Normal Life Interrupted

Angel Selena Rodriguez was living what she considered a very normal life. She was studying medicine, playing violin in an orchestra, and enjoying painting and drawing, and university in Venezuela.

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Pruebas genéticas costo efectivas para GIST recién diagnosticados

En un artículo publicado el 29 de septiembre de 2020 en la revista “JAMA Network Open”, Dr. Jason Sicklick, Moores Cancer Center, UCSD y sus colegas informaron que las pruebas genéticas son costo efectivas y beneficiosas para los pacientes recién diagnosticados con GIST metastásico.

  • Henzo Kenya GIST 101 audience photo

GIST Knows No Boundaries

On September 17, 2020, the Life Raft Group invited Dr. David Josephy, President of GIST Sarcoma Life Raft Group Canada, to present his highly acclaimed GIST 101: GIST Biology, Genetics and Pathology - an overview of the biology, genetics and pathology of GIST - for the members of Henzo Kenya, a patient advocacy group for GIST and CML patients in Kenya, Africa.

  • Piga Fernandez at La Moneda

“LEY DE CÁNCER CLAUDIO MORA”

On Wednesday, August 26, 2020, LRG Global Consultant & Executive Director of Fundación GIST Chile, Piga Fernández, (GIST survivor & advocate), attended ae climatic event at Palacio de La Moneda (La Moneda), where the President Piñera of Chile took the final steps to sign the 'Ley de Cáncer Claudio Mora' guaranteeing healthcare protections for Chilean cancer patients.

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New Horizons GIST 2020

The New Horizons GIST 2020 Virtual Meeting kicked off on Thursday September 10th at 8am EST. Meeting since 2003, these patient advocates for various cancers split off to a GIST-only meeting several years ago. This year’s meeting, originally planned for Berlin, Germany, was held virtually September 10-12th.

  • LRG International GIST Patient Organizations Meeting

LRG Hosts Virtual Meeting for Global GIST Advocates

On Friday, August 21, The Life Raft Group hosted a virtual meeting entitled “GIST Patient Advocacy during the 'New Normal' of the COVID 19 Pandemic.” Designed for representatives from global GIST advocacy organizations, its purpose was to provide a forum for the international community to discuss challenges they are facing, and to share experiences and best practices.

Fisiopatología de GIST

El equipo de voluntarios de la Fundación se dio a la tarea de desarrollar este increible video que nos explica sobre la formación de un tumor del estroma gastrointestinal.

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GIST Awareness Day 2020 – Spain

Colectivo GIST Espańa celebró el Día de Concienciación de GIST (GIST Awareness Day) con una publicación sobre el tema. A pesar de todo el trabajo realizado por las asociaciones de pacientes, por los [...]

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