Our mission is to enhance the survival and quality of life for people living with GIST through patient-powered research, education and empowerment, and global advocacy efforts.
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Marc Wasserman
Diagnosed in 2006 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-Deficient) GIST.
The Life Raft Group Medical Advisory Board
The Life Raft Group is pleased to present the members of the LRG 2021 Medical Advisory Board. Members will play a crucial role in offering expert opinions on research and medical developments.
Partnership for Survival – Treating the Rarest of the Rare
Our Rare Disease Day offering is a whitepaper titled 'Partnership for Survival – Treating the Rarest of the Rare' detailing how a collaboration with the NIH has become a model for other advocacy groups and researchers.
It’s Time: Precision Oncology
It's time to fully unleash the power of biomarker testing to support precision oncology - all GIST patients should have biomarker (mutational) testing for the best possible personalized treatment plan.
Colectivo GIST España – la importancia de conocer la mutación de tu gist – SDH – Abril 8, 2021
Lea el artículo para Colectivo GIST España sobre la importancia de conocer la mutación de tu gist - succinato deshidrogenasa - Abril 8, 2021
It’s Time: The Life Raft Group Biomarker Testing Campaign – It’s Time for Action
Understanding the role of mutations and biomarker testing is one of most important things patients must learn. Uncovering the driving force behind each individual’s tumors is not just important, it is critical. This video shows the action steps of our It's Time campaign.
Colectivo GIST España – la importancia de conocer la mutación de tu gist – Abril 6, 2021
Abril 6, 2021 No nos cansamos de decirlo: la importancia de conocer la mutación de tu gist para optimizar [...]
Thank You for our Major Donor Support During the Pandemic
We took some time to reflect on all we have done virtually as an organization throughout the year. In the midst of this reflection, we wanted to take a breath and say a special thank you to our Major Donors.
Thank You to Our Newest GEMs!
Our GEM Donor Program has a group of new donors that will help the LRG continue the work we do with patients and #GISTresearch. Our thanks go out to our newest GEMs!
Patient of the Month for March: Kamel Ahmed
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Kamel Ahmed shares his story.
GLOBAL PARTNERS
