Senior Director of Program Operations, Sara Rothschild, recently represented the Life Raft Group at the SPAEN (Sarcoma Patients EuroNet) meeting. Subsequent to the meeting, over 300 medical professionals gathered for the 7th annual ESMO (European Society for Medical Oncology) Sarcoma and GIST Conference. in Milan, Italy. Over 50 delegates gathered from Europe, US and India […]
ESMO, GIST research, Global, Sarcoma Research, SPAEN
On January 4th, 2018 Deciphera Pharmaceuticals, Inc, announced the start of the Phase 3 INVICTUS trial. This randomized trial is for 4th line GIST patients that have failed (or are intolerant) the three standard drugs for GIST, Gleevec, Sutent and Stivarga. The press release can be found here. Patients entering the trial will be randomized […]
DCC-2618, Deciphera Pharmaceuticals, Invictus Trial
As we celebrate our 15th year as a non-profit, we at the Life Raft Group would like to share 15 wishes we have for the New Year. Won’t you help us make them come true by donating today? Please share this post with at least 15 friends, and encourage them to share with another 15. […]
Alianza GIST, Fundación GIST México, GIDT Chile, GIST Collaborative Tissue Bank, Mutational Testing, NIH Pediatric and Wildtype Clinic, Patient Registry, Patient Representative, Plasma Level Testing, Salud con Datos, SideEQ, Surveillance System
By Jennifer Moore, LRG Member I was waiting in line to pick up a new prescription for Gleevec when my husband ran in and told me to forget it. After two surgeries, a year on 400 mg of Gleevec and a miserable few weeks on Sutent, Owen had a few rogue tumors that continued to […]
BLU-285, Clinical Trial, D824V, Jennifer Moore, member stories, OHSU, Owen Moore