Newsletter

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The Werners – Finding the New Normal Living with Wildtype GIST

Left to right: Arianna, Tiffany, Cameron, Bryce and Chris Werner Bryce Werner was a regular middle-schooler living an average 12-year-old life in Pennsylvania when suddenly everything was thrown wildly left of normal [...]

By | 2018-07-06T12:25:25+00:00 June 29th, 2018|Member Stories, News, Newsletter|

New Technology Developed Which Can Predict GIST Patient’s Response to Drugs with Amazing Accuracy

Researchers have developed a test that can accurately identify over 20% of GIST patients that are unlikely to respond to currently approved treatments. In addition, it can identify which patients need a higher dose [...]

By | 2018-07-09T09:57:06+00:00 June 29th, 2018|GIST Education, Mutational Testing, News, Newsletter|

LRG Discusses Importance of Real World Evidence in GIST Research at the FDA

On April 6th, 2018, Executive Director, Norman Scherzer; Data Analyst, Jerry Call; Real World Evidence Scientist, Yu Wang, and Patient Registry Director, Denisse Montoya, of The Life Raft Group, were invited to present at [...]

By | 2018-07-31T10:10:06+00:00 June 29th, 2018|Newsletter, Research|

Salud con Datos – Partnering to Share Real World Data in Latin America

Over the past few years, The Life Raft Group has been strengthening its efforts in Latin America as it focuses on harnessing data to improve GIST patient outcomes. We have built strong relationships with [...]

By | 2018-07-06T12:46:05+00:00 June 29th, 2018|Global, Newsletter, Patient Data, Patient Registry|

Clinical Trials Transformation Initiative Member Meeting

As part of the Life Raft Group’s continuing mission to be actively involved in improving the quality of healthcare for cancer patients, I attended the Clinical Trials Transformation Initiatives (CTTI) member meeting in Rockville, Maryland [...]

By | 2018-07-25T14:24:41+00:00 June 29th, 2018|Advocacy, Newsletter|

Global Spotlight – Introducing Two New Global Representatives

Two new representatives have join the LRG community, providing resources and support to patients in Russia, and Kenya. Dmitry Bukhtenkov Dmitry Bukhtenkov is the newest LRG Global Representative for Russia. Born in [...]

By | 2018-07-25T14:27:29+00:00 June 29th, 2018|Global, Newsletter, Patient Support|

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Upcoming Events

  1. Sarcoma & GIST: Education Symposium

    September 29 @ 9:00 AM - 2:45 PM
  2. Michigan GDOL 2018

    Michigan GDOL 2018

    October 27 @ 8:00 AM - 3:00 PM
  3. NTFC

    Night to Fight Cancer

    November 7 @ 6:00 PM - 11:00 PM