Our mission is to enhance the survival and quality of life for people living with GIST through patient-powered research, education and empowerment, and global advocacy efforts.
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Marc Wasserman
Diagnosed in 2006 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-Deficient) GIST.
Breaking News: Additional Commentary for “It’s Time to Rethink Placebos in Advanced GIST” – LRG Science
In this issue of LRG Science, we present additional commentary on our Sept. issue: "It's Time to Rethink Placebos in Advanced GIST".
Partnership for Survival – Treating the Rarest of the Rare
Our Rare Disease Day offering is a whitepaper titled 'Partnership for Survival – Treating the Rarest of the Rare' detailing how a collaboration with the NIH has become a model for other advocacy groups and researchers.
GIST Wishes!
Here are some #GISTWishes from our LRG Community shared in our December 2021 newsletter.
An Exceptional Volunteer & Friend of the LRG: Chelsea Madia
Chelsea Madia has been an extraordinary volunteer and fundraiser for the LRG! We appreciate all she has done.
A Positive Spin for 2022 – Jimit Mody’s GIST Journey
Jimit Mody shares his GIST journey and how a positive attitude and determination keeps him going.
Clinical Trials Update – December 2021
December 2021 - In this summary, we have highlighted recent clinical trials that are still recruiting in the U.S. which investigate potential treatments for GIST patients.
Navigating the Holidays
Holidays can be a challenge. There may be pressure to recreate a ‘Norman Rockwellesque’ experience with the perfect turkey and many happy, family photos in holiday-themed pajamas. Here are some tips to deal with the stress.
The LRG 2021 Holiday Wish List
As we enter the holiday season, and our thoughts turn to the new year to come, we made a list of [...]
Patient of the Month for November: Americo Blancato
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Americo Blancato shares his story.
GLOBAL PARTNERS
