I had the pleasure of attending the 15th Pediatric and Wildtype Clinic along with Becky Owens from GIST Support International as patient advocates. The Clinic was held at the National Institute of Health in Bethesda, MD on July 5-7, 2017. The Clinic is a collaboration between clinicians and researchers to collect data, investigate and develop […]
Becky Owens, Dina Data, Dr. Lee Helman, H.E.R.O. campaign, NIH Clinic, pediatric GIST, Tommy Tissue, Wildtype GIST
As many of you know, The Life Raft Group has developed a sophisticated database to track GIST patients around the world and we have learned many lessons along the way. We have observed first-hand the gap in information as well as access to therapies among patients worldwide. Paired with these issues, there is a lack […]
Alianza GIST, collaboration, data, Global, Latin America, Salud con Datos
The LRG 2016 GIST Days of Learning Tour (GDOL) made a stop in New York City on June 29th. A GIST Day of Learning is a free, one-day program that provides both education and support to the GIST community. Medical professionals who have specialties in GIST cancer give presentations on issues relevant to their fields […]
American Cancer Society, Cancer Moonshot Summit, Dr. Gary Schwartz, Dr. Shelly Late-Naor, Dr. William Tap, GDOLNYCNews, GIST Support, Memorial Sloan-Kettering Cancer Center, New York GDOL, New York Presbyterian/Columbia University Medical Center
On February 1, 2016, the commercial launch of the generic version of imatinib mesylate (Gleevec), originally for CML (Chronic Myeloid Leukemia), was approved by the FDA and became available for the first time in the United States through Sun Pharmaceuticals. In response to this transition, the LRG provided an educational Webinar to the CML and […]
generic imatinib, Generics, Gleevec, Novartis, Patient Education