GIST Awareness Day was marked globally July 13, 2021 by GISTers, family & caregivers, pharma, clinicians & physicians, and patient advocacy organization around the world.
Las organizaciones de pacientes de América Latina celebran el Día de la Concientización del GIST 2021
Las organizaciones de pacientes de América Latina celebran el Día de la Concientización del GIST 2021.
Rodrigo Salas & Berenice Carbajal-López of Fundación GIST México illustrate how this organization is working to spread GIST awareness and education.
Despite all the work done by our amazing members and friends to date there is still a huge lack of education and awareness that exists within the medical community and general public about GIST. [...]
This New Horizons GIST webinar is for GIST patients around the world. Hosted by SPAEN, this presentation focuses on mutational testing as a guide for the right therapy.
The Life Raft Group is pleased to welcome Mr. Young Jae Kim (YJ) as the new LRG representative (liaison) in our global network!
Luciana Holtz de Camargo Barros, founder and president of Instituto Oncoguia, authored this article about the creation and advocacy issues of this cancer patient advocacy organization based in São Paulo, Brazil.
Web Associate Eddie Delgado shares his impressions of the Rare Disease Summit held virtually by NORD earlier in the month.
On Wednesday, August 26, 2020, LRG Global Consultant & Executive Director of Fundación GIST Chile, Piga Fernández, (GIST survivor & advocate), attended ae climatic event at Palacio de La Moneda (La Moneda), where the President Piñera of Chile took the final steps to sign the 'Ley de Cáncer Claudio Mora' guaranteeing healthcare protections for Chilean cancer patients.
The New Horizons GIST 2020 Virtual Meeting kicked off on Thursday September 10th at 8am EST. Meeting since 2003, these patient advocates for various cancers split off to a GIST-only meeting several years ago. This year’s meeting, originally planned for Berlin, Germany, was held virtually September 10-12th.