Join a mission-driven team working to improve survival and quality of life for people living with GIST and other rare cancers. At the LRG, every role contributes to research, education, advocacy, and patient support that helps ensure no one faces rare disease alone.
To so many in our community, Chuck was a beacon of hope. He was one of the very few long-term survivors from the original Gleevec (STI-571) clinical trial, which he joined in 2001. For [...]
Five GIST advocates used their passion for sports in 2025 to fundraise through our LRG Athletes program raising awareness and funds for our GIST community.
The most meaningful fundraisers are those that are born of a passion - the WOLF events and our newest - Texas Hold'Em are two great examples.
Through our Hope for the Holidays campaign, listen to GIST patients who once felt alone and afraid, but found connection and support. Listen, learn and donate!
Our Summer Splash Match raised $60K which was awarded to three GIST researchers - Dr. Inga-Marie Schaefer, Dr. Matthew Hemming, and Dr. Jason Sicklick.
A look at 2025 Medicare updates and how Accessia Health can help with costs, coverage guidance, and support services.
GIST Summit 2025/GDOL Texas was held at MD Anderson Cancer Center and presentations and photo gallery are now available.
Executive Director Sara Rothschild toured Texas to connect with the GIST community and healthcare professionals, emphasizing patient advocacy.
Join The Life Raft Group at the 2025 Cleveland Marathon to raise awareness and funds for rare disease support, whether you run, walk, or cheer!
