Our mission is to enhance the survival and quality of life for people living with GIST through patient-powered research, education and empowerment, and global advocacy efforts.

What’s in the Patient Section?

What’s in the Powered Section?

What’s in the Science section?

What’s in the For Life Section?

Real World Evidence In Action

Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.

RECENT LRG DATA

0
Patients in LRG Registry
0%
of Patient Registry members know their mutation
0
Total # of Tissue
0%
of LRG members know their Risk of Recurrence

Update your GIST Patient Registry Information.

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Join The Life Raft Group.

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Available GIST clinical trials.

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Search our database of GIST Specialists.

View Specialists
Dr. Monica Anderson

Dr. Monica Anderson

Diagnosed in 2012 with Adult GIST.

Marc Wasserman

Marc Wasserman

Diagnosed in 2006 with Adult GIST.

Bella Rocco

Bella Rocco

Diagnosed in 2009 with Pediatric
(SDH-Deficient) GIST.

HELP US SAVE LIVES

The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.

SHARE YOUR DATA
DONATE TO THE LRG
VOLUNTEER YOUR TIME
CONTRIBUTE YOUR TISSUE
  • Annual Report 2021

Annual Report 2021

By |May 18th, 2022|

Our theme for 2021 was It's Time. The year challenged us all, but most especially our patients and caregivers who were striving to survive this rare cancer.

  • GDOL Wash DC 2022 4x3

GIST Day of Learning – GDOL Washington, DC 2022

By |May 2nd, 2022|

The Life Raft Group held a virtual GIST Day of Learning (GDOL) in Washington, DC on April 27th, 2022. Top GIST specialists presented the latest on research and treatment options and provided a comprehensive review of the science behind GIST.

GIST Do It Walk NJ 2022 Gallery

By |April 11th, 2022|

Verona Park, Verona, NJ was the site of the third GIST Do It Walk NJ on April 9th. Patients, caregivers, family, friends and LRG staff gathered and walked to support #GISTresearch.

Twice Monthly Caregiver Support Group

Virtual Caregiver Support Group

June 1 @ 1:00 PM - 2:00 PM

New Support Group image

Virtual GISTer Support Group

June 7 @ 6:00 PM - 7:30 PM

Twice Monthly Caregiver Support Group

Virtual Caregiver Support Group

June 15 @ 1:00 PM - 2:00 PM

Updates from ASCO 2022

Updates from ASCO 2022

June 15 @ 7:00 PM - 8:00 PM

GDOL Toronto 2022 Hybrid

GDOL Toronto 2022 – Hybrid

June 18 @ 11:00 AM - 4:00 PM

Keep up with the latest news, events, and opportunities to help.

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To contact The Life Raft Group, please call 973-837-9092

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