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Global Representative Spotlight – Amelia Yeo

I was a piano teacher and performing pianist for the past 13 years but stopped work completely this year so I could spend more time with Andrew and see to his needs. We were so lost in the beginning because we did not know what to expect, due to the relative rarity of GISTs.

By |2019-12-18T10:46:04-05:00December 18th, 2019|News, Newsletter, Patient Support|

Finding a Ride to Your Doctor’s Appointments

Over 3.6 million people miss their medical appointments each year, preventing them from getting the care that they need or getting access to the medicine that could help them. People report that distance to the doctor’s office, cost of the transportation, and access to a driver or public transportation as the main reasons that they are having a challenge with transport.

By |2019-10-30T09:40:26-04:00October 29th, 2019|News, Newsletter, Patient Support|

Creating Your Personal Cancer Survival Plan

This Personal Cancer Survival Plan is based upon practical observations gained from my experience [Norman Scherzer] of keeping my wife alive with a rare cancer called GIST (Gastrointestinal Stromal Tumor) for 22 years after she was given six months to live, and hundreds of patient medical histories and stories that come across The Life Raft Group forums and medical databases.

By |2019-08-29T11:51:08-04:00July 10th, 2019|GIST Education, GIST Survival Plan, News, Patient Support, Video|

The LRG GIST Peer Support Program

[Please note that GIST Peer Support program has been renamed the GIST Mentor Program 11.5.19]. Last month, we posted information on our new program to support our members. The GIST Peer Program is an additional support system to help patients and their caregivers through a very difficult time in their lives. Why? They may just be finding out they or a loved one has GIST, or they are experiencing a recurrence and they want to be able to talk with someone.

By |2019-11-05T17:10:28-05:00June 20th, 2019|News, Newsletter, Patient Support|

Global Representative Spotlight – Adriana María Garzón Pinzón, Colombia

Adriana’s journey with cancer began 15 years ago. After conquering Stage 3 breast cancer, she changed her professional path and poured her skills, talents, and experience into serving other cancer patients. In 2004, Adriana, [...]

By |2019-07-03T10:10:41-04:00June 20th, 2019|Global, Newsletter, Patient Support|

State Leader Spotlight – John Abrams, Colorado, USA

John Abrams, our new LRG State Leader for Colorado, has a vision of helping others cope with GIST. John’s story spans a journey with three types of cancer. First, misdiagnosed in 1997 with leiomyosarcoma, [...]

By |2019-07-03T09:26:03-04:00June 20th, 2019|Advocacy, Member Stories, Patient Support|

Global Representative Spotlight – Florence Thwagi, Kenya

My Journey with GIST My name is Florence Thwagi, and I am 53-years-old. I am an Executive Board Member of Henzo Kenya, an advocacy group that creates awareness and support GIST patients in Kenya. [...]

By |2019-02-21T09:29:11-05:00February 21st, 2019|Advocacy, Member Stories, Newsletter, Patient Support|