Amazing Accuracy
Researchers have developed a test that can accurately identify over 20% of GIST patients that are unlikely to respond to currently approved treatments. In addition, it can identify which patients need a higher dose [...]
LRG Discusses Importance of Real World Evidence in GIST Research at the FDA
On April 6th, 2018, Executive Director, Norman Scherzer; Data Analyst, Jerry Call; Real World Evidence Scientist, Yu Wang, and Patient Registry Director, Denisse Montoya, of The Life Raft Group, were invited to present at [...]
Salud con Datos – Partnering to Share Real World Data in Latin America
Over the past few years, The Life Raft Group has been strengthening its efforts in Latin America as it focuses on harnessing data to improve GIST patient outcomes. We have built strong relationships with [...]
Clinical Trials Transformation Initiative Member Meeting
As part of the Life Raft Group’s continuing mission to be actively involved in improving the quality of healthcare for cancer patients, I attended the Clinical Trials Transformation Initiatives (CTTI) member meeting in Rockville, Maryland [...]
Scottsdale Arizona hosts the first GDOL of 2018
The Life Raft Group held its first GIST Day of Learning 2018 in sunny Scottsdale, Arizona on March 10th. GDOLs are free, one-day programs that provide both education and support to the GIST community. [...]
Believe in Hope – A GIST Story
This story is shared by Virginia Terrebonne, GIST Patient and LRG Member, and is part of our Faces of Courage series. My name is Virginia VanMeter Terrebonne. I am a 56-year-old female originally from [...]
Global Spotlight – Introducing Two New Global Representatives
Two new representatives have join the LRG community, providing resources and support to patients in Russia, and Kenya. Dmitry Bukhtenkov Dmitry Bukhtenkov is the newest LRG Global Representative for Russia. Born in [...]
In Loving Memory of Lawrence B. Freed
Lawrence B. Freed – 6/1/1949 – 2/23/2018 After a long journey with GIST, Lawrence B. Freed passed away Friday, February 23, 2018 surrounded by his loving family. He was the beloved husband of Linda [...]
