LRG Staff

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So far LRG Staff has created 574 blog entries.

Give Hope for the Holidays!

For rare disease patients, hope becomes more than a feeling; it’s a vital part of the journey. During the holidays, this sense of hope carries a unique importance. Our Hope for the Holidays campaign will bring you stories of hope & resilience.

By |2025-01-14T10:56:16-05:00November 12th, 2024|Fundraising, News|

Annual Bigman & Etzi Memorial Tailgate Raises Funds for The Life Raft Group

The family and friends of late LRG Board member Eric Biegansky. Eric's wife, Jill, and his kids, Ryan and Emma, along with dozens of Eric's friends gathered for a fundraiser in his memory.

By |2024-09-26T10:22:10-04:00September 26th, 2024|Advocacy, Events, News|
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