Patient Support

/Patient Support

Sharing Health Conditions with Your Employer

Sharing health conditions with your employer can be a difficult yet important decision you may have to make. Maybe you’ve been diagnosed with a serious health condition recently or you may always have had [...]

By | 2018-10-12T09:02:05+00:00 October 11th, 2018|Coping with GIST, Newly Diagnosed, News, Patient Support|

SoCal Support Group Meeting for GISTers

Dina Wiley, SoCal Group Leader On August 11, 2018, a group of GISTers in Southern California gathered informally to share knowledge, resources, and personal stories about their journeys with this rare disease. [...]

By | 2018-08-28T10:17:42+00:00 August 28th, 2018|Caregiver Support, Coping with GIST, GDOL, Patient Support|

Global Spotlight – Introducing Two New Global Representatives

Two new representatives have join the LRG community, providing resources and support to patients in Russia, and Kenya. Dmitry Bukhtenkov Dmitry Bukhtenkov is the newest LRG Global Representative for Russia. Born in [...]

By | 2018-07-25T14:27:29+00:00 June 29th, 2018|Global, Newsletter, Patient Support|

NIH Clinic Combines Research, Knowledge, and Hope

I had the pleasure of attending the 15th Pediatric and Wildtype Clinic along with Becky Owens from GIST Support International as patient advocates. The Clinic was held at the National Institute of Health in [...]

By | 2018-07-16T14:20:02+00:00 September 18th, 2017|News, Newsletter, Patient Support, Pediatric GIST|

National LeioMyoSarcoma Foundation and the Life Raft Group Announce Collaboration

The Life Raft Group is pleased to announce a new collaboration to provide access to our valuable resource tool, SideEQ, to the LeioMyoSarcoma Patient-Family-Care Partner Community. Commencing on May 5, members of [...]

By | 2018-07-05T21:18:36+00:00 May 9th, 2017|News, Patient Support, Side Effects|

Improving quality of life with SideEQ

Until cures are found, drug therapies are a lifeline to someone with cancer. Yet, the Life Raft Group’s GIST Patient Registry has recorded over 800 reports of patients interrupting their drug therapy usage because side [...]

By | 2018-07-05T21:23:51+00:00 October 20th, 2016|News, Newsletter, Patient Support, Side Effects|

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Upcoming Events

  1. Michigan GDOL 2018

    Michigan GDOL 2018

    October 27 @ 8:00 AM - 3:00 PM
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