GIST CHAT 101: Learn the Basics
This webinar teaches the basics of The Life Raft Group's new software, GIST CHAT, which will replace our patient ListServ.
Creating Your Personal Cancer Survival Plan
This Personal Cancer Survival Plan is based upon practical observations gained from my experience [Norman Scherzer] of keeping my wife alive with a rare cancer called GIST (Gastrointestinal Stromal Tumor) for 22 years after she was given six months to live, and hundreds of patient medical histories and stories that come across The Life Raft Group forums and medical databases.
The LRG GIST Peer Support Program
Sharing Your Experience by Being There for Other GIST Patients and Caregivers Last month, we posted information on our new program to support our members. The GIST Peer Program is an additional support system [...]
Global Representative Spotlight – Adriana María Garzón Pinzón, Colombia
Adriana’s journey with cancer began 15 years ago. After conquering Stage 3 breast cancer, she changed her professional path and poured her skills, talents, and experience into serving other cancer patients. In 2004, Adriana, [...]
State Leader Spotlight – John Abrams, Colorado, USA
John Abrams, our new LRG State Leader for Colorado, has a vision of helping others cope with GIST. John’s story spans a journey with three types of cancer. First, misdiagnosed in 1997 with leiomyosarcoma, [...]
Global Representative Spotlight – Florence Thwagi, Kenya
My Journey with GIST My name is Florence Thwagi, and I am 53-years-old. I am an Executive Board Member of Henzo Kenya, an advocacy group that creates awareness and support GIST patients in Kenya. [...]
State Leader Spotlight – Wendi Lax
Wendi Lax is our wonderful state leader for Maryland. She is currently residing in Maryland, where she is helping the Life Raft Group create unity among the local patients and caregivers. For many years, [...]
Sharing Health Conditions with Your Employer
Sharing health conditions with your employer can be a difficult yet important decision you may have to make. Maybe you’ve been diagnosed with a serious health condition recently or you may always have had [...]
Coping with End of Life Issues
Although breakthroughs in cancer treatment have contributed to longer survival rates, the reality is that sometimes treatments stop working, and a cure or remission is no longer possible. Referred to as advanced, terminal. or [...]
SoCal Support Group Meeting for GISTers
Dina Wiley, SoCal Group Leader On August 11, 2018, a group of GISTers in Southern California gathered informally to share knowledge, resources, and personal stories about their journeys with this rare disease. [...]