The Life Raft Group2019-03-22T08:39:28-04:00

OUR MISSION:

Enhancing survival and quality of life for people living with GIST through patient-powered research, education and empowerment, and global advocacy efforts.

These are our Core Values:

What’s in the Patient Section?

What’s in the Powered Section?

What’s in the For Life Section?

Real World Evidence In Action

PROJECT InterGR

Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. Project InterGR, the LRG’s approach to research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.

GIST Collaborative Tissue Bank
GIST Trials Database
The Life Raft Group Patient Registry
SideEQ
Project Surveillance

RECENT LRG DATA

0
Patients in LRG Registry
0%
of Patient Registry members know their mutation
0
Total # of Tissue
0%
of LRG members know their Risk of Recurrence

Update your Patient Registry Information.

Update

Join The Life Raft Group.

Join Our Community

Available GIST clinical trials.

Learn About Trials

Search our database of GIST Specialists.

View Specialists
Dr. Monica Anderson

Dr. Monica Anderson

Diagnosed in 2012 with Adult GIST.

Marc Wasserman

Marc Wasserman

Diagnosed in 2006 with Adult GIST.

Bella Rocco

Bella Rocco

Diagnosed in 2009 with Pediatric
(SDH-Deficient) GIST.

HELP US SAVE LIVES

The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help, we always need patient tissue and data in our registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.

SHARE YOUR DATA
DONATE TO THE LRG
VOLUNTEER YOUR TIME
CONTRIBUTE YOUR TISSUE
  • LRG Science Thumbnail

The Life Raft Group Research Model

PDF is available of LRG Science to print here. Real World Evidence in Action Although targeted medicine has brought about immense progress in cancer treatment, there are still enormous challenges [...]

  • family frolicing

Survive & Thrive with GIST

By |February 28th, 2019|

Ten Tips for Life with a Rare Disease The challenges of living with GIST are many - here are our top [...]

  • Marathon runner

GIST is a Marathon, Not a Sprint

By |February 21st, 2019|

Overall survival in GIST patients has improved dramatically over the years. In 2019, the median Overall Survival (OS) is over 12 [...]

GDOL Vancouver logo

GIST Day of Learning – Vancouver

April 27 @ 9:00 AM - 4:00 PM

GIST DO IT NJ

May 4 @ 8:00 AM - 11:00 AM

Keep up with the latest news, events, and opportunities to help.

To contact The Life Raft Group, please call 973-837-9092

Recent Posts

Upcoming Events

  1. GDOL Vancouver logo

    GIST Day of Learning – Vancouver

    April 27 @ 9:00 AM - 4:00 PM
  2. GIST DO IT NJ

    May 4 @ 8:00 AM - 11:00 AM