The 2020 GIST award goes to Dr. Thomas Mühlenberg of the University of Duisburg-Essen The GIST Group Switzerland, the support group for patients with gastrointestinal stromal tumor (GIST), has awarded its science prize for [...]
The Life Raft Group is committed to ensuring your GIST journey is as comfortable as possible. We have added new fields to our forms to assess your Quality of Life (QOL) over time. These questions [...]
We asked the amazing honorees of the first annual Women in Sarcoma Gala some personal questions to help us learn more about them, and their experiences. Have you RSVP'd for the Gala on Dec. 10 at 6PM ET? RSVP today for this free, virtual event, to be held in loving memory of GISTer Nikki Morales.
The annual meeting of CTOS (Connective Tissue Oncology Society) will be held virtually this year due to the global pandemic.
The Women in Sarcoma Gala, the culmination of the Women in Sarcoma series for 2020, will recognize medical professionals who have made an exceptional difference in the lives of GIST patients and their families. In addition, we will also honor two amazing sarcoma patients who have met the challenge their disease presented and have gone above and beyond to make a difference in the rare disease community.
Join us for the first virtual annual Women in Sarcoma Gala in loving memory of Nikki Morales. Nikki Morales was a patient advocate, philanthropist, public speaker, volunteer, and an inspiration for so many within the sarcoma community.
The LRG is pleased to welcome Shari Reid and Dr. Amy Kenworthy as country liaisons supporting GIST patients in Australia.
Doctors, radiologists, nurses, social workers, pathologists, researchers and patients share their strength, hope, and experience with sarcoma patients and each other worldwide each day. The Life Raft Group is honoring a group of these women at the Women in Sarcoma with a Virtual Gala on December 10, at 6pm ET.
This panel featured three women sarcoma experts presenting unique case studies that they have encountered in their practices.
Our theme for 2019 was Travel with Us on the Path to Survival. GIST patients and caregivers are on a journey, seeking to survive this rare cancer. Our mission is to walk with them on their journey, providing resources to help them not only survive, but thrive. In 2019, there was a strong research component to our efforts, promoting the importance of real world data and real world evidence to enhance traditional research