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So far LRG Staff has created 559 blog entries.

New Study Aids in the Diagnosis of Hereditary Paraganglioma and Pheochromocytoma

A recent study in Cancer Genetics, International initiative for a curated SDHB variant database improving the diagnosis of hereditary paraganglioma and pheochromocytoma, is important for GIST patients who carry a germline SDHB mutation

By |2021-09-09T11:41:15-04:00September 9th, 2021|News, Pediatric GIST, Research, SDH-Deficient GIST|

The Importance of Biomarker Testing for the Effective Treatment of GIST Patients – LRG Science

This issue of LRG Science presents six case studies as evidence that the practice of biomarker/mutational testing early in a GIST patient's journey is a critical path to the most effective treatment. Each patient was diagnosed with GIST, but did not receive mutational testing early enough to avoid suffering adverse side effects and wasting money on unnecessary, costly drugs.

By |2021-09-27T07:30:29-04:00August 30th, 2021|LRG Science, Mutational Testing, News|

NIH Pediatric & Wildtype Clinic’s ‘Virtual Tumor Board’ Hosted by the LRG

The LRG worked with the NIH to create a collaborative model to serve the needs of Pediatric & SDH patients, hosting a virtual tumor board on June 25th to replace the in-person Pediatric & Wildtype Clinic which the NIH holds annually.

By |2021-08-24T15:19:29-04:00August 24th, 2021|News, Patient Support, SDH-Deficient GIST|
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