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The Life Raft Group Announces Collaboration with OHSU on GIST Tissue Bank

In this issue of LRG Science, we release breaking news of our newest collaboration - with OHSU on the GIST Collaborative Tissue Bank. The LRG has a unique patient registry with over 2,000 members and this collaboration is an important example of the vital role patient advocacy groups and academic institutions play in bridging the gap between researchers and motivated patient populations who want to share their clinical histories and tissue to create new treatments and better outcomes. 

By |2020-09-28T15:37:49-04:00September 28th, 2020|LRG Science, News, Tissue Bank|

How to be a GIST Hero: Donating Tissue for GIST Research

For  patients who have recently been diagnosed with cancer, donating a tissue sample is probably the last thing on their minds. But it’s an important consideration. Researchers often rely on donated tissue to advance [...]

By |2018-10-30T09:49:49-04:00June 10th, 2016|Newsletter, Research, Tissue Bank|

GIST Collaborative Tissue Bank: A researcher’s perspective

The Life Raft Group GIST Collaborative Tissue Bank consists of a collection of tumor specimens from a large number of patients, stored at Stanford University. The advantages of having a tissue bank for a [...]

By |2020-02-05T08:36:22-05:00February 10th, 2016|News, Newsletter, Research, Tissue Bank|

Clinical Trial Data Sharing: LRG’s Model for Collaboration

A recent report from the Institute of Medicine outlines the advantages of data sharing from clinical trials. The authors state that data sharing can lead to the discovery of new treatment modalities as well [...]

By |2019-04-08T09:29:38-04:00March 3rd, 2015|Clinical Trials, News, Patient Registry, Tissue Bank|

LRG patient registry: powerful tool for patients, physicians and researchers

The time it takes between the appearance of first symptoms of a rare disease and when the correct diagnosis is given, is often years if not decades instead of days or weeks like it is [...]

By |2019-09-20T12:41:08-04:00October 24th, 2014|News, Patient Registry, Research, Tissue Bank|

2013 LRG Research Team Progress Report

Accomplishments—Recent Progress: 1. Using mouse models, successfully attacked GIST with antibodies, essentially telling immune system to eat the cancer cells.

Join Our Tissue Bank – Help the LRG Find A Cure

Join our Tissue Bank - Help the LRG in the search for a cure. Wildtype GIST tissue is needed for a current LRG Research Team project. If you or a loved one are a wildtype GIST patient, please help the LRG Research Team in its search for the cure by donating your tissue.

By |2019-09-20T12:53:09-04:00April 1st, 2013|Advocacy, News, Patient Registry, Tissue Bank|
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