The Life Raft Group is pleased to announce a new collaboration to provide access to our valuable resource tool, SideEQ, to the LeioMyoSarcoma Patient-Family-Care Partner Community. Commencing on May 5, members of the LMS Community will be able to utilize SideEQ, the LRG’s interactive platform that provides information on cancer treatment side effects and management. […]
Annie Achee, collaboration, National Leiomyosarcoma Foundation, Patient Advocacy Groups, Side Effects Management, SideEQ
On Sunday, December 4, 2016, The Life Raft Group hosted an Open House to introduce members to staff and provide a tour of our newly renovated facilities. Over brunch, attendees mingled and got to know one another. After viewing a short video, attendees took turns sharing their personal stories. Forgoing a formalized agenda, our goal […]
GIST Patient Support, Patient Meeting
Coming in 2017 As a rare cancer treated by the first oral, targeted therapy, GIST has been on the front lines of medical advancement. In the last 16 years working with GIST patients, the Life Raft Group realized the inherent value in patient-powered data, and utilized our membership’s medical data and experiences to build a […]
GIST/PRIME, Interactive patient registry, Patient Registry
Until cures are found, drug therapies are a lifeline to someone with cancer. Yet, the Life Raft Group’s GIST Patient Registry has recorded over 800 reports of patients interrupting their drug therapy usage because side effects became too burdensome. Months between clinician visits and a hesitancy to speak openly to doctors about side effects contribute […]
Patient Education, Side Effects, Side Effects Management, SideEQ