Patient Support

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Creating Your Personal Cancer Survival Plan

This presentation is best viewed with the "Personal Cancer Survival Plan - 10 Steps to Surviving Cancer Guide" either printed out or opened alongside the video. Open Personal Cancer [...]

By |2019-08-01T11:42:01-04:00July 10th, 2019|GIST Education, GIST Survival Plan, News, Patient Support, Video|

Global Representative Spotlight – Adriana María Garzón Pinzón, Colombia

Adriana’s journey with cancer began 15 years ago. After conquering Stage 3 breast cancer, she changed her professional path and poured her skills, talents, and experience into serving other cancer patients. In 2004, Adriana, [...]

By |2019-07-03T10:10:41-04:00June 20th, 2019|Global, Newsletter, Patient Support|

State Leader Spotlight – John Abrams, Colorado, USA

John Abrams, our new LRG State Leader for Colorado, has a vision of helping others cope with GIST. John’s story spans a journey with three types of cancer. First, misdiagnosed in 1997 with leiomyosarcoma, [...]

By |2019-07-03T09:26:03-04:00June 20th, 2019|Advocacy, Member Stories, Patient Support|

Global Representative Spotlight – Florence Thwagi, Kenya

My Journey with GIST My name is Florence Thwagi, and I am 53-years-old. I am an Executive Board Member of Henzo Kenya, an advocacy group that creates awareness and support GIST patients in Kenya. [...]

By |2019-02-21T09:29:11-04:00February 21st, 2019|Advocacy, Member Stories, Newsletter, Patient Support|

Sharing Health Conditions with Your Employer

Sharing health conditions with your employer can be a difficult yet important decision you may have to make. Maybe you’ve been diagnosed with a serious health condition recently or you may always have had [...]

By |2019-07-03T11:18:46-04:00October 11th, 2018|Coping with GIST, Newly Diagnosed, News, Patient Support|

SoCal Support Group Meeting for GISTers

Dina Wiley, SoCal Group Leader On August 11, 2018, a group of GISTers in Southern California gathered informally to share knowledge, resources, and personal stories about their journeys with this rare disease. [...]

By |2018-10-29T13:38:03-04:00August 28th, 2018|Caregiver Support, Coping with GIST, GDOL, Patient Support|

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Upcoming Events

  1. Dr. Sicklick presents an update on Temozolomide Trial
  2. Kathy Sarmiento Medicare 101 Webcast

    LRG Webcast Series: Medicare 101

    September 9 @ 12:00 PM - 1:00 PM