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So far LRG Staff has created 431 blog entries.

Patient Advocate’s Story Unfolds in RARE Revolution Magazine

Deb Melikian, patient advocate, and Dr. Jason Sicklick, GIST expert & researcher, share the story of their unique partnership which began at an LRG GIST Day of Learning in the rare partners issue of RARE Revolution Magazine.

By |2020-02-04T08:53:11-05:00February 4th, 2020|Advocacy, News, SDH-Deficient GIST|

Breaking News for GIST Patients – Avapritinib Approved!

Blueprint Medicines announced that the FDA has approved AYVAKIT™ (avapritinib) for the treatment of adults with unresectable or metastatic gastrointestinal stromal tumor (GIST) harboring a platelet-derived growth factor receptor alpha (PDGFRA) exon 18 mutation, including PDGFRA D842V mutations.

By |2020-01-10T16:06:14-05:00January 9th, 2020|News|

First-Line Imatinib More Effective Than Widely Believed – LRG Science

The latest issue of LRG Science is titled, "First-Line Imatinib More Effective Than Widely Believed - LRG Science - Treatment for Resistant GIST - Improved, but Still Very Far to Go." In this issue, the LRG Real World Evidence team analyzes data from our Patient Registry in order to evaluate the efficacy of imatinib as a first-line treatment in GIST. Subscribe to LRG Science by emailing mgarland@liferaftgroup.org with the subject line SUBSCRIBE LRG SCIENCE.

By |2019-12-13T10:07:51-05:00December 13th, 2019|Drug Treatment, Gleevec, LRG Science, News|

GIST Mentor Training Day Photo Gallery

The LRG held a GIST Mentor training day in our offices in Wayne, NJ, in October 2019. The gallery includes photos of the new GIST Mentors, LRG staff. One of the training days was on Halloween so some of the staff dressed up. These photos were taken by David Josephy of Life Raft Group Canada.

By |2019-11-14T10:07:55-05:00November 7th, 2019|Events, LRG Gallery|