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Passion Translates to Advocacy Across the Globe

When facing a diagnosis of cancer, self-advocacy becomes an important survival skill for patients and caregivers. These stories illustrate what an ordinary person can accomplish due to extraordinary circumstances and how they affected change for so many people with GIST.

By |2020-03-09T11:56:59-04:00February 28th, 2020|Advocacy, News, Newsletter|

One Perspective on the BLU-285 Trial (avapritinib/Ayvakit)

LRG members Jennifer & Owen Moore give their perspective on participating in the Phase I BLU-285 trial at OSHU with Dr. Michael Heinrich. After three other drug treatment lines and faced with several growing tumors, the BLU-285 (avapritinib) trial was Owen’s best option.

By |2020-03-09T10:18:42-04:00February 28th, 2020|D842V, News, Newsletter|

Fighting Anxiety & Depression on Your GIST Journey

A cancer diagnosis has a significant impact on patients, caregivers and their families. It is normal for someone diagnosed with GIST to feel a whole host of emotions ranging from anger to fear, sadness and anxiety about the future.

By |2020-03-09T11:40:51-04:00February 28th, 2020|Coping with GIST, Newsletter, Survival Strategies|

Spokane GISTers Gather for Food & Sharing Along the Journey

Five GISTers and four caregivers attend the luncheon at Europa Restaurant and Bakery. Besides a great meal, attendees were able to meet each other and share our journeys through their GIST journeys.

By |2020-03-09T13:20:05-04:00February 28th, 2020|News, Newsletter, Patient Support|