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The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.

Additional Programs of The Life Raft Group:

Real World Evidence In Action

Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.

RECENT LRG DATA

0
Patients in LRG Registry
0%
of Patient Registry members know their mutation
0
Total # of Tissue
0%
of LRG members know their Risk of Recurrence

Update your GIST Patient Registry Information.

Join The Life Raft Group.

Available GIST clinical trials.

Search our database of GIST Specialists.

Dr. Monica Anderson

Dr. Monica Anderson

Diagnosed in 2012 with Adult GIST.

Marc Wasserman

Marc Wasserman

Diagnosed in 2006 with Adult GIST.

Bella Rocco

Bella Rocco

Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.

HELP US SAVE LIVES

The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.

  • fairy lights holiday photo

Coping During the Holidays

By |November 22nd, 2024|

The holiday season is a time filled with festive gatherings, family traditions, and social expectations, but it can be challenging for individuals with a rare disease. Read more for some tips to have a joyful, peaceful season.

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Give Hope for the Holidays!

By |November 12th, 2024|

For rare disease patients, hope becomes more than a feeling; it’s a vital part of the journey. During the holidays, this sense of hope carries a unique importance. Our Hope for the Holidays campaign will bring you stories of hope & resilience.

Keep up with the latest news, events, and opportunities to help.

To contact The Life Raft Group, please call 973-837-9092

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