The National Comprehensive Cancer Network (NCCN) creates guidelines for different diseases to guide physicians in their clinical practice. In this webinar, Dr. von Mehren will educate GIST patients and caregivers about these guidelines and provide some case study examples of how guidelines fit into the rubric of patient care.
In March, Director of Data Mgmt and Research, Sahibjeet Kaur joined the GIST experts of AIIMS for the 99th Virtual Patient Support Group addressing patients from India.
NCCN’s Dr. Crystal Denlinger and Dottie Shead reviewed general principles of appropriate survivorship care and how to access and understand patient guidelines related to survivorship care.
US GIST Mentor Director, Santy DiSabatino, shares what having a Mentor means to the newly diagnosed and what being a GIST Mentor means to him and he makes an appeal for more volunteers to mentor LRG patients and caregivers.
Lidia Kornienko was searching for answers and when she reached out she found generous people willing to help assist her on the path to mutational testing and an effective treatment plan.
Holidays can be a challenge. There may be pressure to recreate a ‘Norman Rockwellesque’ experience with the perfect turkey and many happy, family photos in holiday-themed pajamas. Here are some tips to deal with the stress.
n June 2021, we trained seven LRG members from Austria, Canada, Chile, India, and Singapore. LRG’s Global GIST Mentors are survivors or caregivers who volunteer their time, energy, and talent to support others.
Fall is finally here, and with it comes the onset of Flu Season. Flu is a difficult illness for everyone, but for cancer patients, it can be devastating. It is especially confusing in this year which continues to challenge everyone with the uncertainty of COVID-19 and its variants.
The LRG worked with the NIH to create a collaborative model to serve the needs of Pediatric & SDH patients, hosting a virtual tumor board on June 25th to replace the in-person Pediatric & Wildtype Clinic which the NIH holds annually.
COVID-19 - Resources GIST Patients Need - Please know that the Life Raft Group is here to support you during this Coronavirus crisis. We will continue our daily services during this time and we will be distributing information and messages of hope through all our communication channels.