OUR MISSION:
Enhancing survival and quality of life for people living with GIST through patient-powered research, education and empowerment, and global advocacy efforts.
These are our Core Values:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
PROJECT InterGR
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. Project InterGR, the LRG’s approach to research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Update your Patient Registry Information.
Join The Life Raft Group.
Available GIST clinical trials.
Search our database of GIST Specialists.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Marc Wasserman
Diagnosed in 2006 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-Deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help, we always need patient tissue and data in our registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
The Life Raft Group Research Model
PDF is available of LRG Science to print here. Real World Evidence in Action Although targeted medicine has brought about immense progress in cancer treatment, there are still enormous challenges [...]
Jonathan Trent, MD, GIST Specialist, Visits Colombia for the First Symposium of Personalized Medicine and Immunotherapy
By Jairo Becerra, Vice President, Fundación GIST Colombia Left to right: Dr. Jorge Otero (Oncologist), Jairo Becerra, (Vice President Fundación [...]
Patient of the Month for March: Cynthia Pearce
As part of our Faces of Courage Series, we are featuring a patient story on the 13th of each month. Why [...]
National Integrated Cancer Control Act Approved in the Philippines
WE DID IT! National Integrated Cancer Control Act is Approved! Contributed by Rod Padua / President, Touched By Max PHILIPPINES In [...]
Survive & Thrive with GIST
Ten Tips for Life with a Rare Disease The challenges of living with GIST are many - here are our top [...]
Pediatric & SDH-Deficient GIST Consortium Update
Setting the Pace for the Future In July of 2018 at Life Fest, The Life Raft Group brought together a team [...]
A Conversation with Breelyn Wilky, M.D.
Dr. Breelyn Wilky answering questions on a panel of GIST experts at Life Fest Miami, 2018. Colorado, Clinical Trials [...]
Crossing the Finish Line
I never thought that I would be sitting at the same table with Senators from my country while voting for a [...]
GIST is a Marathon, Not a Sprint
Overall survival in GIST patients has improved dramatically over the years. In 2019, the median Overall Survival (OS) is over 12 [...]
