Our mission is to enhance the survival and quality of life for people living with GIST through patient-powered research, education and empowerment, and global advocacy efforts.

What’s in the Patient Section?

What’s in the Powered Section?

What’s in the Science section?

What’s in the For Life Section?

Real World Evidence In Action

Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.

RECENT LRG DATA

0
Patients in LRG Registry
0%
of Patient Registry members know their mutation
0
Total # of Tissue
0%
of LRG members know their Risk of Recurrence

Update your GIST Patient Registry Information.

Update

Join The Life Raft Group.

Join Our Community

Available GIST clinical trials.

Learn About Trials

Search our database of GIST Specialists.

View Specialists
Dr. Monica Anderson

Dr. Monica Anderson

Diagnosed in 2012 with Adult GIST.

Marc Wasserman

Marc Wasserman

Diagnosed in 2006 with Adult GIST.

Bella Rocco

Bella Rocco

Diagnosed in 2009 with Pediatric
(SDH-Deficient) GIST.

HELP US SAVE LIVES

The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.

SHARE YOUR DATA
DONATE TO THE LRG
VOLUNTEER YOUR TIME
CONTRIBUTE YOUR TISSUE

It’s Time to Tell The Stories: Our Good News – Kay

By |December 5th, 2022|

Our Good News Holiday Campaign is the culmination of our year of "Time to Tell the Stories 2022." In this series, we celebrate the connections, the celebrations, the events and milestones that we’ve been privileged to be a part of this year. Kay Stolzer shares about LRG Events.

It’s Time to Tell The Stories: Our Good News – Santy

By |November 28th, 2022|

Our Good News Holiday Campaign is the culmination of our year of "Time to Tell the Stories 2022." In this series, we celebrate the connections, the celebrations, the events and milestones that we’ve been privileged to be a part of this year. Santy DiSabatino shares on Giving Tuesdays.

It’s Time to Tell The Stories: Our Good News – Diana

By |November 21st, 2022|

Our Good News Holiday Campaign is the culmination of our year of "Time to Tell the Stories 2022." In this series, we celebrate the connections, the celebrations, the events and milestones that we’ve been privileged to be a part of this year. Diana Nieves shares about Support Services.

New Support Group image

Virtual GISTer Support Group

December 6 @ 6:00 PM - 7:30 PM

Twice Monthly Caregiver Support Group

Virtual Caregiver Support Group

December 7 @ 1:00 PM - 2:00 PM

florida support group image

Florida Support Group

December 12 @ 6:00 PM

Keep up with the latest news, events, and opportunities to help.

Subscribe

To contact The Life Raft Group, please call 973-837-9092

GLOBAL PARTNERS