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About Carol Tordella

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So far Carol Tordella has created 41 blog entries.

Annual NORD Breakthrough Summit Tackles a Diversity of Rare Disease Issues

I was fortunate to be able attend the @NationalOrganizationforRareDisorders Rare Diseases + Orphan Products Breakthrough Summit (#NORDSummit) on October 17-18  in-person in Washington, DC via a full scholarship. During this highly anticipated [...]

By |2022-10-21T10:09:41-04:00October 21st, 2022|Advocacy, Conferences, News|

Thriving & Challenging Yourself While Living with GIST, Elyse, Part 1

GIST patients face many obstacles and challenges to get to a place where they’d say they were thriving. Physical challenges from surgeries, pain and side effects can severely change the lifestyle and activities they enjoyed before GIST. Elsye Walker and Stijn Belmans, faced those changes and decided they wouldn’t accept an altered version of life.

By |2021-10-28T15:24:06-04:00October 28th, 2021|Member Stories, News, Newsletter|

Thriving & Challenging Yourself While Living with GIST, Stijn, Part 2

GIST patients face many obstacles and challenges to get to a place where they’d say they were thriving. Physical challenges from surgeries, pain and side effects can severely change the lifestyle and activities they enjoyed before GIST. Elsye Walker and Stijn Belmans, faced those changes and decided they wouldn’t accept an altered version of life.

By |2021-10-28T15:47:53-04:00October 28th, 2021|Member Stories, News, Newsletter|

Spotlight on LRG Global Representatives – Nandini Dabbir, India

The newest GISTer to join the ranks of LRG Global Representatives is Nandini Dabbir of Hyderabad, India. She is a the Friends of Max City Chapter Leader & GIST Advocate working with the LRG to support GIST patients on their journey.

By |2021-06-30T10:50:44-04:00June 30th, 2021|Global, News, Newsletter|

Rare Diagnosis Fosters a Passion for Biomarker Testing & Self-Advocacy

GISTer Bill Borwegan shares his inspiring GIST journey illustrating the importance of biomarker/ mutational testing and self-advocacy as a rare disease patient.

By |2021-06-29T11:57:41-04:00June 29th, 2021|Member Stories, News, Newsletter|
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