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Finding a Ride to Your Doctor’s Appointments

Over 3.6 million people miss their medical appointments each year, preventing them from getting the care that they need or getting access to the medicine that could help them. People report that distance to the doctor’s office, cost of the transportation, and access to a driver or public transportation as the main reasons that they are having a challenge with transport.

By |2019-10-30T09:40:26-05:00October 29th, 2019|News, Newsletter, Patient Support|

News from the 17th NIH Pediatric and Wildtype GIST Clinic

The NIH Pediatric and Wildtype GIST Clinic is a collaboration amongst researchers, specialists, patient advocates, patients and family members, with the goal of furthering the knowledge of SDH-deficient gastrointestinal stromal tumors (GIST) in order to develop more effective therapies.

By |2019-10-29T09:22:18-05:00October 29th, 2019|News, Newsletter, SDH-Deficient GIST|

A ‘Clinical Trial of One’

October's LRG newsletter features artist Douglas Morgan, who found himself with a rare GIST mutation and no treatment options until an innovative oncologist and a compassionate gesture by a pharmaceutical company gave him a chance to receive a unique treatment.

By |2019-11-08T11:08:49-05:00October 29th, 2019|Clinical Trials, Member Stories, News, Newsletter|

Partnering with Selnet

The Life Raft Group is pleased to announce a new partnership with SELNET, a project which is creating a multidisciplinary network of European and Latin American clinical and translational specialists. This project’s goal is to improve diagnosis and clinical care in sarcomas and  establish guidelines for referral policies, diagnostic methods, clinical practice guidelines among other necessary changes to current practices.

By |2019-10-30T11:01:48-05:00October 29th, 2019|News, Newsletter|

Collaborating with the NCCN FOUNDATION

The NCCN Foundation produces patient booklets that contain evidence-based disease information and important guidance to help patients formulate questions that are important to them. The Life Raft Group, a leading patient advocacy organization, is working with the Foundation to endorse these guidelines.

By |2019-10-30T11:32:43-05:00October 29th, 2019|News, Newsletter|