Annual Report 2021
Our theme for 2021 was It's Time. The year challenged us all, but most especially our patients and caregivers who were striving to survive this rare cancer.
LRG Virtual Tumor Board Benefits Multiple Patients Globally
The first LRG Virtual Tumor Review Board for 2022 was held in April. There were four cases presented from all over the world, emphasizing the importance of virtual reviews.
Effects of Nutrition and the Gut Microbiome in GIST Patients
The Life Raft Group partnered with Fundación GIST México to host “Effects of Nutrition and Gut Microbiome in GIST Patients” on May 4th, 2022, presented by Ms. Berenice Carbajal-López.
GIST Day of Learning – GDOL Washington, DC 2022
The Life Raft Group held a virtual GIST Day of Learning (GDOL) in Washington, DC on April 27th, 2022. Top GIST specialists presented the latest on research and treatment options and provided a comprehensive review of the science behind GIST.
Genetics and Genomics Testing – An ECPC E-module
The European Cancer Patient Coalition (ECPC) has published an e-module on Genetics and Genomics Testing in English, German, French, Italian, and Spanish.
Preview of ASCO 2022 GIST Abstracts & Presentations
ASCO’s Annual Meeting will feature GIST in 18 abstracts, posters, panels, and presentations. Here is a preview of the topics that will be presented at the conference in June.
Highlight of the “Rare Cancers: Great Unmet Medical Needs” Conference
One highlight of the "Rare Cancers: Great Unmet Medical Needs" CME Conference, hosted by Columbia University Herbert Irving Comprehensive Cancer Center and co-sponsored by the Jed Ian Taxel Foundation for Rare Cancer Research, was a presentation on sarcomas by Dr. Gary K. Schwartz, member of the LRG Medical Advisory Board.
Navigating GIST NCCN Guidelines
The National Comprehensive Cancer Network (NCCN) creates guidelines for different diseases to guide physicians in their clinical practice. In this webinar, Dr. von Mehren will educate GIST patients and caregivers about these guidelines and provide some case study examples of how guidelines fit into the rubric of patient care.
GIST Do It Walk NJ 2022 Gallery
Verona Park, Verona, NJ was the site of the third GIST Do It Walk NJ on April 9th. Patients, caregivers, family, friends and LRG staff gathered and walked to support #GISTresearch.
Thank You to Our Newest GEMs!
Our GEM Donor Program has a group of new donors that will help the LRG continue the work we do with patients and #GISTresearch. Our thanks go out to our newest GEMs!