Our mission is to enhance the survival and quality of life for people living with GIST through patient-powered research, education and empowerment, and global advocacy efforts.

What’s in the Patient Section?

What’s in the Powered Section?

What’s in the Science section?

What’s in the For Life Section?

Real World Evidence In Action

Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.


Patients in LRG Registry
of Patient Registry members know their mutation
Total # of Tissue
of LRG members know their Risk of Recurrence

Update your GIST Patient Registry Information.


Join The Life Raft Group.

Join Our Community

Available GIST clinical trials.

Learn About Trials

Search our database of GIST Specialists.

View Specialists
Dr. Monica Anderson

Dr. Monica Anderson

Diagnosed in 2012 with Adult GIST.

Marc Wasserman

Marc Wasserman

Diagnosed in 2006 with Adult GIST.

Bella Rocco

Bella Rocco

Diagnosed in 2009 with Pediatric
(SDH-Deficient) GIST.


The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.

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The LRG and NIH Collaborate on Virtual Tumor Boards to Review Challenging Cases

In this issue of LRG Science, we highlight the power of collaboration in medicine with a recap of the Virtual Tumor Board co-hosted with the NIH. Due to the pandemic, The Life Raft Group was asked to organize a Virtual Tumor Board to assure that challenging cases were presented in order to help the patients and their treating physicians develop an effective treatment plan.

Night to Fight Cancer Goes Online for 2021

By |March 3rd, 2021|

For the past 16 years The Life Raft Group has held its annual fundraising event Night to Fight Cancer hosted by Jerry Cudzil and Matt Knopman in NYC. Sadly, due to the COVID-19 Pandemic we made the hard decision to cancel this fundraising event. Instead we held it online with much success.

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Calling All GEMs!

By |February 25th, 2021|

Become a GEM today! Help us continue our programs and services for GIST patients by giving a monthly recurring donation. Every little bit helps us to further research and support GIST patients and caregivers.

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Cupcake Records Honors Lorie (Skelton) Perry

By |February 24th, 2021|

Lorie (Skelton) Perry was a GIST patient who passed away on November 11th, 2020.  She was known to her family for many things.  Among them were her warmth, her willingness to help others, and her talents as a baker. Her family wanted to find a way to honor her memory with a fundraiser.

Resources on Pregnancy & GIST

By |February 24th, 2021|

In our LRG community, we’ve seen many examples of GISTer family planning but also women who have found out they had GIST while they were pregnant. Here are some helpful resources

Keep up with the latest news, events, and opportunities to help.


To contact The Life Raft Group, please call 973-837-9092