SDH is a protein that is based in the mitochondria. Its loss causes a major energy and metabolic crisis. Despite this, some types of cells can 'benefit' from the loss of SDH and continue to [...]
On September 21st, 2018, Vice President Joe Biden and Dr. Jill Biden convened a national Biden Cancer Summit, with the anchor event in Washington D.C., and more than 450 Community Summits held where people [...]
Norman J. Scherzer of the Life Raft Group presenting the Pediatric & SDH-Deficient GIST Consortium at the Biden Cancer Summit. Learn More about the Pediatric & SDH-Deficient GIST Consortium [...]
Patient-provided, patient-focused data from the Patient Registry has been a core component of the LRG’s research model. Out of the foundation of real world data, we conducted a Side Effects Survey in the early [...]
Special Edition Life Fest 2018 Bulletin This year’s Life Fest conference was held July 13th–15th at the Downtown Miami Hilton in Florida. As we look back on the event and GIST Awareness Day, [...]
Dina Wiley, SoCal Group Leader On August 11, 2018, a group of GISTers in Southern California gathered informally to share knowledge, resources, and personal stories about their journeys with this rare disease. [...]
The LRG is collaborating with the Biden Cancer Initiative to promote the Biden Cancer Community Summit which will be held on September 21st, 2018, in Washington, D.C. Vice President Joe Biden and Dr. Jill [...]
Two new representatives have join the LRG community, providing resources and support to patients in Russia, and Kenya. Dmitry Bukhtenkov Dmitry Bukhtenkov is the newest LRG Global Representative for Russia. Born in [...]
Lawrence B. Freed – 6/1/1949 – 2/23/2018 After a long journey with GIST, Lawrence B. Freed passed away Friday, February 23, 2018 surrounded by his loving family. He was the beloved husband of Linda [...]
Have you researched the subject, but would really rather hear the perspective only a fellow patient can provide? Listen to the informative webcast recording from Wednesday, December 13th from Dr. Nikhil Guhagarkar MDS, who addressed these [...]
