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So far LRG Staff has created 502 blog entries.

Quality of Life Questions

The Life Raft Group is committed to ensuring your GIST journey is as comfortable as possible. We have added new fields to our forms to assess your Quality of Life (QOL) over time. These questions [...]

By |2020-11-20T11:27:05-05:00November 20th, 2020|Patient Registry|

Words of Wisdom from Women in Sarcoma

We asked the amazing honorees of the first annual Women in Sarcoma Gala some personal questions to help us learn more about them, and their experiences. Have you RSVP'd for the Gala on Dec. 10 at 6PM ET? RSVP today for this free, virtual event, to be held in loving memory of GISTer Nikki Morales.

By |2020-11-19T15:48:26-05:00November 17th, 2020|Events, News|

Recognizing Our Women in Sarcoma Gala Honorees 2020

The Women in Sarcoma Gala, the culmination of the Women in Sarcoma series for 2020, will recognize medical professionals who have made an exceptional difference in the lives of GIST patients and their families. In addition, we will also honor two amazing sarcoma patients who have met the challenge their disease presented and have gone above and beyond to make a difference in the rare disease community.

By |2020-11-19T15:14:15-05:00November 13th, 2020|Events, News|

Honoring the Memory of Nikki Morales – the Women in Sarcoma Gala

Join us for the first virtual annual Women in Sarcoma Gala in loving memory of Nikki Morales. Nikki Morales was a patient advocate, philanthropist, public speaker, volunteer, and an inspiration for so many within the sarcoma community.

By |2020-11-19T15:09:31-05:00November 11th, 2020|Events, News|

Save the Date – Women in Sarcoma Virtual Gala

Doctors, radiologists, nurses, social workers, pathologists, researchers and patients share their strength, hope, and experience with sarcoma patients and each other worldwide each day. The Life Raft Group is honoring a group of these women at the Women in Sarcoma with a Virtual Gala on December 10, at 6pm ET.

By |2020-11-19T14:34:53-05:00November 5th, 2020|Events, News|

Annual Report 2019

Our theme for 2019 was Travel with Us on the Path to Survival. GIST patients and caregivers are on a journey, seeking to survive this rare cancer. Our mission is to walk with them on their journey, providing resources to help them not only survive, but thrive. In 2019, there was a strong research component to our efforts, promoting the importance of real world data and real world evidence to enhance traditional research

By |2020-10-26T11:43:25-04:00October 23rd, 2020|Annual Report, News|
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