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  • International
    • International Resources
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    • International Partnerships and Collaborations
    • International News
  • What is GIST?
    • Patient Resource Toolkit
    • Understanding GIST
    • Types of GIST
      • KIT/PDGFRa Mutant GIST
      • SDH-Deficient GIST
      • Familial GIST
      • eGISTs
    • GIST Diagnosis
    • Risk of Recurrence
    • Mutations & Mutational Testing
    • Treatments for GIST
    • Resistant GIST
    • Managing GIST
    • GIST Education
  • About LRG
    • Mission & Vision
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LRG Videos

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  2. LRG Videos
LRG VideosEgny Mendoza2025-01-16T13:36:31-05:00
Jennifer Noonan of Accessia Health covered key updates including the Medicare Prescription Payment Plan (M3P), cost-sharing “smoothing,” and how charitable financial assistance programs can support individuals navigating high out-of-pocket costs. Learn what these changes mean for patients and caregivers — and how to prepare for what’s ahead. 

Learn more about GIST: https://liferaftgroup.org/powered/
Join The Life Raft Group: https://liferaftgroup.org/life-raft-group-membership-application-form/
DONATE: https://bit.ly/DonateLRG2025
Navigating Financial Support & Medicare Changes
YouTube Video VVUyZ1JFN3Qta1prZ0gwMlRhaWJlN2xRLkZyTmttLUdXM1lF
Dr. Herbert Loong summarized abstracts and presentations that were presented during this conference that are relevant to the GIST patient community. 

Learn more about GIST: https://liferaftgroup.org/powered/
Join the Life Raft Group: https://liferaftgroup.org/life-raft-group-membership-application-form/
DONATE: https://bit.ly/DonateLRG2025
Updates from ASCO 2025 Annual Meeting
YouTube Video VVUyZ1JFN3Qta1prZ0gwMlRhaWJlN2xRLnVvWlVMVDhZbFBV
Certified Wellness Coach & Patient Advocate Carolina Williams shared holistic ways to support healing through mindfulness and vibrational living. During this virtual session, Carolina guided participants in practices such as meditation, breathwork, and energy-awareness techniques to help manage emotional and energetic challenges. Attendees also learned how vibrational frequencies can influence well-being and how to create a supportive environment that fosters inner peace, emotional balance, and resilience for both patients and caregivers.

Learn more about GIST: https://liferaftgroup.org/powered/
Join the Life Raft Group: https://liferaftgroup.org/life-raft-group-membership-application-form/
DONATE: https://bit.ly/DonateLRG2025
Holistic Approaches to Healing in Harmony
YouTube Video VVUyZ1JFN3Qta1prZ0gwMlRhaWJlN2xRLmtMT1Q3cHotWm40
La Sra. Tigre-Nerimora compartió estrategias para vivir plenamente con un enfoque holístico y personalizado, centrado en el bienestar integral. Además, abordó aspectos clave como el manejo de síntomas físicos, el bienestar emocional y el cuidado espiritual.

Más información sobre GIST: https://liferaftgroup.org/powered/
Únete a Life Raft Group: https://liferaftgroup.org/life-raft-group-membership-application-form/
DONA: https://bit.ly/DonateLRG2025
Los Beneficios de los Cuidados Paliativos
YouTube Video VVUyZ1JFN3Qta1prZ0gwMlRhaWJlN2xRLkwwOGViQjN4TENj
Dr. Grant Smith shared ways to live your best life using a holistic, person-centered approach. During this workshop, Dr. Smith talked about physical symptoms as well as emotional and spiritual well-being. Attendees also learned about the medical specialty called palliative care, and how it could provide an extra level of support and improve quality of life.

Learn more about GIST: https://liferaftgroup.org/powered/
Join the Life Raft Group: https://liferaftgroup.org/life-raft-group-membership-application-form/
DONATE: https://bit.ly/DonateLRG2025
The Benefits of Palliative Care
YouTube Video VVUyZ1JFN3Qta1prZ0gwMlRhaWJlN2xRLlFHUUswa21Mb1pN
María Camila Gomez, defensora de pacientes con GIST y estudiante de nutrición, abordó las necesidades nutricionales después de una gastrectomía total o parcial, combinando su experiencia personal como paciente con lo que ha aprendido durante los últimos tres años de estudio en nutrición.

PDF: https://bit.ly/NutricionEspanolPDF

Más información sobre GIST: https://liferaftgroup.org/powered/
Únete a Life Raft Group: https://liferaftgroup.org/life-raft-group-membership-application-form/
DONA: https://bit.ly/DonateLRG2025
Nutrición después de la cirugía de GIST
YouTube Video VVUyZ1JFN3Qta1prZ0gwMlRhaWJlN2xRLnE0LTNVbE5MTkdZ
GIST Patient Advocate and Nutrition student, María Camila Gomez addressed nutrition needs after a total or partial gastrectomy, blending her personal experience as a patient with what she has learned over the past three years of studying nutrition. 

PDF: https://bit.ly/NutritionEnglishPDF

Learn more about GIST: https://liferaftgroup.org/powered/
Join the Life Raft Group: https://liferaftgroup.org/life-raft-group-membership-application-form/
DONATE: https://bit.ly/DonateLRG2025
Nutrition After GIST Surgery
YouTube Video VVUyZ1JFN3Qta1prZ0gwMlRhaWJlN2xRLjFyaGdsSWt4bVlN
Photo Gallery - MD Anderson Cancer Center, GIST Support International and The Life Raft Group cohosted the GIST Summit 2025/GDOL Texas for  GIST patients & caregivers in Houston to showcase recent developments in GIST treatments and therapies. (March 1, 2025)
GIST Summit/GDOL Texas 2025 Photo Gallery
YouTube Video VVUyZ1JFN3Qta1prZ0gwMlRhaWJlN2xRLkpscmdmbndMQ1RR
The Genomics of Wildtype GIST & Novel Surgeries Approaches for GIST was presented by Jason Sicklick, MD, NIH RO1-funded investigator and NIH T32 program director, Professor of Surgery and Adjunct Professor of Pharmacology, Executive Vice Chair of Research  in the Department of Surgery, and Associate Program Director of General Surgery Residency at University of California San Diego, California.

PDF: https://bit.ly/SUMMIT-GENOMICS-WILDTYPE

MD Anderson Cancer Center, GIST Support International and The Life Raft Group cohosted the GIST Summit 2025/GDOL Texas for  GIST patients & caregivers in Houston to showcase recent developments in GIST treatments and therapies. (March 1, 2025)

Questions can be forwarded to liferaft@liferaftgroup.org
Genomics Wildtype SDH Def GIST
YouTube Video VVUyZ1JFN3Qta1prZ0gwMlRhaWJlN2xRLnplNlFXdUdzdm5r
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GIST knows no boundaries. The Life Raft Group focuses on several key pillars. One of those pillars is “to increase access to effective treatments worldwide.” We aid patients from the United Kingdom to India and Kenya, helping wherever GIST patients are in need. Our patient registry staff interacts with global patients daily. The LRG Patient Registry has members from 63 countries, with country liaisons from 61 countries. We present at international symposiums on GIST, support global advocacy issues, and work to establish alliances and collaborations. We want to ensure that GIST patients across the world have access to the best possible treatment.
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