Our mission is to enhance the survival and quality of life for people living with GIST through patient-powered research, education and empowerment, and global advocacy efforts.

What’s in the Patient Section?

What’s in the Powered Section?

What’s in the Science section?

What’s in the For Life Section?

Real World Evidence In Action

Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.


Patients in LRG Registry
of Patient Registry members know their mutation
Total # of Tissue
of LRG members know their Risk of Recurrence

Update your GIST Patient Registry Information.


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Available GIST clinical trials.

Learn About Trials

Search our database of GIST Specialists.

View Specialists

Dr. Monica Anderson

Diagnosed in 2012 with Adult GIST.

Marc Wasserman

Diagnosed in 2006 with Adult GIST.

Bella Rocco

Diagnosed in 2009 with Pediatric
(SDH-Deficient) GIST.


The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.

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Survival in Advanced GIST Has Improved Over Time – LRG Science

In this issue of LRG Science, the relationship between overall survival (OS) and access to treatments after imatinib failure is explored. In 2019, the LRG published this research in Clinical Sarcoma Research and this issue includes commentary from experts. LRG Science endeavors to be a respected source of timely, science-based information built on real world data designed for those whose focus is to increase patient survival from GIST and other cancers.

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New Horizons GIST 2020

By |September 18th, 2020|

The New Horizons GIST 2020 Virtual Meeting kicked off on Thursday September 10th at 8am EST. Meeting since 2003, these patient advocates for various cancers split off to a GIST-only meeting several years ago. This year’s meeting, originally planned for Berlin, Germany, was held virtually September 10-12th.

  • LRG International GIST Patient Organizations Meeting

LRG Hosts Virtual Meeting for Global GIST Advocates

By |September 8th, 2020|

On Friday, August 21, The Life Raft Group hosted a virtual meeting entitled “GIST Patient Advocacy during the 'New Normal' of the COVID 19 Pandemic.” Designed for representatives from global GIST advocacy organizations, its purpose was to provide a forum for the international community to discuss challenges they are facing, and to share experiences and best practices.

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Virtual Life Fest 2020: SDH Panel Summary

By |August 31st, 2020|

Over fifty participants attended a virtual meeting of SDH Experts in honor of GIST Awareness Day, July 13th, during Virtual Life Fest 2020. Questions were presented to the panel which included One of the first questions asked was “what specifically are your most challenging research hurdles and how can we, as patients and patient advocates from around the world help move research forward?”

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Daily Mental Energy Checklist

By |July 30th, 2020|

Dealing daily with a pandemic along with GIST can be a daunting task and it may feel difficult sometimes to even face a new day. Paying attention to your mental health is an important part of everyday self-care. We have composed a Daily Checklist to help you consciously acknowledge where you are at the beginning of your day, work with those feelings, and reflect on your successes.

Women in Sarcoma

Women in Sarcoma: Cancer Warriors

September 24 @ 2:00 PM

GIST DO IT Walk Verona, NJ

GIST DO IT Walk – Verona, NJ

September 26 @ 8:00 AM

GDOL 2019 Tampa

GDOL Tampa 2020 – Virtual

October 10 @ 9:00 AM - 11:00 AM

GDOL Denver 2020 Virtual

GDOL Denver 2020 – Virtual

October 10 @ 3:00 PM - 5:00 PM

Margarita Raygada Genetics 101

LRG Webcast: Genetics 101

October 20 @ 12:00 PM

Keep up with the latest news, events, and opportunities to help.


To contact The Life Raft Group, please call 973-837-9092