Photo Left to Right: Martin Wettstein, Dr. Michael Montemurro, Helga Meier Schnorf, Prof. Abbas Agaimy, Prof. Richard Herrmann GIST Group Switzerland, the support group for patients with gastrointestinal stromal tumor (GIST), has awarded its science prize for the seventh time. The 2016 GIST prize, worth CHF 10,000, was awarded to Professor Abbas Agaimy, a pathologist […]
Dr. Michael Montemurro, GIST Group Switzerland, Helga Meier Schnorf, Martin Wettstein, Prof. Abbas Agaimy, Prof. Richard Herrmann, SAKK
On November 26, 2016, patient advocacy organizations in Chile came together at the School of Medicine at the University of San Sebastian in Santiago, Chile for a seminar entitled “Clinical Studies, Clinical Guidelines and Patient Registries: What do patients need to know?” In Chile, in order to accomplish their advocacy work, patient leaders have been […]
Alianza GIST, Chilean Ministry of Health, Fundación GIST Chile, Global, Patient Advocacy, Patient Reported Outcomes, Salud con Datos
Henzo Kenya is a patient support group made up of CML, GIST and recently added osteosarcoma patients. The need to support each other as patients inspired the great idea that is Henzo Kenya. Henzo Kenya will be ten years old next year. We have reached great milestones together. The immediate benefit you derive by joining Henzo, […]
Advocacy, CML, Ferdinand Mwangura, GIST Education, Henzo Kenya, Osteosarcoma
The week of October 16 was a busy one for the Life Raft Group’s advocacy efforts. The week began with a trip to the National Organization of Rare Diseases’ 2016 Breakthrough Summit. Held annually, the Summit brings together representatives from the FDA, rare disease patient organizations, pharma, biotech and the media for two days of […]
GDOL, GIST Sarcoma Life Raft Group Canada, Mildred Menos, NORD