Caregiver of the Month – May 2025: Joyce Holthaus
Every story is unique, reflecting the strength of those caring for loved ones with GIST. Joyce Holthaus shares her GIST story.
Patient of the Month – April 2025: Jimit Mody
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Jimit Mody shares his story.
John Poss Remembered through Memorial Fund
Every donation furthers GIST research, fuels clinical trials, and provides critical support for patients and caregivers navigating GIST.
LRG Athletes Program
Announcing the new LRG Athletes Program - patients & caregivers use their passion for movement to build community & to support the LRG.
Coping During the Holidays
The holiday season is a time filled with festive gatherings, family traditions, and social expectations, but it can be challenging for individuals with a rare disease. Read more for some tips to have a joyful, peaceful season.
Give Hope for the Holidays!
For rare disease patients, hope becomes more than a feeling; it’s a vital part of the journey. During the holidays, this sense of hope carries a unique importance. Our Hope for the Holidays campaign will bring you stories of hope & resilience.
Patient of the Month – October 2024: Amber Santiago
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Amber Santiago shares her story.
The Life Raft Group Launches New Liposarcoma Support Network
The Life Raft Group Launches New Liposarcoma Support Network for Patients & Caregivers.
Annual Bigman & Etzi Memorial Tailgate Raises Funds for The Life Raft Group
The family and friends of late LRG Board member Eric Biegansky. Eric's wife, Jill, and his kids, Ryan and Emma, along with dozens of Eric's friends gathered for a fundraiser in his memory.
New SDH Tissue Testing Collaboration with NIH & UCSD
The LRG is partnering with the NIH and UCSD to create the first ever tumor biobank in the U.S. focused specifically on SDH-deficient GIST.
