Pediatric & SDH-Deficient GIST Consortium Update
Setting the Pace for the Future In July of 2018 at Life Fest, The Life Raft Group brought together a team of pediatric & SDH-deficient GIST experts for a symposium focused on this rare [...]
Vitrakvi Approved
New Drug Approved for Patients with Rare Gene Fusion By Sara Rothschild, MPH, Vice President, Program Services & Jerry Call, Data Analyst The Food and Drug Administration granted accelerated approval on November 26th to [...]
The Pediatric & SDH-Deficient GIST Consortium
Our Commitment to the Biden Cancer Initiative We are excited to launch an innovative initiative to strengthen and advance research for effective treatments of a rare subset of Gastrointestinal Stromal Tumor (GIST) patients, who [...]
Salud con Datos – Partnering to Share Real World Data in Latin America
Over the past few years, The Life Raft Group has been strengthening its efforts in Latin America as it focuses on harnessing data to improve GIST patient outcomes. We have built strong relationships with [...]
GIST Updates: SPAEN and ESMO 2018 Meetings
Senior Director of Program Operations, Sara Rothschild, recently represented the Life Raft Group at the SPAEN (Sarcoma Patients EuroNet) meeting. Subsequent to the meeting, over 300 medical professionals gathered for the 7th annual ESMO [...]
Global GIST Advocates Convene at LRG Headquarters
The Life Raft Group had the pleasure of hosting the global New Horizons GIST meeting this year in our Wayne, New Jersey office. This international meeting traditionally gathers global GIST advocates with the shared [...]
Global GIST Advocates Convene at LRG Headquarters
The Life Raft Group had the pleasure of hosting the global New Horizons GIST meeting this year in our Wayne, New Jersey office. This international meeting traditionally gathers global GIST advocates with the shared [...]
NIH Clinic Combines Research, Knowledge, and Hope
I had the pleasure of attending the 15th Pediatric and Wildtype Clinic along with Becky Owens from GIST Support International as patient advocates. The Clinic was held at the National Institute of Health in [...]
Using Data to Improve Health in Latin America
As many of you know, The Life Raft Group has developed a sophisticated database to track GIST patients around the world and we have learned many lessons along the way. We have observed first-hand [...]
New York GDOL and Cancer Moonshot Summit: A Winning Combination
The LRG 2016 GIST Days of Learning Tour (GDOL) made a stop in New York City on June 29th. A GIST Day of Learning is a free, one-day program that provides both education and [...]
