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  • International
    • International Resources
    • International GIST Specialists List
    • International Patient Organizations
    • International Liaisons
    • International Partnerships and Collaborations
    • International News
  • What is GIST?
    • Patient Resource Toolkit
    • Understanding GIST
    • Types of GIST
      • KIT/PDGFRa Mutant GIST
      • SDH-Deficient GIST
      • Familial GIST
      • eGISTs
    • GIST Diagnosis
    • Risk of Recurrence
    • Mutations & Mutational Testing
    • Treatments for GIST
    • Resistant GIST
    • Managing GIST
    • GIST Education
  • About LRG
    • Mission & Vision
    • Our Team
    • Our Board of Directors
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  • Get Support
    • Patient Resource Toolkit
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    • GIST Specialists List US
    • Join Our Community
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  • International
    • International Resources
    • International GIST Specialists List
    • International Patient Organizations
    • International Liaisons
    • International Partnerships and Collaborations
    • International News
  • What is GIST?
    • Patient Resource Toolkit
    • Understanding GIST
    • Types of GIST
      • KIT/PDGFRa Mutant GIST
      • SDH-Deficient GIST
      • Familial GIST
      • eGISTs
    • GIST Diagnosis
    • Risk of Recurrence
    • Mutations & Mutational Testing
    • Treatments for GIST
    • Resistant GIST
    • Managing GIST
    • GIST Education
  • About LRG
    • Mission & Vision
    • Our Team
    • Our Board of Directors
    • Medical Advisory Board
    • The LRG Story
    • Our Members
    • In Memoriam
    • Events
    • Volunteer
    • Employment
    • LRG Store
    • Photo Galleries
    • Newsletter Archive
  • Get Support
    • Patient Resource Toolkit
    • GIST Clinical Trials
    • GIST Specialists List US
    • Join Our Community
    • Financial Aid for GIST Patients
    • Find a Support Group
    • GIST Mentor Program
    • Coping With GIST
    • Important Links
    • Contact Us
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Important Links

Home/Important Links
Important LinksLRG Team2020-07-07T08:11:58-04:00

Below is a listing of important links to external websites.

Advocacy Information:

  • ACSCAN.org
  • MedicareAdvocacy.org

Cancer Information:

  • American Cancer Society
  • American Institute for Cancer Research
  • Cancer and Pregnancy
  • Cancer Care
  • Cancer.net
  • Children’s Oncology Group
  • Connective Tissue Oncology Society
  • Cure Today
  • Gilda’s Club
  • Group Loop – Teen Cancer Support
  • Guide to Internet Resources for Cancer
  • Hope for Two – Pregnant with Cancer Network
  • Joe’s House – Hospitality Guide for Cancer Patients
  • MotherRisk
  • National Comprehensive Cancer Network
  • NORD
  • Patient Advocate Foundation
  • Pharmaceutical Research and Manufacturers of America
  • Stand Up To Cancer
  • The Wellness Community

General Information:

  • FasterCures.org

GIST Support:

  • American Childhood Cancer Organization 
  • Cancer Hope Network
  • Emerging Med
  • GISTInfo.org
  • GIST Support International
  • National Coalition for Cancer Survivorship
  • National Family Caregivers Association
  • NIH Pediatric and Wildtype GIST Clinic
  • Novartis U.S.A
  • Texas Children’s Cancer Center
  • The Max Foundation

Medicare Information:

  • Center for Medicare and Medicare Services
  • Medicare Access for Patients RX-MAPrx
  • Medicare Interactive

Sarcoma Information:

  • Amschwand Sarcoma Cancer Foundation
  • Desmoid Tumor Research Foundation
  • Kristen Ann Carr Fund
  • Liddy Shriver Sarcoma Initiative
  • Northwest Sarcoma Foundation
  • Sarcoma Foundation of America
  • Sarcoma UK
  • The Sarcoma Alliance
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The Life Raft Group

The Life Raft Group
155 US Highway 46, Suite 202
Wayne, NJ 07470 USA

Phone 973-837-9092
Contact us by email

The Life Raft Group is a 501 (c)(3) non-profit organization (tax id: 82-0547746) providing support through information, education, and innovative research to patients with a rare cancer called GIST (Gastrointestinal Stromal Tumor). View our 990 Form here

The information provided on the LRG site is designed to support, not to replace, the relationship that exists between a patient/site visitor and his/her physician. Read our Privacy Policy

International Patients

GIST knows no boundaries. The Life Raft Group focuses on several key pillars. One of those pillars is “to increase access to effective treatments worldwide.” We aid patients from the United Kingdom to India and Kenya, helping wherever GIST patients are in need. Our patient registry staff interacts with global patients daily. The LRG Patient Registry has members from 63 countries, with country liaisons from 61 countries. We present at international symposiums on GIST, support global advocacy issues, and work to establish alliances and collaborations. We want to ensure that GIST patients across the world have access to the best possible treatment.
International Patients - Advocacy & Information

 

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The LRG website is dedicated in perpetuity to the memory of Mary S. Golnik.

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