Our mission is to enhance the survival and quality of life for people living with GIST through patient-powered research, education and empowerment, and global advocacy efforts.
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Marc Wasserman
Diagnosed in 2006 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-Deficient) GIST.
The Life Raft Group Medical Advisory Board
The Life Raft Group is pleased to present the members of the LRG 2021 Medical Advisory Board. Members will play a crucial role in offering expert opinions on research and medical developments.
Partnership for Survival – Treating the Rarest of the Rare
Our Rare Disease Day offering is a whitepaper titled 'Partnership for Survival – Treating the Rarest of the Rare' detailing how a collaboration with the NIH has become a model for other advocacy groups and researchers.
It’s Time: The Life Raft Group Biomarker Testing Campaign – Empower Patients
As part of our 'It's Time' campaign, we are sharing Blueprint Medicines's tools for talking to your doctor about biomarker/mutational testing.
It’s Time: The Life Raft Group Biomarker Testing Campaign – Outcomes
If you know your mutation, you have a better chance of getting the most effective treatment more quickly, and increasing your survival time. Knowledge makes an empowered patient and an empowered patient asks and researches their disease.
¿Qué debo hacer si presento fátiga?
"¿Qué debo hacer si presento fátiga?" aportado por Fundación GIST México.
Annual Report 2020
Our theme for 2020 was Hope. 2020 presented a challenge to us all, but most especially to our patients and caregivers who are seeking to survive this rare cancer. In 2020, The Life Raft Group needed to provide a lifeline to our community, and to offer them hope in the form of increased support as we navigate the challenges of living in a COVID-19 world. #GISTHope
It’s Time: The Life Raft Group Biomarker Testing Campaign – Effective Treatment Access
It's time to shorten the time to effective treatment access. Fundación GIST Chile shares their story.
NIH Pediatric & Wildtype GIST Clinic 2021 Applications Are Open!
The LRG will be collaborating with the NIH again in 2021 to hold the Virtual GIST Tumor Board in place of the NIH's Pediatric & Wildtype GIST Clinic normally held in the DC area. Applications to have cases reviewed are now open.
It’s Time: The Life Raft Group Biomarker Testing Campaign – Precise Diagnosis
It's time to to recognize the value of a more precise diagnosis. GISTer Jon Treder shares his story.
GLOBAL PARTNERS
