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So far LRG Staff has created 539 blog entries.

Conversations with the LRG: Long-Term Survivors

On May 4th the LRG held a lively discussion with three long-term survivors, Erin McBean, John Abrams, and Dr. mOe Anderson. Diagnosed at different stages of life, with different mutations, these GISTers shared how they have thrived with GIST over ten years and counting.

By |2021-05-12T16:09:56-04:00May 12th, 2021|Events, Webcast|

It’s Time: The Life Raft Group Biomarker Testing Campaign – Outcomes

If you know your mutation, you have a better chance of getting the most effective treatment more quickly, and increasing your survival time. Knowledge makes an empowered patient and an empowered patient asks and researches their disease.

By |2021-05-06T14:06:22-04:00May 11th, 2021|Mutational Testing, News|

Annual Report 2020

Our theme for 2020 was Hope. 2020 presented a challenge to us all, but most especially to our patients and caregivers who are seeking to survive this rare cancer. In 2020, The Life Raft Group needed to provide a lifeline to our community, and to offer them hope in the form of increased support as we navigate the challenges of living in a COVID-19 world. #GISTHope

By |2021-05-10T19:47:15-04:00May 5th, 2021|Annual Report, News|

NIH Pediatric & Wildtype GIST Clinic 2021 Applications Are Open!

The LRG will be collaborating with the NIH again in 2021 to hold the Virtual GIST Tumor Board in place of the NIH's Pediatric & Wildtype GIST Clinic normally held in the DC area. Applications to have cases reviewed are now open.

By |2021-04-23T10:48:08-04:00April 29th, 2021|News, Pediatric GIST, SDH-Deficient GIST|

It’s Time: The Life Raft Group Biomarker Testing Campaign – It’s Time for Action

Understanding the role of mutations and biomarker testing is one of most important things patients must learn. Uncovering the driving force behind each individual’s tumors is not just important, it is critical. This video shows the action steps of our It's Time campaign.

By |2021-04-14T15:45:48-04:00April 12th, 2021|Mutational Testing, News, Video|

It’s Time: The Life Raft Group Biomarker Testing Campaign – Terminology

Understanding the role of mutations and biomarker testing is one of most important things patients must learn. Uncovering the driving force behind each individual’s tumors is not just important, it is critical. This video talks about why it's important and about terminology when talking about mutations.

By |2021-03-16T10:20:02-04:00March 16th, 2021|Mutational Testing, News, Video|
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