Patient of the Month – July 2024: Tom Tiefert
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Tom Tiefert shares his story.
The Life Raft Group’s ASCO Educational Book Manuscript Published
The Life Raft Group is proud to share our ASCO Educational Book Manuscript - “Leveraging Patient Engagement Through Collaboration for Improved Global Health Outcomes in Sarcoma”
Advocating for Yourself or a Loved One with GIST
Santy DiSabatino, Director of our US GIST Mentor Program, chatted with a group of GIST patients who have extensive experience advocating for themselves and their loved ones for the best possible care.
NCCN GIST Guidelines 2023 – What You Need to Know as a GIST Patient
NCCN recently updated the clinical practice guidelines in oncology for medical professionals for several types of cancer including GIST. These guidelines are a set of evidence-based recommendations for the diagnosis, treatment, and management of various types of cancer and define the recommendations for management, care, and treatment of all cancers in the US. What do you need to know?
Join the LRG’s Vision – Thriving Together in 2023
The Life Raft Group is thankful to those who so generously supported us in 2022 and we hope you continue to support our new initiatives in 2023. #thrivingtogether
Join Us for the La Senda Verde Virtual Tour with Vicky Ossio!
Vicky Ossio shares her passion for rescuing & rehoming animals confiscated due to illegal trafficking & habitat destruction with a tour of La Senda Verde Wildlife Sanctuary in Bolivia.
LRG Medical Advisory Board Issues Statement on the Value of Telemedicine
The LRG Medical Advisory Board issued a statement in response to a NEJM article on telemedicine with the hope that other organizations & physicians will follow suit, advocating for treatment ease & equity.
It’s Time to Tell The Stories: Our Good News – Global Impact – Sarah
Our Good News Holiday Campaign is the culmination of our year of "Time to Tell the Stories 2022." In this series, we celebrate the connections, the celebrations, the events and milestones that we’ve been privileged to be a part of this year. Sarah McGoram shares her experience as a patient advocate.
A Conversation with Patient Advocate Sarah McGoram
Sarah McGoram is a long-term survivor & passionate patient advocate for GIST patients in Australia.
Annual NORD Breakthrough Summit Tackles a Diversity of Rare Disease Issues
I was fortunate to be able attend the @NationalOrganizationforRareDisorders Rare Diseases + Orphan Products Breakthrough Summit (#NORDSummit) on October 17-18 in-person in Washington, DC via a full scholarship. During this highly anticipated [...]