The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Update your Patient Registry Info.
Join The Life Raft Group.
Current GIST Clinical Trials.
Search the GIST Specialist Database.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
Reflections from Life Fest
Life Fest 2026 was a powerful reminder of what happens when our GIST community comes together and moves in the same direction.
Sarcoma Patients Walk for Hope in Nashville!
The GIST & liposarcoma community came together in Nashville for a Walk for Hope, celebrating hope, strength, and connection during Life Fest 2026.
Rob Taylor Shares His Story with Black Health Matters
Black Health Matters hosted a conversation on rare cancers and LRG Board Member Rob Taylor shared his GIST journey.
A Tribute to Teena Petersohn
A heartfelt tribute was given to outgoing LRG Board Member Teena Petersohn at Life Fest 2026, celebrating her dedication and lasting impact on the GIST community.
Pediatric & SDH-Deficient GIST Consortium Meets
The Consortium met recently to review current projects & goals focused on increasing research & advancing treatments for SDH-def GIST.
Patient of the Month – August 2026: Betty Bowen
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Betty Owens shares her story.
Water of Life 2026 Recap
Our Water of Life whisky tasting fundraiser was a celebration of exceptional whisky, generosity, and support for the GIST community.
GIST Awareness Day – Celebrating Life
GIST Awareness Day is celebrated on July 13, started by The Life Raft Group in 2014 to bring awareness and raise funds for GIST research.
Keep up with the latest news, events, and opportunities to help.
To contact The Life Raft Group, please call 973-837-9092
PARTNERS & AFFILIATIONS
