Our mission is to enhance the survival and quality of life for people living with GIST through patient-powered research, education and empowerment, and global advocacy efforts.

What’s in the Patient Section?

What’s in the Powered Section?

What’s in the Science section?

What’s in the For Life Section?

Real World Evidence In Action

Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.

RECENT LRG DATA

0
Patients in LRG Registry
0%
of Patient Registry members know their mutation
0
Total # of Tissue
0%
of LRG members know their Risk of Recurrence

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Available GIST clinical trials.

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Search our database of GIST Specialists.

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Dr. Monica Anderson

Dr. Monica Anderson

Diagnosed in 2012 with Adult GIST.

Marc Wasserman

Marc Wasserman

Diagnosed in 2006 with Adult GIST.

Bella Rocco

Bella Rocco

Diagnosed in 2009 with Pediatric
(SDH-Deficient) GIST.

HELP US SAVE LIVES

The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.

SHARE YOUR DATA
DONATE TO THE LRG
VOLUNTEER YOUR TIME
CONTRIBUTE YOUR TISSUE
  • LRG News Icon

Collaborative Effort Produces Position Paper on Need for Advanced Biomarker Testing

By |August 15th, 2022|

The Life Raft Group was recently part of team of authors on a collaborative position paper entitled 'Undetected KIT and PDGFRA mutations: an under-recognised cause of gastrointestinal stromal tumours (GISTs) incorrectly classified as wild-type published' in Pathology: The Journal of the Royal College of Pathologists of Australia.

Be a Part of the GIST Mosaic

By |July 22nd, 2022|

GISTers, please consider participating in this awesome mosaic honoring all GIST thrivers that we're partnering with CogentBiosciences to create. Let's tell the world about GIST!  

Twice Monthly Caregiver Support Group

Virtual Caregiver Support Group

October 5 @ 1:00 PM - 2:00 PM

florida support group image

Florida Support Group

October 10 @ 6:00 PM

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Virtual GISTer Support Group

October 18 @ 6:00 PM - 7:30 PM

Twice Monthly Caregiver Support Group

Virtual Caregiver Support Group

October 19 @ 1:00 PM - 2:00 PM

Keep up with the latest news, events, and opportunities to help.

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To contact The Life Raft Group, please call 973-837-9092

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