The LRG Welcomes Young Jae Kim as Our Newest Liaison
The Life Raft Group is pleased to welcome Mr. Young Jae Kim (YJ) as the new LRG representative (liaison) in our global network!
Patient Advocacy in Brazil – Instituto Oncoguia
Luciana Holtz de Camargo Barros, founder and president of Instituto Oncoguia, authored this article about the creation and advocacy issues of this cancer patient advocacy organization based in São Paulo, Brazil.
Experiencing the Rare Disease World through the NORD Summit
Web Associate Eddie Delgado shares his impressions of the Rare Disease Summit held virtually by NORD earlier in the month.
“LEY DE CÁNCER CLAUDIO MORA”
On Wednesday, August 26, 2020, LRG Global Consultant & Executive Director of Fundación GIST Chile, Piga Fernández, (GIST survivor & advocate), attended ae climatic event at Palacio de La Moneda (La Moneda), where the President Piñera of Chile took the final steps to sign the 'Ley de Cáncer Claudio Mora' guaranteeing healthcare protections for Chilean cancer patients.
New Horizons GIST 2020
The New Horizons GIST 2020 Virtual Meeting kicked off on Thursday September 10th at 8am EST. Meeting since 2003, these patient advocates for various cancers split off to a GIST-only meeting several years ago. This year’s meeting, originally planned for Berlin, Germany, was held virtually September 10-12th.
LRG Hosts Virtual Meeting for Global GIST Advocates
On Friday, August 21, The Life Raft Group hosted a virtual meeting entitled “GIST Patient Advocacy during the 'New Normal' of the COVID 19 Pandemic.” Designed for representatives from global GIST advocacy organizations, its purpose was to provide a forum for the international community to discuss challenges they are facing, and to share experiences and best practices.
GIST Awareness Day 2020 – Kenya
Henzo Kenya celebrated GIST Awareness Day all week, July 12th to 17th, by sharing information about GIST and giving messages of hope.
GIST Awareness Day 2020 – Spain
Colectivo GIST Espańa celebró el Día de Concienciación de GIST (GIST Awareness Day) con una publicación sobre el tema. A pesar de todo el trabajo realizado por las asociaciones de pacientes, por los [...]
GIST Awareness Day 2020 – Colombia
Fundación GIST Colombia & Fundación SIMMON & AlianzaGIST promoted awareness about gastrointestinal stromal tumors on GIST Awareness Day. GIST Awareness Day was created by the Life Raft [...]
#WolfStrong Celebrates the Life of Ted Wolf for GIST Awareness Day
Tammy Wolf, wife of Ted, gathered in-person and virtually with family and friends to celebrate the life of Ted Wolf with a GIST DO IT Walk for GIST Awareness Day.