Our mission is to enhance the survival and quality of life for people living with GIST through patient-powered research, education and empowerment, and global advocacy efforts.

What’s in the Patient Section?

What’s in the Powered Section?

What’s in the Science section?

What’s in the For Life Section?

Real World Evidence In Action

Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.

RECENT LRG DATA

0
Patients in LRG Registry
0%
of Patient Registry members know their mutation
0
Total # of Tissue
0%
of LRG members know their Risk of Recurrence

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Available GIST clinical trials.

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Search our database of GIST Specialists.

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Dr. Monica Anderson

Dr. Monica Anderson

Diagnosed in 2012 with Adult GIST.

Marc Wasserman

Marc Wasserman

Diagnosed in 2006 with Adult GIST.

Bella Rocco

Bella Rocco

Diagnosed in 2009 with Pediatric
(SDH-Deficient) GIST.

HELP US SAVE LIVES

The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.

SHARE YOUR DATA
DONATE TO THE LRG
VOLUNTEER YOUR TIME
CONTRIBUTE YOUR TISSUE
  • holiday campaign 2021 4x3

GIST Wishes!

By |December 22nd, 2021|

Here are some #GISTWishes from our LRG Community shared in our December 2021 newsletter.

Clinical Trials Update – December 2021

By |December 22nd, 2021|

December 2021 - In this summary, we have highlighted recent clinical trials that are still recruiting in the U.S. which investigate potential treatments for GIST patients.

  • fairy lights holiday photo

Navigating the Holidays

By |December 14th, 2021|

Holidays can be a challenge. There may be pressure to recreate a ‘Norman Rockwellesque’ experience with the perfect turkey and many happy, family photos in holiday-themed pajamas. Here are some tips to deal with the stress.

GDOL Arizona 2021 banner

GDOL Arizona – Virtual

January 27 @ 2:00 PM - 4:00 PM

GISTer SUPPORT GROUP

Virtual GISTer Support Group

February 1 @ 6:00 PM - 7:30 PM

Twice Monthly Caregiver Support Group

Virtual Caregiver Support Group

February 2 @ 1:00 PM - 2:00 PM

Twice Monthly Caregiver Support Group

Virtual Caregiver Support Group

February 16 @ 1:00 PM - 2:00 PM

Keep up with the latest news, events, and opportunities to help.

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To contact The Life Raft Group, please call 973-837-9092

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