New Study Aids in the Diagnosis of Hereditary Paraganglioma and Pheochromocytoma

A recent study in Cancer Genetics, International initiative for a curated SDHB variant database improving the diagnosis of hereditary paraganglioma and pheochromocytoma, is important for GIST patients who carry a germline SDHB mutation

By |2021-09-09T11:41:15-04:00September 9th, 2021|News, Pediatric GIST, Research, SDH-Deficient GIST|

Actualización realizada por dos prestigiosos especialistas internacionales en GIST

Publicado por Colectivo GIST España - Concluimos el mes dedicado a la concienciación del sarcoma & GIST publicando una actualización del tratamiento para los tumores GIST avanzados.

By |2021-07-30T11:03:57-04:00July 30th, 2021|Global, News, Research|

Q&A with SDH Panel of Experts Yields Promise for the SDH-deficient GIST Community

The Life Raft Group celebrated GIST Awareness Day 2021 by holding an virtual, interactive Q&A session for SDH-deficient GIST patients with leading experts in the field.

By |2021-07-29T11:58:30-04:00July 29th, 2021|News, Research, SDH-Deficient GIST|

Heroes of Rare Disease: The 2021 Rare Impact Awards

June 28th Awards Ceremony registration:   https://livingrare.org/rare-impact-awards/ Dr. Jason Sicklick, Blueprint Medicines Among Honorees Released 2/23/21 by NORD The National Organization for Rare Disorders (NORD®) announced this year’s Rare Impact Award honorees. These outstanding [...]

By |2021-06-28T14:47:31-04:00February 25th, 2021|News, Research|
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