Genetics and Genomics Testing – An ECPC E-module
The European Cancer Patient Coalition (ECPC) has published an e-module on Genetics and Genomics Testing in English, German, French, Italian, and Spanish.
GIST Do It Walk NJ 2022 Gallery
Verona Park, Verona, NJ was the site of the third GIST Do It Walk NJ on April 9th. Patients, caregivers, family, friends and LRG staff gathered and walked to support #GISTresearch.
LRG Staffer Presents at the 99th Virtual Patient Support Group
In March, Director of Data Mgmt and Research, Sahibjeet Kaur joined the GIST experts of AIIMS for the 99th Virtual Patient Support Group addressing patients from India.
We stand with Ukraine. We stand with cancer patients.
International access to cancer treatment can be challenging. Access to effective treatment in a time of war provides a an even more daunting challenge.
A Thank You from Ukraine
Lidia Kornienko was searching for answers and when she reached out she found generous people willing to help assist her on the path to mutational testing and an effective treatment plan.
Global Patient Involvement in Sarcoma Care
A recent paper published in Cancers by CTOS and SPAEN highlights major findings and proposes potential future steps in global sarcoma care.
New Horizons – Best Practices: How to Advocate for Better Access
Sarah McGoram, Carolina Goič, Florence Thwagi, Tania Carolina Diaz presented Best Practices: How to Advocate for Better Access at New Horizons 2021.
New Research Lab Dedicated to GISTer
Dr. Jason Sicklick of Moores Cancer Center at UC San Diego dedicated his new research lab to the memory of GISTer Merak Melikian Hatounian.
Australian GIST Advocates Overcome Payer Obstacles Concerning Qinlock
Australian GIST Advocates Overcome Payer Obstacles Concerning Qinlock. 4th line drug approval was approved! GISTer Sarah McGoram shares the news.
More Ways GIST Awareness Day Was Noted Globally in 2021!
GIST Awareness Day was marked globally July 13, 2021 by GISTers, family & caregivers, pharma, clinicians & physicians, and patient advocacy organization around the world.