Our mission is to enhance the survival and quality of life for people living with GIST through patient-powered research, education and empowerment, and global advocacy efforts.
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Marc Wasserman
Diagnosed in 2006 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-Deficient) GIST.
The Life Raft Group Medical Advisory Board
The Life Raft Group is pleased to present the members of the LRG 2021 Medical Advisory Board. Members will play a crucial role in offering expert opinions on research and medical developments.
Partnership for Survival – Treating the Rarest of the Rare
Our Rare Disease Day offering is a whitepaper titled 'Partnership for Survival – Treating the Rarest of the Rare' detailing how a collaboration with the NIH has become a model for other advocacy groups and researchers.
Feis Off! Water of Life Event Hosted by Dr. Matt Lurin
Festival Season is always a fun time in Scotland, and many folks make annual pilgrimages to some of their favorite distilleries including our own Water of Life Host, me, Matthew Lurin. However, in times of pandemics these festivals were cancelled and many fans were unable to take flights and drives and ferries to see their friends.
More Ways GIST Awareness Day Was Noted Globally in 2021!
GIST Awareness Day was marked globally July 13, 2021 by GISTers, family & caregivers, pharma, clinicians & physicians, and patient advocacy organization around the world.
Q&A with SDH Panel of Experts Yields Promise for the SDH-deficient GIST Community
The Life Raft Group celebrated GIST Awareness Day 2021 by holding an virtual, interactive Q&A session for SDH-deficient GIST patients with leading experts in the field.
GIST Do It Walk NJ 2021 Sponsorships Available!
GIST Do It Walk NJ is October 2 and you can be a sponsor for this event to further #GISTresearch and for exposure for your business.
‘It’s Time’ to Continue Our Message About Biomarker Testing!
So far in 2021, our 'It's Time' campaign has emphasized twelve important points concerning biomarker testing and the important role it plays in a GIST patient's journey. We will keep the momentum going with patient stories, webinars, and resource materials.
Las organizaciones de pacientes de América Latina celebran el Día de la Concientización del GIST 2021
Las organizaciones de pacientes de América Latina celebran el Día de la Concientización del GIST 2021.
Executive Director Scherzer Speaks at Advocacy Seminar on Chronic Disease Day
On Wednesday, July 14th, the LRG's Executive Director Norman J. Scherzer joined a renowned group of speakers for the Chronic Disease [...]
GLOBAL PARTNERS
