OUR MISSION:

Enhancing survival and quality of life for people living with GIST through patient-powered research, education and empowerment, and global advocacy efforts.

These are our Core Values:

What’s in the Patient Section?

What’s in the Powered Section?

What’s in the For Life Section?

Real World Evidence In Action

PROJECT InterGR

Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. Project InterGR, the LRG’s approach to research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.

GIST Collaborative Tissue Bank
GIST Trials Database
The Life Raft Group Patient Registry
SideEQ
Project Surveillance

RECENT LRG DATA

0
Patients in LRG Registry
0%
of Patient Registry members know their mutation
0
Total # of Tissue
0%
of LRG members know their Risk of Recurrence

Update your Patient Registry Information.

Join The Life Raft Group.

Available GIST clinical trials.

Search our database of GIST Specialists.

Dr. Monica Anderson

Dr. Monica Anderson

Diagnosed in 2012 with Adult GIST.

Marc Wasserman

Marc Wasserman

Diagnosed in 2006 with Adult GIST.

Bella Rocco

Bella Rocco

Diagnosed in 2009 with Pediatric
(SDH-Deficient) GIST.

HELP US SAVE LIVES

The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help, we always need patient tissue and data in our registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.

SHARE YOUR DATA
DONATE TO THE LRG
VOLUNTEER YOUR TIME
CONTRIBUTE YOUR TISSUE
  • The Temozolomide Trial for SDH-deficient GIST Patients

LRG Webcast Series: Updates on the Temozolomide Trial

By |September 16th, 2019|

Dr. Jason Sicklick of Moores Cancer Center at the University of California San Diego talks about the Phase II study of Temozolomide (TMZ) in advanced SDH-mutant/deficient GIST, a new study available to patients with SDH-deficient GIST.

  • GIST Awareness Day Logo

GIST Awareness Day – Mexico

By |August 30th, 2019|

GIST Awareness Day in Mexico, 2019. GAD began in 2014 by The Life Raft Group, to raise awareness on GIST worldwide.

  • GIST Awareness Day Logo

GIST Awareness Day – Kenya

By |August 30th, 2019|

GIST Awareness Day in Kenya, 2019. GAD began in 2014 by The Life Raft Group, to raise awareness on GIST worldwide.

  • GIST Awareness Day Logo

GIST Awareness Day – Spain

By |August 30th, 2019|

GIST Awareness Day in Spain, 2019. GAD began in 2014 by The Life Raft Group, to raise awareness on GIST worldwide.

  • GIST Awareness Day Logo

GIST Awareness Day – Brazil

By |August 30th, 2019|

GIST Awareness Day in Brazil, 2019. GAD began in 2014 by The Life Raft Group, to raise awareness on GIST worldwide.

  • GIST Awareness Day Logo

GIST Awareness Day – Chile

By |August 30th, 2019|

GIST Awareness Day in Chile, 2019. GAD began in 2014 by The Life Raft Group, to raise awareness on GIST worldwide.

GDOL Ottawa logo

GIST Day of Learning – Ottawa

September 28 @ 9:00 AM - 4:30 PM

Night to Fight Cancer Fundraiser

Night to Fight Cancer 2019

October 24 @ 6:00 PM

NJ GIST Support Group Meeting Banner

NJ Support Group Meeting

November 2 @ 10:00 AM - 12:00 PM

GDOL 2019 Tampa

GDOL Tampa 2020

March 28, 2020 @ 8:00 AM - 5:00 PM

Life Fest 2020 New Orleans

Life Fest New Orleans

July 10, 2020 - July 12, 2020

Keep up with the latest news, events, and opportunities to help.

To contact The Life Raft Group, please call 973-837-9092