The NEW LRG Patient Registry Presented at Life Fest
Denisse Evans and Ian Hill discussed the new features of the new, updated Patient Registry that launched in July 2026 at Life Fest 2026 in Nashville.
The LRG Joins with Sarcoma Advocates to Bring Patient Voices to DC
The LRG joined sarcoma advocates in Washington, D.C. to raise awareness, advocate for research, healthcare access, & patient voices.
Reflections from Life Fest
Life Fest 2026 was a powerful reminder of what happens when our GIST community comes together and moves in the same direction.
Sarcoma Patients Walk for Hope in Nashville!
The GIST & liposarcoma community came together in Nashville for a Walk for Hope, celebrating hope, strength, and connection during Life Fest 2026.
Rob Taylor Shares His Story with Black Health Matters
Black Health Matters hosted a conversation on rare cancers and LRG Board Member Rob Taylor shared his GIST journey.
A Tribute to Teena Petersohn
A heartfelt tribute was given to outgoing LRG Board Member Teena Petersohn at Life Fest 2026, celebrating her dedication and lasting impact on the GIST community.
Pediatric & SDH-Deficient GIST Consortium Meets
The Consortium met recently to review current projects & goals focused on increasing research & advancing treatments for SDH-def GIST.
Water of Life 2026 Recap
Our Water of Life whisky tasting fundraiser was a celebration of exceptional whisky, generosity, and support for the GIST community.
GIST Awareness Day – Celebrating Life
GIST Awareness Day is celebrated on July 13, started by The Life Raft Group in 2014 to bring awareness and raise funds for GIST research.
Highlights from the Updates from ASCO Webinar
Learn about the latest GIST research from ASCO 2026, including updates on two promising clinical trials exploring new strategies to treat advanced GIST and address treatment resistance.