OUR MISSION:
Enhancing survival and quality of life for people living with GIST through patient-powered research, education and empowerment, and global advocacy efforts.
These are our Core Values:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
PROJECT InterGR
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. Project InterGR, the LRG’s approach to research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Update your Patient Registry Information.
Join The Life Raft Group.
Available GIST clinical trials.
Search our database of GIST Specialists.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Marc Wasserman
Diagnosed in 2006 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-Deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help, we always need patient tissue and data in our registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
GIST Virtual Tumor Board – LRG Science
PDF is available of LRG Science to print here. An oncologist in Chennai, India, 8,366 miles away from the Life Raft Group’s Wayne, New Jersey office, is running out of treatment [...]
Patient of the Month for July: Robert Little
As a part of our Faces of Courage series, we are featuring a patient story each month. Each one of our [...]
Creating Your Personal Cancer Survival Plan
This presentation is best viewed with the "Personal Cancer Survival Plan - 10 Steps to Surviving Cancer Guide" [...]
GDOL Portland 2019 Photo Gallery
The Life Raft Group held a GIST Day of Learning (GDOL) in Portland, at Oregon Health & Science University (OHSU), on [...]
GIST Day of Learning – GDOL Portland
The Life Raft Group held a GIST Day of Learning (GDOL) in Portland, at Oregon Health & Science University (OHSU), on [...]
LRG Webcast: GIST – El punto de vista del patólogo
Presentación del Dr. Chris Corless, profesor de patología en la Universidad de Oregón. Habla desde experiencia como patólogo trabajando con los [...]
Patient of the Month for June: Piga Fernández
As a part of our Faces of Courage series, we are featuring a patient story each month. Each one of our [...]
Salud con Datos 2019 Photo Gallery
These are some memorable photos from Salud con Datos 2019. On May 7th, representatives from Colombia, Chile, Mexico, and The Life [...]
International Focus on the Power of Real World Data to Enhance Advocacy Efforts
New Horizons 2019 Meeting Gathers Advocates in NJ Not many of our readers know that The Life Raft Group has been [...]
The First GIST DO IT Walk NJ – Held in Loving Memory of Ted Wolf
An Amazing Day in Verona Park! Participants in the GIST DO IT Walk NJ 2019 On May 4, 2019, [...]
International Collaborations – Salud con Datos 2019
International collaborations accelerate patient advocacy and affect policy changes and treatment protocols On May 7th, representatives from Colombia, Chile, [...]
