Our mission is to enhance the survival and quality of life for people living with GIST through patient-powered research, education and empowerment, and global advocacy efforts.
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Marc Wasserman
Diagnosed in 2006 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-Deficient) GIST.
Breaking News: Additional Commentary for “It’s Time to Rethink Placebos in Advanced GIST” – LRG Science
In this issue of LRG Science, we present additional commentary on our Sept. issue: "It's Time to Rethink Placebos in Advanced GIST".
Partnership for Survival – Treating the Rarest of the Rare
Our Rare Disease Day offering is a whitepaper titled 'Partnership for Survival – Treating the Rarest of the Rare' detailing how a collaboration with the NIH has become a model for other advocacy groups and researchers.
Let the Buyer Beware: Challenges with Online Pharmacies
Recent articles have shed light on an issue of concern about counterfeits for patients who take imatinib myselate as part of their treatment for GIST.
Be a Part of the GIST Mosaic
GISTers, please consider participating in this awesome mosaic honoring all GIST thrivers that we're partnering with CogentBiosciences to create. Let's tell the world about GIST!
Life Fest New Orleans 2022: Sights & Sounds
Life Fest has a roster of great GIST education programming but there's also time at the day's end to indulge in some local activities. Here's a list of some of the top attractions in NOLA.
Did You Know? The LRG Hosts Monthly Virtual GISTer & Caregiver Support Groups
The Life Raft Group hosts two monthly support groups - one specifically for GISTers and the other for Caregivers which meet twice a month- via Zoom.
Life Fest New Orleans 2022: Where to Eat?
Life Fest has a roster of great GIST education programming but there's also time at the day's end to indulge in some local cuisine. Here's a list of some of the top culinary experiences in NOLA.
Ten Reasons to Attend Life Fest New Orleans 2022!
It’s time to get ready for our Life Fest celebration in New Orleans! Here are the top ten reasons to attend.
LRG Staff Commentary on ASCO22 Presentations/Posters
The Life Raft Group Data Management & Research and Communications Team attended remotely to gain knowledge of current research in GIST and to track breaking news and social media networking. In this post, we present commentary on several presentations and posters.
GLOBAL PARTNERS
