Our mission is to enhance the survival and quality of life for people living with GIST through patient-powered research, education and empowerment, and global advocacy efforts.

What’s in the Patient Section?

What’s in the Powered Section?

What’s in the Science section?

What’s in the For Life Section?

Real World Evidence In Action

Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.


Patients in LRG Registry
of Patient Registry members know their mutation
Total # of Tissue
of LRG members know their Risk of Recurrence

Update your GIST Patient Registry Information.


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Available GIST clinical trials.

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Search our database of GIST Specialists.

View Specialists

Dr. Monica Anderson

Diagnosed in 2012 with Adult GIST.

Marc Wasserman

Diagnosed in 2006 with Adult GIST.

Bella Rocco

Diagnosed in 2009 with Pediatric
(SDH-Deficient) GIST.


The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.

  • LRG Science Thumbnail

Survival in Advanced GIST Has Improved Over Time – LRG Science

In this issue of LRG Science, the relationship between overall survival (OS) and access to treatments after imatinib failure is explored. In 2019, the LRG published this research in Clinical Sarcoma Research and this issue includes commentary from experts. LRG Science endeavors to be a respected source of timely, science-based information built on real world data designed for those whose focus is to increase patient survival from GIST and other cancers.

  • Henzo Kenya GIST 101 audience photo

GIST Knows No Boundaries

By |September 21st, 2020|

On September 17, 2020, the Life Raft Group invited Dr. David Josephy, President of GIST Sarcoma Life Raft Group Canada, to present his highly acclaimed GIST 101: GIST Biology, Genetics and Pathology - an overview of the biology, genetics and pathology of GIST - for the members of Henzo Kenya, a patient advocacy group for GIST and CML patients in Kenya, Africa.

  • Piga Fernandez at La Moneda


By |September 21st, 2020|

On Wednesday, August 26, 2020, LRG Global Consultant & Executive Director of Fundación GIST Chile, Piga Fernández, (GIST survivor & advocate), attended ae climatic event at Palacio de La Moneda (La Moneda), where the President Piñera of Chile took the final steps to sign the 'Ley de Cáncer Claudio Mora' guaranteeing healthcare protections for Chilean cancer patients.

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New Horizons GIST 2020

By |September 18th, 2020|

The New Horizons GIST 2020 Virtual Meeting kicked off on Thursday September 10th at 8am EST. Meeting since 2003, these patient advocates for various cancers split off to a GIST-only meeting several years ago. This year’s meeting, originally planned for Berlin, Germany, was held virtually September 10-12th.

  • LRG International GIST Patient Organizations Meeting

LRG Hosts Virtual Meeting for Global GIST Advocates

By |September 8th, 2020|

On Friday, August 21, The Life Raft Group hosted a virtual meeting entitled “GIST Patient Advocacy during the 'New Normal' of the COVID 19 Pandemic.” Designed for representatives from global GIST advocacy organizations, its purpose was to provide a forum for the international community to discuss challenges they are facing, and to share experiences and best practices.

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Virtual Life Fest 2020: SDH Panel Summary

By |August 31st, 2020|

Over fifty participants attended a virtual meeting of SDH Experts in honor of GIST Awareness Day, July 13th, during Virtual Life Fest 2020. Questions were presented to the panel which included One of the first questions asked was “what specifically are your most challenging research hurdles and how can we, as patients and patient advocates from around the world help move research forward?”

GIST DO IT Walk Verona, NJ

GIST DO IT Walk – Verona, NJ

September 26 @ 8:00 AM

GDOL 2019 Tampa

GDOL Tampa 2020 – Virtual

October 10 @ 9:00 AM - 11:00 AM

GDOL Denver 2020 Virtual

GDOL Denver 2020 – Virtual

October 10 @ 3:00 PM - 5:00 PM

Margarita Raygada Genetics 101

LRG Webcast: Genetics 101

October 20 @ 12:00 PM

Keep up with the latest news, events, and opportunities to help.


To contact The Life Raft Group, please call 973-837-9092