The Life Raft Group takes the privacy of our members’ and visitors’ personal information very seriously and respects everyone’s right to privacy. Our website content can be browsed without providing any personal information.

We collect personal information in the following ways:

  • When an individual registers to become a member or when they provide an update of an existing profile on our website or apps, or to register to join our Patient Registry (IRB approved).
  • When an individual signs up for newsletters or other communications from the LRG;
  • When an individual participates in an online survey from the LRG

Non-personal information

The LRG may collect “non-personal information” via modalities such as Google Analytics to help us better determine user behavior, to tell us which parts of our website people have visited, and to help us provide a better user experience.


Cookies are files that store small amounts of data on your computer about your visit to our site. LRG’s website, email messages and advertisements may use “cookies” and other technologies such as pixel tags and web beacons.

You can control how websites use cookies by configuring the privacy settings within your browser. Because cookies are used throughout our website, disabling them may prevent you from using certain parts of the site which may not function properly.


Our applications are processed through JotForm. JotForm only uses cookies to remember your log in session or the latest form you may have modified. See JotForm’s Privacy Policy for more information.

How do we secure and retain information?

We take reasonable security measures to protect the security of personal information. We encrypt the transmission of that information or use SSL connections (Secure Socket Layer) technology.

The LRG as an organization retains its own servers. The LRG Patient Registry follows all ethical guidelines and protocols in handling information for study and research set by Quorum, an Internal Review Board. Only authorized personnel have access to the server.

The LRG does not rent or sell the member/visitor information entered on this site.