OUR MISSION:
Enhancing survival and quality of life for people living with GIST through patient-powered research, education and empowerment, and global advocacy efforts.
These are our Core Values:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
PROJECT InterGR
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. Project InterGR, the LRG’s approach to research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Update your Patient Registry Information.
Join The Life Raft Group.
Available GIST clinical trials.
Search our database of GIST Specialists.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Marc Wasserman
Diagnosed in 2006 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-Deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help, we always need patient tissue and data in our registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
Treatment Responses in SDH-deficient GIST – LRG Science
Patient-reported Treatment Responses in Known/Likely SDH-deficient GISTS: An Analysis of The Life Raft Group Observational Registry. This study highlights the very unique research role that defines The Life Raft Group.
Update on a New Clinical Trial Offered to Eligible GIST Patients
The INTRIGUE study is a Phase 3 clinical trial testing the investigational drug ripretinib (DCC-2618) for patients living with GIST that are no longer on imatinib due to progression or intolerance.
Patient of the Month for September: Eric Lindberg
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Eric Lindberg shares his story.
LRG Webcast Series: Updates on the Temozolomide Trial
Dr. Jason Sicklick of Moores Cancer Center at the University of California San Diego talks about the Phase II study of Temozolomide (TMZ) in advanced SDH-mutant/deficient GIST, a new study available to patients with SDH-deficient GIST.
Medicare 101: An Overview of the A, B, C, and Ds of Medicare
Kathy Sarmiento presents, The A B C’s of Medicare: Everything you need to know. Kathy explains everything from medicare costs and eligibility, to finding the right path for you.
GIST Awareness Day – Mumbai, India
Patient Support Group meeting on GIST Awareness Day in Mumbai, India, 2019.
GIST Awareness Day – Argentina, Guatemala, Honduras, Peru
GIST Awareness Day in Argentina, Guatemala, Honduras, and Peru, 2019. GAD began in 2014 by The Life Raft Group, to raise awareness on GIST worldwide.
GIST Awareness Day – Colombia
GIST Awareness Day in Colombia, 2019. GAD began in 2014 by The Life Raft Group, to raise awareness on GIST worldwide.
GIST Awareness Day – Brazil
GIST Awareness Day in Brazil, 2019. GAD began in 2014 by The Life Raft Group, to raise awareness on GIST worldwide.
GIST Awareness Day – Mexico
GIST Awareness Day in Mexico, 2019. GAD began in 2014 by The Life Raft Group, to raise awareness on GIST worldwide.
GIST Awareness Day – Kenya
GIST Awareness Day in Kenya, 2019. GAD began in 2014 by The Life Raft Group, to raise awareness on GIST worldwide.
GIST Awareness Day – Spain
GIST Awareness Day in Spain, 2019. GAD began in 2014 by The Life Raft Group, to raise awareness on GIST worldwide.
