The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Update your Patient Registry Info.
Join The Life Raft Group.
Current GIST Clinical Trials.
Search the GIST Specialist Database.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
From Patient Registry to a International Scientific Conference
Our study on NF1-associated gastrointestinal stromal tumors was accepted for presentation at ASCO this year - this milestones highlights the power of patient registries.
Long-Term GIST Survivors Share Advice
Long-term GIST survivors shared insights on expert care, self-advocacy, and the power of community while living with GIST.
SPAGN Conference 2026
The SPAGN Conference 2026 emphasized the power of patient involvement, collaboration, and whole-person care in improving sarcoma treatment and support.
LRG Athletes for GIST Hit Milestones!
LRG Athletes Toni Pauwels and Edoardo Leone reached inspiring race milestones while using their journeys to support and raise awareness for the GIST community.
Adventure in Nashville – See the Sights & Sounds
Find adventure in Nashville! Explore the sights and sounds of Music City while you're at Life Fest 2026.
Life Fest Nashville is Calling You!
Every two years Life Fest brings patients, caregivers, and experts together for a powerful weekend of connection, education, and support. 2026 takes us to Nashville!
What 19 Years With GIST Has Taught Me
Ed shares his 19-year survivor journey of resilience, multiple surgeries, evolving treatments with the support of family, expert doctors, and advocacy resources that helped him continue moving forward with hope.
Miami Precision Biannual Conference
A meaningful reflection on connection, self-advocacy, and the power of community at the Miami Precision Biannual Conference.
Keep up with the latest news, events, and opportunities to help.
To contact The Life Raft Group, please call 973-837-9092
PARTNERS & AFFILIATIONS
