Patient Support

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Global Spotlight – Introducing Two New Global Representatives

Two new representatives have join the LRG community, providing resources and support to patients in Russia, and Kenya. Dmitry Bukhtenkov Dmitry Bukhtenkov is the newest LRG Global Representative for Russia. Born in [...]

By | 2018-07-25T14:27:29+00:00 June 29th, 2018|Global, Newsletter, Patient Support|

NIH Clinic Combines Research, Knowledge, and Hope

I had the pleasure of attending the 15th Pediatric and Wildtype Clinic along with Becky Owens from GIST Support International as patient advocates. The Clinic was held at the National Institute of Health in [...]

By | 2018-07-16T14:20:02+00:00 September 18th, 2017|News, Newsletter, Patient Support, Pediatric GIST|

National LeioMyoSarcoma Foundation and the Life Raft Group Announce Collaboration

The Life Raft Group is pleased to announce a new collaboration to provide access to our valuable resource tool, SideEQ, to the LeioMyoSarcoma Patient-Family-Care Partner Community. Commencing on May 5, members of [...]

By | 2018-07-05T21:18:36+00:00 May 9th, 2017|News, Patient Support, Side Effects|

Improving quality of life with SideEQ

Until cures are found, drug therapies are a lifeline to someone with cancer. Yet, the Life Raft Group’s GIST Patient Registry has recorded over 800 reports of patients interrupting their drug therapy usage because side [...]

By | 2018-07-05T21:23:51+00:00 October 20th, 2016|News, Newsletter, Patient Support, Side Effects|

2015 Annual Report – Patient Support and Education

Patient support and education is a vital part of the LRG’s mission. In 2015, we expanded our reach with four GIST Days of Learning (GDOLs) held in San Diego and Orange County, California, Chicago [...]

By | 2018-08-01T12:25:26+00:00 October 6th, 2016|Annual Report, GIST Education, Patient Support|

Becoming a “Patient Champion”: Strategies for Caregivers

Navigating the waters of medical treatment can be not only confusing, but also potentially deadly. According to the Agency for Healthcare Research and Quality, one in seven Medicare patients in hospitals experiences a medical error. Almost [...]

By | 2018-07-31T12:54:02+00:00 April 8th, 2016|Newsletter, Patient Support, Survival Strategies|

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