Our mission is to enhance the survival and quality of life for people living with GIST through patient-powered research, education and empowerment, and global advocacy efforts.
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Marc Wasserman
Diagnosed in 2006 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-Deficient) GIST.
Breaking News: Additional Commentary for “It’s Time to Rethink Placebos in Advanced GIST” – LRG Science
In this issue of LRG Science, we present additional commentary on our Sept. issue: "It's Time to Rethink Placebos in Advanced GIST".
Partnership for Survival – Treating the Rarest of the Rare
Our Rare Disease Day offering is a whitepaper titled 'Partnership for Survival – Treating the Rarest of the Rare' detailing how a collaboration with the NIH has become a model for other advocacy groups and researchers.
It’s Time to Tell The Stories: Our Good News – Giving Tuesday
Our Good News Holiday Campaign is the culmination of our year of "Time to Tell the Stories 2022." Today is Giving Tuesday!
It’s Time to Tell The Stories: Our Good News – Giving Tuesday All Year Long
Our Good News Holiday Campaign is the culmination of our year of "Time to Tell the Stories 2022." Giving Tuesday All Year Long!
It’s Time to Tell The Stories: Our Good News – Santy
Our Good News Holiday Campaign is the culmination of our year of "Time to Tell the Stories 2022." In this series, we celebrate the connections, the celebrations, the events and milestones that we’ve been privileged to be a part of this year. Santy DiSabatino shares on Giving Tuesdays.
It’s Time to Tell The Stories: Our Good News – Support
Our Good News Holiday Campaign is the culmination of our year of "Time to Tell the Stories 2022." We're celebrating Support Services this week.
It’s Time to Tell The Stories: Our Good News – Diana
Our Good News Holiday Campaign is the culmination of our year of "Time to Tell the Stories 2022." In this series, we celebrate the connections, the celebrations, the events and milestones that we’ve been privileged to be a part of this year. Diana Nieves shares about Support Services.
Our Latest Publication Focused on Mutational Testing
The LRG published "Barriers to mutational testing in patients with gastrointestinal stromal tumors (GIST) – a survey of Life Raft Group members" in BMC Gastroenterology, November 2022.
From Major Surgery to Metastases – Paul Mexcur’s Story
GISTer Paul Mexcur shares his story as a part of our Time to Tell the Stories 2022 campaign and shares an original poem as well.
GLOBAL PARTNERS
