About Carol Tordella

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So far Carol Tordella has created 33 blog entries.

Spotlight on LRG Global Representatives – Nandini Dabbir, India

The newest GISTer to join the ranks of LRG Global Representatives is Nandini Dabbir of Hyderabad, India. She is a the Friends of Max City Chapter Leader & GIST Advocate working with the LRG to support GIST patients on their journey.

By |2021-06-30T10:50:44-04:00June 30th, 2021|Global, News, Newsletter|

Rare Diagnosis Fosters a Passion for Biomarker Testing & Self-Advocacy

GISTer Bill Borwegan shares his inspiring GIST journey illustrating the importance of biomarker/ mutational testing and self-advocacy as a rare disease patient.

By |2021-06-29T11:57:41-04:00June 29th, 2021|Member Stories, News, Newsletter|

Heroes of Rare Disease: The 2021 Rare Impact Awards

June 28th Awards Ceremony registration:   https://livingrare.org/rare-impact-awards/ Dr. Jason Sicklick, Blueprint Medicines Among Honorees Released 2/23/21 by NORD The National Organization for Rare Disorders (NORD®) announced this year’s Rare Impact Award honorees. These outstanding [...]

By |2021-06-28T14:47:31-04:00February 25th, 2021|News, Research|

April Stephens, Long-Term Survivor

The average GIST patient is in their 50s or older when diagnosed with GIST. The rare exception is usually a pediatric SDH- deficient GIST, but April’s case is a case of ‘the rarest of the rare’ in that she was only 20 years old when she first encountered GIST and was not SDH-deficient.

By |2021-02-24T08:34:24-05:00February 24th, 2021|Member Stories, News, Newsletter|

GIST & Creativity – Gewelry for GIST with Christine Gonzales

Christine, a former elementary school  teacher, is raising three sons with husband Adam, in New Mexico. She doesn’t feel that creativity has always had a place in her life, but teaching elementary school always provides opportunities for innovation and creative thinking so perhaps it’s a matter of perspective.

By |2020-12-16T14:12:25-05:00December 16th, 2020|Member Stories, News, Newsletter|

GIST & Creativity – Art Quilter, Crafter, Teacher Claire Monaghan

GIST happened soon after her first quilt was accepted into a quilt exhibit and after participating in her first holiday craft show last December. Every GIST patient has a unique story about how they were diagnosed and where their journey takes them but Claire can literally credit a recurrence of her sister's ovarian cancer in January as the reason she found her GIST tumor.

By |2020-12-17T08:38:48-05:00December 16th, 2020|Member Stories, News, Newsletter|

GIST & Creativity – Sculptor & Public Artist, Tim Watkins

You may have spotted a creation by May & Watkins Design and not even realized it. They create public art, or industrial sculptures – art that is commissioned for public spaces. The partnership of artists, Carol May and Tim Watkins, began after meeting as 20-somethings on scholarship at the Skowhegan School of Painting & Sculpture in Maine.

By |2020-12-16T13:29:37-05:00December 16th, 2020|Member Stories, News, Newsletter|

GIST & Creativity – Industrial Designer, John Paul Zagami

Pratt institute graduate, John Paul Zagami studied industrial design. John’s journey with GIST began with unexplainable digestive issues. After suffering a kidney stone attack which led to an ER visit, a mass was found.

By |2020-12-16T12:27:00-05:00December 16th, 2020|Member Stories, News, Newsletter|
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