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Salud con Datos Produces Unique Analysis of Chilean & Mexican Patient Registries

This study is the result of a collaborative effort between Chile and Mexico, called Salud con Datos that sought to determine GIST prevalence, patients’ clinical characteristics and survival rates. Our report is the largest of its kind in Latin America.

By |2020-05-07T11:33:29-04:00May 7th, 2020|Global, News, Patient Registry|

NCI Mentions LRG as Component in Development of Ayvakit

In a new article from the NCI concerning the January 2020 approval of Ayvakit, (produced by Blueprint Medicines) the Life Raft Group is acknowledged in the section, “Capturing the Patient Experience.” We are proud to have played a role in supporting the research involved in bringing a new treatment to market for GIST patients.

By |2020-02-07T14:23:48-05:00February 7th, 2020|D842V, Drug Treatment, News, Patient Registry|

Are YOU Seeing a GIST Specialist?

When diagnosed with any disease, it's important to see a specialist who will have the proper experience to guide you to an effective treatment protocol. This LRG survey queried LRG members about physicians, the physician's ability to answer their questions, and who recommended their GIST specialist in order to get a snapshot of patients' satisfaction with their with their care.

By |2019-12-18T14:50:30-05:00December 18th, 2019|News, Newsletter, Patient Registry|

Increasing Survival without Borders

The Life Raft Group is pleased to announce the official establishment of our Regional Patient Registry, a partnership with Latin America, which will collect medical history and treatment information from more than 600 GIST patients who are represented by Fundación GIST Mexico, Fundación GIST Chile, and Pontificia Universidad Católica de Chile.

By |2019-12-18T14:34:24-05:00December 18th, 2019|Global, News, Newsletter, Patient Registry|

The Life Raft Group Patient Registry in Review 2018

Click on image to see Patient Registry in Review 2018 The Life Raft Group has played an instrumental role in bridging the gap between patients with valuable clinical Gastrointestinal Stromal Tumor (GIST) [...]

By |2019-03-25T10:37:22-04:00March 22nd, 2019|News, Patient Registry, Research|

Salud con Datos – Partnering to Share Real World Data in Latin America

Over the past few years, The Life Raft Group has been strengthening its efforts in Latin America as it focuses on harnessing data to improve GIST patient outcomes. We have built strong relationships with [...]

By |2019-04-19T12:36:13-04:00June 29th, 2018|Global, Newsletter, Patient Data, Patient Registry|

The Life Raft Group Patient Registry in Review 2016

The Life Raft Group Patient Registry has over 15 years of self-reported and clinical data encompassing 35 years of patient history crossing institutional boundaries. The Patient Registry has 1703 patients from 67 countries, [...]

By |2018-10-30T09:19:42-04:00February 24th, 2017|News, Newsletter, Patient Registry|
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