Patient of the Month for November: Jodi Lang
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Jodi Lang shares her story.
GIST Mentor Training Day Photo Gallery
The LRG held a GIST Mentor training day in our offices in Wayne, NJ, in October 2019. The gallery includes photos of the new GIST Mentors, LRG staff. One of the training days was on Halloween so some of the staff dressed up. These photos were taken by David Josephy of Life Raft Group Canada.
Tour de abogacía en Latin America
Participación de los pacientes en el “Tour de abogacía por la participación de los pacientes en la toma de decisiones en políticas públicas de salud.”
Volunteer Spotlight
Raising awareness for the GIST community is important to the DeLorenzo family. Recently they held their 14th annual barbecue where friends and family gathered to fundraise for GIST research in support of The Life Raft Group.
Chicago Patient Support Group
The Chicago Area GIST Patients Support Group made history this year! This group has been meeting the longest of any LRG support group - continuously since 2002.
Finding a Ride to Your Doctor’s Appointments
Over 3.6 million people miss their medical appointments each year, preventing them from getting the care that they need or getting access to the medicine that could help them. People report that distance to the doctor’s office, cost of the transportation, and access to a driver or public transportation as the main reasons that they are having a challenge with transport.
Increasing the Quality and Efficiency of Clinical Trials
The mission of the Clinical Trials Transformation Initiative (CTTI) is to develop and drive the adoption of practices that will increase the quality and efficiency of clinical trials.
News from the 17th NIH Pediatric and Wildtype GIST Clinic
The NIH Pediatric and Wildtype GIST Clinic is a collaboration amongst researchers, specialists, patient advocates, patients and family members, with the goal of furthering the knowledge of SDH-deficient gastrointestinal stromal tumors (GIST) in order to develop more effective therapies.
Health Decisions Tour in Latin America
Collaboration among patient groups and working together in setting common goals is vital. Together we can have a stronger voice to achieve our participation in the decision-making on health issues.
LRG Data Leads to Change
The College of American Pathologists (CAP) released an updated version of its GIST Biopsy and Resection Cancer Protocols. Pathologists use CAP Cancer Protocols in the process of diagnosing a disease.