The NEW LRG Patient Registry Presented at Life Fest
Denisse Evans and Ian Hill discussed the new features of the new, updated Patient Registry that launched in July 2026 at Life Fest 2026 in Nashville.
A Tribute to Teena Petersohn
A heartfelt tribute was given to outgoing LRG Board Member Teena Petersohn at Life Fest 2026, celebrating her dedication and lasting impact on the GIST community.
Remembering a Great Friend to the LRG – Chuck Korte
To so many in our community, Chuck was a beacon of hope. He was one of the very few long-term survivors from the original Gleevec (STI-571) clinical trial, which he joined in 2001. For [...]
LRG Athletes Win for the GIST Community!
Five GIST advocates used their passion for sports in 2025 to fundraise through our LRG Athletes program raising awareness and funds for our GIST community.
Fundraisers Make an Big Impact this Season
The most meaningful fundraisers are those that are born of a passion - the WOLF events and our newest - Texas Hold'Em are two great examples.
Life Raft Research Award Recipients 2025
Our Summer Splash Match raised $60K which was awarded to three GIST researchers - Dr. Inga-Marie Schaefer, Dr. Matthew Hemming, and Dr. Jason Sicklick.
Medicare Changes in 2025
A look at 2025 Medicare updates and how Accessia Health can help with costs, coverage guidance, and support services.
GIST Summit 2025/GDOL Texas Presentations & Photo Gallery
GIST Summit 2025/GDOL Texas was held at MD Anderson Cancer Center and presentations and photo gallery are now available.
A Tour of Northern Texas
Executive Director Sara Rothschild toured Texas to connect with the GIST community and healthcare professionals, emphasizing patient advocacy.
Make Strides Toward a Cure at the Cleveland Marathon!
Join The Life Raft Group at the 2025 Cleveland Marathon to raise awareness and funds for rare disease support, whether you run, walk, or cheer!