Patient Registry

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The Life Raft Group Patient Registry in Review 2018

Click on image to see Patient Registry in Review 2018 The Life Raft Group has played an instrumental role in bridging the gap between patients with valuable clinical Gastrointestinal Stromal Tumor (GIST) [...]

By |2019-03-25T10:37:22-04:00March 22nd, 2019|News, Patient Registry, Research|

Salud con Datos – Partnering to Share Real World Data in Latin America

Over the past few years, The Life Raft Group has been strengthening its efforts in Latin America as it focuses on harnessing data to improve GIST patient outcomes. We have built strong relationships with [...]

By |2019-04-19T12:36:13-04:00June 29th, 2018|Global, Newsletter, Patient Data, Patient Registry|

The Life Raft Group Patient Registry in Review 2016

The Life Raft Group Patient Registry has over 15 years of self-reported and clinical data encompassing 35 years of patient history crossing institutional boundaries. The Patient Registry has 1703 patients from 67 countries, [...]

By |2018-10-30T09:19:42-04:00February 24th, 2017|News, Newsletter, Patient Registry|

Clinical Trial Data Sharing: LRG’s Model for Collaboration

A recent report from the Institute of Medicine outlines the advantages of data sharing from clinical trials. The authors state that data sharing can lead to the discovery of new treatment modalities as well [...]

By |2019-04-08T09:29:38-04:00March 3rd, 2015|Clinical Trials, News, Patient Registry, Tissue Bank|

LRG patient registry: powerful tool for patients, physicians and researchers

The time it takes between the appearance of first symptoms of a rare disease and when the correct diagnosis is given, is often years if not decades instead of days or weeks like it is [...]

By |2015-11-05T10:07:39-04:00October 24th, 2014|News, Patient Registry, Research, Tissue Bank|

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