Navigating GIST NCCN Guidelines

The National Comprehensive Cancer Network (NCCN) creates guidelines for different diseases to guide physicians in their clinical practice. In this webinar, Dr. von Mehren will educate GIST patients and caregivers about these guidelines and provide some case study examples of how guidelines fit into the rubric of patient care.

By |2022-04-13T10:04:07-04:00April 13th, 2022|Patient Support, Webcast|

LRG Staffer Presents at the 99th Virtual Patient Support Group

In March, Director of Data Mgmt and Research, Sahibjeet Kaur joined the GIST experts of AIIMS for the 99th Virtual Patient Support Group addressing patients from India.

By |2022-04-01T14:19:59-04:00April 1st, 2022|Advocacy, Global, News, Patient Support, Research|

A Conversation with a Few of Our Global GIST Mentors

n June 2021, we trained seven LRG members from Austria, Canada, Chile, India, and Singapore. LRG’s Global GIST Mentors are survivors or caregivers who volunteer their time, energy, and talent to support others.

By |2021-12-29T15:29:07-05:00October 28th, 2021|Global, News, Newsletter, Patient Support|

NIH Pediatric & Wildtype Clinic’s ‘Virtual Tumor Board’ Hosted by the LRG

The LRG worked with the NIH to create a collaborative model to serve the needs of Pediatric & SDH patients, hosting a virtual tumor board on June 25th to replace the in-person Pediatric & Wildtype Clinic which the NIH holds annually.

By |2021-08-24T15:19:29-04:00August 24th, 2021|News, Patient Support, SDH-Deficient GIST|

COVID-19 – Resources GIST Patients Need

COVID-19 - Resources GIST Patients Need - Please know that the Life Raft Group is here to support you during this Coronavirus crisis. We will continue our daily services during this time and we will be distributing information and messages of hope through all our communication channels.

By |2021-08-18T14:27:31-04:00August 18th, 2021|News, Patient Support|
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