The LRG offers many options for support through a private, online discussion forum, two private FB discussion groups, a mentor program, & regular online support groups for patients & caregivers. You are not alone, whether you are a patient or a caregiver, we are here for you!
This is a private forum for LRG members on a discourse platform. This forum is where patients & caregivers talk to each other about access, treatments, finances, side effects, trials and how they are living with GIST day-to-day. You must be an LRG member to take part in this forum. For the application to join: https://liferaftgroup.org/join-our-community
Do you want one-on-one support from someone just like you? Patients are matched with patients and caregivers with caregivers to lend a hand during a difficult time whether it be for the newly diagnosed or someone further along their journey.
Maybe you’d like to be a Mentor and support a fellow GISTer or caregiver – we currently have 30 mentors and 259 mentees. We welcome additions to the team and we provide training for mentors. Mentor or mentee: You can find all the details here: https://liferaftgroup.org/lrg-gist-mentor
There are two regularly scheduled online support groups – one for patients and one for caregivers (see calendar) as well as some individual state groups. For more information on support groups in your state or country, email us at: liferaft@liferaftgroup.org
Facebook Groups – There are two private Facebook discussion groups for those on Qinlock and those in the Cogent trial. Visit our Facebook page, or email patientregistrydepartment@liferaftgroup.org
Holiday Campaign 2022
Our Good News Holiday Campaign is the culmination of our year of “Time to Tell the Stories 2022.” In this series, we celebrate the connections, the celebrations, the events and milestones that we’ve been privileged to be a part of this year. Our 20th anniversary year is winding down and we are wrapping it up by spreading good news & gratitude throughout the season. Your financial donations and selfless volunteerism are what enable us to continue providing vital services to our GIST community.
