I had the pleasure of attending the 15th Pediatric and Wildtype Clinic along with Becky Owens from GIST Support International as patient advocates. The Clinic was held at the National Institute of Health in Bethesda, MD on July 5-7, 2017. The Clinic is a collaboration between clinicians and researchers to collect data, investigate and develop […]
National LeioMyoSarcoma Foundation and the Life Raft Group Announce Collaboration
The Life Raft Group is pleased to announce a new collaboration to provide access to our valuable resource tool, SideEQ, to the LeioMyoSarcoma Patient-Family-Care Partner Community. Commencing on May 5, members of the LMS Community will be able to utilize SideEQ, the LRG’s interactive platform that provides information on cancer treatment side effects and management. […]
Life Raft Group hosts Open House for local members
On Sunday, December 4, 2016, The Life Raft Group hosted an Open House to introduce members to staff and provide a tour of our newly renovated facilities. Over brunch, attendees mingled and got to know one another. After viewing a short video, attendees took turns sharing their personal stories. Forgoing a formalized agenda, our goal […]
GIST/PRIME: An Interactive Patient Registry
Coming in 2017 As a rare cancer treated by the first oral, targeted therapy, GIST has been on the front lines of medical advancement. In the last 16 years working with GIST patients, the Life Raft Group realized the inherent value in patient-powered data, and utilized our membership’s medical data and experiences to build a […]