Our mission is to enhance the survival and quality of life for people living with GIST through patient-powered research, education and empowerment, and global advocacy efforts.
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Marc Wasserman
Diagnosed in 2006 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-Deficient) GIST.
Breaking News: Additional Commentary for “It’s Time to Rethink Placebos in Advanced GIST” – LRG Science
In this issue of LRG Science, we present additional commentary on our Sept. issue: "It's Time to Rethink Placebos in Advanced GIST".
Partnership for Survival – Treating the Rarest of the Rare
Our Rare Disease Day offering is a whitepaper titled 'Partnership for Survival – Treating the Rarest of the Rare' detailing how a collaboration with the NIH has become a model for other advocacy groups and researchers.
Annual Report 2021
Our theme for 2021 was It's Time. The year challenged us all, but most especially our patients and caregivers who were striving to survive this rare cancer.
LRG Virtual Tumor Board Benefits Multiple Patients Globally
The first LRG Virtual Tumor Review Board for 2022 was held in April. There were four cases presented from all over the world, emphasizing the importance of virtual reviews.
GIST Day of Learning – GDOL Washington, DC 2022
The Life Raft Group held a virtual GIST Day of Learning (GDOL) in Washington, DC on April 27th, 2022. Top GIST specialists presented the latest on research and treatment options and provided a comprehensive review of the science behind GIST.
Genetics and Genomics Testing – An ECPC E-module
The European Cancer Patient Coalition (ECPC) has published an e-module on Genetics and Genomics Testing in English, German, French, Italian, and Spanish.
Preview of ASCO 2022 GIST Abstracts & Presentations
ASCO’s Annual Meeting will feature GIST in 18 abstracts, posters, panels, and presentations. Here is a preview of the topics that will be presented at the conference in June.
Highlight of the “Rare Cancers: Great Unmet Medical Needs” Conference
One highlight of the "Rare Cancers: Great Unmet Medical Needs" CME Conference, hosted by Columbia University Herbert Irving Comprehensive Cancer Center and co-sponsored by the Jed Ian Taxel Foundation for Rare Cancer Research, was a presentation on sarcomas by Dr. Gary K. Schwartz, member of the LRG Medical Advisory Board.
GIST Do It Walk NJ 2022 Gallery
Verona Park, Verona, NJ was the site of the third GIST Do It Walk NJ on April 9th. Patients, caregivers, family, friends and LRG staff gathered and walked to support #GISTresearch.
GLOBAL PARTNERS
