Our mission is to enhance the survival and quality of life for people living with GIST through patient-powered research, education and empowerment, and global advocacy efforts.
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Marc Wasserman
Diagnosed in 2006 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-Deficient) GIST.
The Life Raft Group Medical Advisory Board
The Life Raft Group is pleased to present the members of the LRG 2021 Medical Advisory Board. Members will play a crucial role in offering expert opinions on research and medical developments.
Partnership for Survival – Treating the Rarest of the Rare
Our Rare Disease Day offering is a whitepaper titled 'Partnership for Survival – Treating the Rarest of the Rare' detailing how a collaboration with the NIH has become a model for other advocacy groups and researchers.
Caregiver of the Month for June: Sherry Codner
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Sherry Codner shares her story.
It’s Time: The Life Raft Group Biomarker Testing Campaign – Standard of Care
If you know your mutation, you have a better chance of getting the most effective treatment more quickly, and increasing your survival time. Making biomarker testing a standard of care will ensure that patients & medical professionals are fully informed so that treatment will be more effective.
GIST Awareness Day 2021
Despite all the work done by our amazing members and friends to date there is still a huge lack of education [...]
It’s Time: The Life Raft Group Biomarker Testing Campaign – Advocate for this Lifesaving Tool
It's #TimeToGetTested Understanding the role of mutations and biomarker testing is one of most important things patients must learn. Uncovering the [...]
New Horizons GIST Presents Webinar on Mutational Testing for Global Community
This New Horizons GIST webinar is for GIST patients around the world. Hosted by SPAEN, this presentation focuses on mutational testing as a guide for the right therapy.
It’s Time: The Life Raft Group Biomarker Testing Campaign – Educating & Informing Payers
It's Time! Biomarker testing leads to an accurate diagnosis, avoiding the expense of unnecessary, expensive treatments. Biomarker testing leads to an accurate diagnosis, avoiding the expense of unnecessary, expensive treatments.
Genetic Testing Recommended for SDHx Mutation Carriers
This study strongly recommends genetic testing and regular biochemical testing and clinical exams for SDHx mutation carriers.
GLOBAL PARTNERS
