Join Us for the La Senda Verde Virtual Tour with Vicky Ossio!
Vicky Ossio shares her passion for rescuing & rehoming animals confiscated due to illegal trafficking & habitat destruction with a tour of La Senda Verde Wildlife Sanctuary in Bolivia.
LRG Medical Advisory Board Issues Statement on the Value of Telemedicine
The LRG Medical Advisory Board issued a statement in response to a NEJM article on telemedicine with the hope that other organizations & physicians will follow suit, advocating for treatment ease & equity.
It’s Time to Tell The Stories: Our Good News – Global Impact – Sarah
Our Good News Holiday Campaign is the culmination of our year of "Time to Tell the Stories 2022." In this series, we celebrate the connections, the celebrations, the events and milestones that we’ve been privileged to be a part of this year. Sarah McGoram shares her experience as a patient advocate.
A Conversation with Patient Advocate Sarah McGoram
Sarah McGoram is a long-term survivor & passionate patient advocate for GIST patients in Australia.
Annual NORD Breakthrough Summit Tackles a Diversity of Rare Disease Issues
I was fortunate to be able attend the @NationalOrganizationforRareDisorders Rare Diseases + Orphan Products Breakthrough Summit (#NORDSummit) on October 17-18 in-person in Washington, DC via a full scholarship. During this highly anticipated [...]
Jess Ly Runs for the Cause – A Half Marathon for the LRG & GIST Awareness
During the pandemic and in September 2020, Jess Ly was diagnosed with GIST cancer. The Life Raft Group (LRG) community, her GIST friends, and the cancer community welcomed her with open arms. Now she's running a half marathon to raise awareness and funds for #GISTresearch!
Global Advocacy News – SIMPOSIO ONCOLATINO
PIGA FERNÁNDEZ, LRG GLOBAL CONSULTANT, GLOBAL GIST DIR., EXEC. DIRECTOR FUNDACIÓN GIST CHILE I was invited to participate in this symposium organized by the Civil Society of Uruguay, together with almost 30 [...]
Centro de Oncología de Precisión U. Mayor reunió a pacientes con cánceres gastrointestinales
El encuentro, organizado para conmemorar el Día Internacional de la Concientización del GIST en conjunto con la Fundación GIST Chile, destacó la necesidad y la importancia del diagnóstico precoz y las terapias personalizadas para mejorar la calidad de vida de los pacientes.
Genetics and Genomics Testing – An ECPC E-module
The European Cancer Patient Coalition (ECPC) has published an e-module on Genetics and Genomics Testing in English, German, French, Italian, and Spanish.
GIST Do It Walk NJ 2022 Gallery
Verona Park, Verona, NJ was the site of the third GIST Do It Walk NJ on April 9th. Patients, caregivers, family, friends and LRG staff gathered and walked to support #GISTresearch.