Our mission is to enhance the survival and quality of life for people living with GIST through patient-powered research, education and empowerment, and global advocacy efforts.
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Marc Wasserman
Diagnosed in 2006 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
#ThrivingTogether…living with GIST
#ThrivingTogether
Our theme for this year is Thriving Together and we are going to illustrate that concept throughout the year by sharing the celebrations, triumphs, and milestones that our community is experiencing while living with GIST.
Night to Fight Cancer 2023 Photo Gallery
Our 20th Annual Night to Fight Cancer (NTFC) fundraiser was held at Midtown Loft & Terrace in NYC on October 19, 2023. View the photo gallery here.
Cooking to Fight Cancer 2023 Photo Gallery
The Cooking to Fight Cancer fundraiser, created by Board Member and GIST Mentor John Abrams was held at Uncorked Kitchen in Aurora, Colorado on Saturday, October 28th.
Know the GIST – Join the Battle with this Birthday Fundraiser!
GIST Mentor David Wolfe is celebrating his birthday this year by holding a fundraiser. Join the battle to know the GIST and raise funds towards GIST research.
What’s Cooking at the “Cooking to Fight Cancer” FUNdraiser
John Abrams' Cooking to Fight Cancer Culinary FUNdraising event is only one month away! Read about the host restaurant, scan the menu, and register to join John today.
Summary of Phase 3 INTRIGUE Trial Published
This summary article helps explain the results of Deciphera's Phase 3 INTRIGUE trial as published in Future Medicine, authored by Marina Symcox & Robin L Jones.
GLOBAL PARTNERS
