Our mission is to enhance the survival and quality of life for people living with GIST through patient-powered research, education and empowerment, and global advocacy efforts.

What’s in the Patient Section?

What’s in the Powered Section?

What’s in the Science section?

What’s in the For Life Section?

Real World Evidence In Action

Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.

RECENT LRG DATA

0
Patients in LRG Registry
0%
of Patient Registry members know their mutation
0
Total # of Tissue
0%
of LRG members know their Risk of Recurrence

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Available GIST clinical trials.

Learn About Trials

Search our database of GIST Specialists.

View Specialists
Dr. Monica Anderson

Dr. Monica Anderson

Diagnosed in 2012 with Adult GIST.

Marc Wasserman

Marc Wasserman

Diagnosed in 2006 with Adult GIST.

Bella Rocco

Bella Rocco

Diagnosed in 2009 with Pediatric
(SDH-Deficient) GIST.

HELP US SAVE LIVES

The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.

SHARE YOUR DATA
DONATE TO THE LRG
VOLUNTEER YOUR TIME
CONTRIBUTE YOUR TISSUE

Be a Part of the GIST Mosaic

By |July 22nd, 2022|

GISTers, please consider participating in this awesome mosaic honoring all GIST thrivers that we're partnering with CogentBiosciences to create. Let's tell the world about GIST!  

  • Life Fest 2020 4x3

Life Fest New Orleans 2022: Sights & Sounds

By |July 21st, 2022|

Life Fest has a roster of great GIST education programming but there's also time at the day's end to indulge in some local activities. Here's a list of some of the top attractions in NOLA.

  • Life Fest 2020 4x3

Life Fest New Orleans 2022: Where to Eat?

By |July 7th, 2022|

Life Fest has a roster of great GIST education programming but there's also time at the day's end to indulge in some local cuisine. Here's a list of some of the top culinary experiences in NOLA.

  • ASCO 2022

LRG Staff Commentary on ASCO22 Presentations/Posters

By |June 17th, 2022|

The Life Raft Group Data Management & Research and Communications Team attended remotely to gain knowledge of current research in GIST and to track breaking news and social media networking. In this post, we present commentary on several presentations and posters.

The Importance of Biomarker Testing Webinar

The Importance of Biomarker Testing

August 12 @ 12:00 PM - 1:00 PM

New Support Group image

Virtual GISTer Support Group

August 16 @ 6:00 PM - 7:30 PM

Twice Monthly Caregiver Support Group

Virtual Caregiver Support Group

August 17 @ 1:00 PM - 2:00 PM

New Support Group image

Virtual GISTer Support Group

September 6 @ 6:00 PM - 7:30 PM

Twice Monthly Caregiver Support Group

Virtual Caregiver Support Group

September 7 @ 1:00 PM - 2:00 PM

Keep up with the latest news, events, and opportunities to help.

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To contact The Life Raft Group, please call 973-837-9092

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