The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.

Real World Evidence In Action

Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.


Patients in LRG Registry
of Patient Registry members know their mutation
Total # of Tissue
of LRG members know their Risk of Recurrence

Update your GIST Patient Registry Information.

Join The Life Raft Group.

Available GIST clinical trials.

Search our database of GIST Specialists.

Dr. Monica Anderson

Dr. Monica Anderson

Diagnosed in 2012 with Adult GIST.

Marc Wasserman

Marc Wasserman

Diagnosed in 2006 with Adult GIST.

Bella Rocco

Bella Rocco

Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.


The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.

#ThrivingTogether…living with GIST

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Our theme for this year is Thriving Together and we are going to illustrate that concept throughout the year by sharing the celebrations, triumphs, and milestones that our community is experiencing while living with GIST.

Keep up with the latest news, events, and opportunities to help.

To contact The Life Raft Group, please call 973-837-9092