Lost in the relentless coverage of the COVD-19 pandemic are the many cancer patients trying to survive and needing to access quality medical care. Our gratitude goes out to all those physicians that have gone above and beyond to serve our GIST patients during this time.
In this critical time, the FDA Oncology Center of Excellence wants you to know that we are here for patients with cancer and their health care providers and we will do everything we can to help you through the coronavirus crisis.
Dr. Breelyn Wilky, Director of Sarcoma Translational Research at the University of Colorado Cancer Center shares about Cancer vs. Coronavirus in her latest blog post covering hospital visits, keeping appointment scans, and risk factors for GIST patients.
These are trying times for everyone. As we move into uncharted territory created by the coronavirus pandemic, it is normal for the average person to experience fearful thoughts. Add to the mix fears that are ever present for those with a cancer diagnosis and you have a formula for anxiety.
The Life Raft Group is facing the same challenges we all are in light of this health crisis. We are doing our best on a daily basis to do the right thing in all matters impacting the well-being of our patients, caregivers, staff and everyone we serve.
Being diagnosed with a rare cancer like GIST can make finding resources more challenging. While this is not an exhaustive list of resources available, these organizations can provide a wealth of information and assistance.
Five GISTers and four caregivers attend the luncheon at Europa Restaurant and Bakery. Besides a great meal, attendees were able to meet each other and share our journeys through their GIST journeys.
I was a piano teacher and performing pianist for the past 13 years but stopped work completely this year so I could spend more time with Andrew and see to his needs. We were so lost in the beginning because we did not know what to expect, due to the relative rarity of GISTs.
The Chicago Area GIST Patients Support Group made history this year! This group has been meeting the longest of any LRG support group - continuously since 2002.
Over 3.6 million people miss their medical appointments each year, preventing them from getting the care that they need or getting access to the medicine that could help them. People report that distance to the doctor’s office, cost of the transportation, and access to a driver or public transportation as the main reasons that they are having a challenge with transport.