In a new article from the NCI concerning the January 2020 approval of Ayvakit, (produced by Blueprint Medicines) the Life Raft Group is acknowledged in the section, “Capturing the Patient Experience.” We are proud to have played a role in supporting the research involved in bringing a new treatment to market for GIST patients.
When diagnosed with any disease, it's important to see a specialist who will have the proper experience to guide you to an effective treatment protocol. This LRG survey queried LRG members about physicians, the physician's ability to answer their questions, and who recommended their GIST specialist in order to get a snapshot of patients' satisfaction with their with their care.
The Life Raft Group is pleased to announce the official establishment of our Regional Patient Registry, a partnership with Latin America, which will collect medical history and treatment information from more than 600 GIST patients who are represented by Fundación GIST Mexico, Fundación GIST Chile, and Pontificia Universidad Católica de Chile.
Click on image to see Patient Registry in Review 2018 The Life Raft Group has played an instrumental role in bridging the gap between patients with valuable clinical Gastrointestinal Stromal Tumor (GIST) [...]
Over the past few years, The Life Raft Group has been strengthening its efforts in Latin America as it focuses on harnessing data to improve GIST patient outcomes. We have built strong relationships with [...]
The Life Raft Group Patient Registry has over 15 years of self-reported and clinical data encompassing 35 years of patient history crossing institutional boundaries. The Patient Registry has 1703 patients from 67 countries, [...]
"I'm glad I called the Life Raft Group. They rallied around me and told me I'm going to make it and get through this GIST journey of mine and conquer this cancer." - [...]
On Tuesday, January 12, a small delegation of LRG staff journeyed to Washington, DC, to make a presentation to the executive leadership of the National Center for Advancing Translational Science (NCATS). The team from [...]
Michelle Durborow with Rodrigo Salas, LRG board member, at tenth annual ICORD meeting. The tenth annual ICORD meeting was held in Mexico City on October 13-14 with the theme “A Decade of Discoveries and [...]
On Friday, May 22, members of the Life Raft Group traveled to Columbia University’s Mailman School of Public Health to share the technology, capabilities and data of the LRG Patient Registry. The presentation was [...]