Life Fest 2018 Pharma Panel: Apritinib Update for the GIST Patients & Caregivers
Pharma Panel: Overview of Promising Trials for GIST Blueprint Medicines View all life fest 2018 videos
Life Fest 2018 Role of Integrative Medicine in GIST
Role of Integrative Medicine in GIST Jorge Bordenave, MD, Miami Integrative Health View all Life Fest 2018 Videos
Life Fest 2018 Breaking Down the Financial Concerns of Living with GIST
Breaking Down the Financial Concerns of Living with GIST Presented by Marlene Morales, MSW, Sylvester Comprehensive Cancer Center and Kathy Sarmiento, Alliance for Aging View all Life Fest 2018 Videos [...]
Life Fest 2018 State of GIST: A Clinical Panel of Experts
State of GIST: A Clinical Panel of Experts Presented by Jason Sicklick, MD, Moores Cancer Center, University of California, San Diego; and the GIST Experts Panel - Markku Martti Miettinen, MD, National [...]
The Life Raft Group Research Model
Patient-provided, patient-focused data from the Patient Registry has been a core component of the LRG’s research model. Out of the foundation of real world data, we conducted a Side Effects Survey in the early [...]
Our Special Life Fest 2018 Bulletin Is Available!
Special Edition Life Fest 2018 Bulletin This year’s Life Fest conference was held July 13th–15th at the Downtown Miami Hilton in Florida. As we look back on the event and GIST Awareness Day, [...]
SoCal Support Group Meeting for GISTers
Dina Wiley, SoCal Group Leader On August 11, 2018, a group of GISTers in Southern California gathered informally to share knowledge, resources, and personal stories about their journeys with this rare disease. [...]
Biden Cancer Community Summit – Get Involved!
The LRG is collaborating with the Biden Cancer Initiative to promote the Biden Cancer Community Summit which will be held on September 21st, 2018, in Washington, D.C. Vice President Joe Biden and Dr. Jill [...]
Global Spotlight – Introducing Two New Global Representatives
Two new representatives have join the LRG community, providing resources and support to patients in Russia, and Kenya. Dmitry Bukhtenkov Dmitry Bukhtenkov is the newest LRG Global Representative for Russia. Born in [...]
In Loving Memory of Lawrence B. Freed
Lawrence B. Freed – 6/1/1949 – 2/23/2018 After a long journey with GIST, Lawrence B. Freed passed away Friday, February 23, 2018 surrounded by his loving family. He was the beloved husband of Linda [...]
