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Join Us for the La Senda Verde Virtual Tour with Vicky Ossio!

Vicky Ossio shares her passion for rescuing & rehoming animals confiscated due to illegal trafficking & habitat destruction with a tour of La Senda Verde Wildlife Sanctuary in Bolivia.

By |2023-01-11T14:44:19-05:00January 11th, 2023|Advocacy, Coping with GIST, Events|

LRG Medical Advisory Board Issues Statement on the Value of Telemedicine

The LRG Medical Advisory Board issued a statement in response to a NEJM article on telemedicine with the hope that other organizations & physicians will follow suit, advocating for treatment ease & equity.

By |2023-01-09T07:35:05-05:00January 9th, 2023|Advocacy, News, Patient Support|

It’s Time to Tell The Stories: Our Good News – Global Impact – Sarah

Our Good News Holiday Campaign is the culmination of our year of "Time to Tell the Stories 2022." In this series, we celebrate the connections, the celebrations, the events and milestones that we’ve been privileged to be a part of this year. Sarah McGoram shares her experience as a patient advocate.

By |2022-12-22T13:26:56-05:00December 22nd, 2022|Advocacy, Fundraising, News|

Annual NORD Breakthrough Summit Tackles a Diversity of Rare Disease Issues

I was fortunate to be able attend the @NationalOrganizationforRareDisorders Rare Diseases + Orphan Products Breakthrough Summit (#NORDSummit) on October 17-18  in-person in Washington, DC via a full scholarship. During this highly anticipated [...]

By |2022-10-21T10:09:41-04:00October 21st, 2022|Advocacy, Conferences, News|

Jess Ly Runs for the Cause – A Half Marathon for the LRG & GIST Awareness

During the pandemic and in September 2020, Jess Ly was diagnosed with GIST cancer. The Life Raft Group (LRG) community, her GIST friends, and the cancer community welcomed her with open arms. Now she's running a half marathon to raise awareness and funds for #GISTresearch!

By |2022-10-14T09:39:40-04:00October 7th, 2022|Advocacy, Events, Fundraising, News|

Centro de Oncología de Precisión U. Mayor reunió a pacientes con cánceres gastrointestinales

El encuentro, organizado para conmemorar el Día Internacional de la Concientización del GIST en conjunto con la Fundación GIST Chile, destacó la necesidad y la importancia del diagnóstico precoz y las terapias personalizadas para mejorar la calidad de vida de los pacientes.

By |2022-09-01T10:21:29-04:00July 15th, 2022|Advocacy, Events, Global, News, Patient Support|
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