NCCN GIST Guidelines 2023 Patient Version
The NCCN updated the clinical practice guidelines in oncology for GIST and other cancers in April and now have released the patient guidelines. Find the links here.
European Patient Cancer Coalition Publishes Patient Guide for Cancer Biomarkers
European Patient Cancer Coalition published Patient Guide for Cancer Biomarkers in January 2023.
Our Latest Publication Focused on Mutational Testing
The LRG published "Barriers to mutational testing in patients with gastrointestinal stromal tumors (GIST) – a survey of Life Raft Group members" in BMC Gastroenterology, November 2022.
Collaborative Effort Produces Position Paper on Need for Advanced Biomarker Testing
The Life Raft Group was recently part of team of authors on a collaborative position paper entitled 'Undetected KIT and PDGFRA mutations: an under-recognised cause of gastrointestinal stromal tumours (GISTs) incorrectly classified as wild-type published' in Pathology: The Journal of the Royal College of Pathologists of Australia.
The Importance of Biomarker Testing
The Life Raft Group partnered with Dr. Michael Wagner of the University of Washington to present “The Importance of Biomarker Testing” to GIST patients and caregivers on August 12th, 2022.
Did You Know? Tissue Testing FREE for GIST Patients!
The Life Raft Group is currently conducting a tissue testing initiative for GIST patients to receive FREE Next-Generation Sequencing (NGS) Testing!
Genetics and Genomics Testing – An ECPC E-module
The European Cancer Patient Coalition (ECPC) has published an e-module on Genetics and Genomics Testing in English, German, French, Italian, and Spanish.
The Value of Biomarker Testing: Case Studies Across Multiple Institutions
In this webinar, there were case study presentations from three top sarcoma institutions that demonstrate the value of biomarker testing. A Question & Answer session followed the presentations.
Perspectives in Biomarker Testing
This video is about understanding the role of mutations and biomarker testing in GIST. Knowing the driving force behind each individual’s tumors is not just important, it is critical in determining the most effective treatment for your mutation.
Tissue Testing Project
The Life Raft Group (LRG) is providing you with this information to let you know that comprehensive genomic profiling, also known as biomarker testing or molecular testing, is a crucial step in understanding the genomic factors that play a role in a GIST diagnosis. Bayer Pharmaceuticals, in partnership with The Life Raft Group (LRG), has extended a research collaboration to broaden access to comprehensive genomic testing (CGT) for Gastrointestinal Stromal Tumor (GIST) patients.